Starting chemo July 2018

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  • Misha13
    Misha13 Member Posts: 240
    edited November 2018

    Rose-Im glad your side effects are not horrible and you are smart to stay on top of the fever! I’ve gained weight too. The six I lost from ac plus three more. So really I’m only up three since July! I have no stamina so I’ve not been very active. Plus the marble feet makes me not want to walk! Hang in there! January will be here before you know it!

    JaBoo-Yay, only one more Taxol!! It’s a great feeling to be done, but now I’m waiting for the SE’s to go away! I hope it only takes a couple weeks to at least get my tastebuds back and some energy! A birthday surgery! You’ll never forget your surgery date! Lol!

  • Vikinggrl
    Vikinggrl Member Posts: 6
    edited November 2018

    I am reading a lot about this supplement Glutamine, it sounds like it is really good for healthy people but unfortunately for those with cancer it can feed tumors! I am going to use Ice to hopefully prevent neuropathy with my Taxol treatments but I will not take Glutamine. I tried to post 2 links one a science based link NCBI but it is not allowed on this forum. I suggest you read about it on your own.

  • Misha13
    Misha13 Member Posts: 240
    edited December 2018

    JaBoo-Did you finish?? Let us know!

    Rose-You should have had another, I think, still doing well with no super bad reactions, I hope!


  • RoseRed4
    RoseRed4 Member Posts: 72
    edited December 2018

    Yep, I had Abraxane #5 yesterday! Halfway done with Abraxane....woohoo! Doing the pins and needles dance with my feet today and had a few bathroom issues last night, but I’m ok 🙂 Gonna get bf to find some diabetic/circulation socks at WallyWorld this weekend. Oh, lord help him to find them, I’m sure he’ll call me 20 times like usual while in Walmart.😂 My temp is normal and throat is finally feeling better. Was so sore last week. Warm salt water gargling sure does help. My mom will have a big I TOLD YOU SO when I tell her 😝 Been hearing that all my life from her, but I was always too stubborn to do it. Lol

  • JaBoo
    JaBoo Member Posts: 520
    edited December 2018

    My last Taxol done!!!! Pheeew, I thought this day would never come!!!

    So, I helped myself with some exclamation marks, but... the day feels sort if anti-climatic. I am just tired and drained and feel like after any other chemo. No bells to mark the end of chemo in my country... it's kind of weird.

    I am thinking about the next steps more, the surgery, radiation (don't know about it much yet, surgery decides), hormonal therapy, herceptin till next September.... well, I sort of have a feeling I've gotten nowhere yet

    But I am glad, don't get me wrong... I am going to visit a christmas market with my friend who is having her last Taxol next week. So we will meke it a celebration and I want to get some totally unhealthy delicious advent meal. The christmas markets here in Europe are beatiful and I love them.

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited December 2018

    Congrats JaBoo! It is daunting to think of the whole picture..how much farther we have to go in our treatment plans, but woohoo no more chemo for you! That’s worth a whole bunch of !!!!!!!’s 😉 The Christmas markets sound lovely 😊

  • Misha13
    Misha13 Member Posts: 240
    edited December 2018

    Congrats JaBoo on finishing!! 🎉🎂👍🏻You deserve many !!!! I’m also trying to make the transition to surgery. One and a half weeks PFC and I am starting to feel better. I can tell my tastebuds are returning and I’m not so darn fatigued! Tummy feels a bit calmer as well.

    Rose-Im interested to know if the diabetic socks work for you! I have neuropathy in my toes and it is driving me nuts! Glad you are at the halfway mark!

    I feel a little lost though since my days were focused on getting through the side effects of chemo and were largely determined by how I felt, now I’m more bored and a little depressed. I know I need to find something to do and with Christmas coming, I should have lots to do!! Anyway, just another adjustment in routine.

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited December 2018

    Dang it, I’m losing my hair and eyebrows again. Didn’t notice until last night that my head was shedding and my eyebrows which were looking so awesome again, are sparse as well now. I know..only 5 more treatments left and then it’ll grow back, but blah! Think it’s harder losing it all the 2nd time around. Well at least I don’t have to shave my legs, and I really don’t care if they’re stubbly anyway! Lol. Ok, rant over..have a good day everyone!

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited December 2018

    Misha, I found some copper-infused comfort socks today at CVS that say ideal for diabetics and they feel good on my feet. Cushioned sole and smooth toe seam.. My toes were driving me crazy last night. Weirdest feeling! I always have cold feet anyway and now neuropathy on top of that, so much fun 🤬 This too shall pass! (I sure hope so)


  • JaBoo
    JaBoo Member Posts: 520
    edited January 2019

    I wish you all wonderfull July ladies a Happy&Healthy new year 2019!!!

    I hope everyone here is finished with chemo. Where are you now? Radiation, operation?

    I finished chemo and I am having BMX with recon mid January. I am starting to worry...

    Did you all have nice Christmas with your families? I certainly hope so! I did, kids, presents, toys everywhere and I received a nice surprise.. family gatherings... it was all very nice and warm and wonderfull. made me even forget the C-word for hours at a time. what a nice change it was. 🎄❤️✨


  • Misha13
    Misha13 Member Posts: 240
    edited January 2019

    Hello!! I've missed you all and since we are all at different stages, we all didn't go to the same boards after this one!

    As for me, I am 6 days out from my BMX! Very blessed I got to have a skin and nipple sparing mastectomy with straight to implant recon! I have no official pathology yet, but surgeon told hubbie it appeared I had a complete response from the chemo and there was no attachment in the nodes. So I can take comfort knowing my chemo sufferings were worth it! Hopefully.

    JaBoo-Let me know if you have any BMX questions and I hope you found a January surgery board!

    Christmas was very good; I was spoiled this year! Kids got everything they wanted too! Somehow we made it work!

    I am assuming I'll have rads next, but haven't heard for sure.

    Updates? Prayers that all of you are well. Happy 2019!!

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited January 2019

    Happy New Years, JaBoo and everyone else! I have 2 Abraxane left. Neuropathy in my feet is not fun. Been trying to treadmill, but it's too hard on my toes, so I've ordered an exercise bike. Gotta do something to battle this 15lbs I've gained. Everyone says I look fine, but I feel like a bloated whale. Lol I will finally be done with chemo this month! Was happy to say goodbye to 2018, been a rough year for all of us, I know.

    Also, my 86 y/o mom had a stroke a few days before Christmas. She lives 3 hours from me, so it's been tough not being able to see her more. We were able to make the trip to see her in the Cleveland Clinic the Sunday before Christmas. My son was in from Iowa too. I was so happy he could make the trip with us and spend a few days with me as well. Hoping my mom will get better, but I just don't know yet. Holidays were a bit different this year, but I'm hoping this year will be better for all of us!


  • JaBoo
    JaBoo Member Posts: 520
    edited January 2019

    Misha, how are you doing post BMX? Are you able to use your arms?

    RoseRed I'm sorry to hear about your mum, I do hope she is better now. Yay that the end of your chemo is near. You rock with your exercise!




  • Misha13
    Misha13 Member Posts: 240
    edited January 2019

    Hello JaBoo and Rose and anyone else!

    Rose-How is your mom? And is there congratulations in order for finishing chemo??

    I got some not super good news when my pathology from surgery came in: tumor shrank (yay!) but I had lots of cancer in 7 of 9 nodes.(boo!) I spent all this past week thinking I was done for. I finally saw my MO yesterday and they have a plan. Rads and then ovarian suppression and an aromatase inhibitor. I wanted to do oral chemo (Xeloda) and MO thought the AI and rads would be the answer. He’s going to consult with the other oncs about it.

    I’m upset I’m not done, and scared that I’ve had all that cancer floating around in my body for the last 6 months!

    Anyway, my new foobs are great! I got to keep my skin and nipples, so they look fantastic, my boobs, but with big implants! They still hurt and I have no range of motion on the left where they took out nodes. Would enjoy them more if it wasn’t for the damn path report.

    JaBoo-You have your BMX this month, right? I wish you no surprises!!

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited January 2019

    Hello JaBoo, Misha and anyone else. The time since New Years has kinda been a blur for me. Yes, I will be done with chemo tomorrow!!! I’m overjoyed about that of course but this has been a tough week. My mom had a 2nd stroke. We drove up to Ohio yesterday to see her. It’s not good. Very hard seeing my always strong and determined mom like that. She’s always been a fighter and so must I, so knowing I probably saw my mom alive for the last time is tough, but I have to keep going and plan now her arrangements. I’m so ready for tomorrow to be done and over. I’m longing for my hair back, although it will seem weird to have to take care of hair again! Lol I hope everyone has a good week.

  • JaBoo
    JaBoo Member Posts: 520
    edited January 2019

    Misha, that's such a bad surprise, I am sorry you have to deal with this. Stupid f#%#ing cancer! But I'm sure you will work out a plan to deal with this, with your MO. Radiation really is a powerfull weapon as well as the anti-hormone therapy. In fact, I just started an AI a few days ago. I've been on Zoladex (ovarian supression) since July. My MO spoke about the SOFT/TEXT trials that show this to be a very effective treatment.

    Yes, my BMX is sheduled for next week, with expanders.

    RoseRed, so sorry to hear about your mum. I know you have to do the arrangements, but do find some to rest or go for a walk in between. At least your chemo is now over, yay! I'm sure you will now feel better every day.

    True about the hair! I used shampoo for the first time yesterday. I thought to myself that I will maybe keep my hair this short to save myself the hassle with hair.

    Have a good week everyone.

  • urdrago71
    urdrago71 Member Posts: 559
    edited June 2019

    July group, i got to know Jkittle on here prior to her starting the group and continued to keep in contact with her... I was informed she has passed May 13, 2019. She fought very hard after the cancer spread to her spinal fluid. Her amazing strength, humor, charm, and positivity you likely wouldn't have known she was sick. prayers to her husband and son.

  • JaBoo
    JaBoo Member Posts: 520
    edited June 2019

    Urdrago, what news.... I am so sorry to hear. Should you have the possibility, please send my heartfelt condolences to her family. Jkittle added strenght and positivity to our little July group. I am heartbroken for her son and husband.

    Thank you for letting us know

  • Misha13
    Misha13 Member Posts: 240
    edited June 2019

    Thank you for posting this. I am sorry to hear. I have wondered why JKittle seemed to disappear. Prayers for her family.

  • Gndvll
    Gndvll Member Posts: 47
    edited July 2019

    Thank-you, Urdrago. I hate to hear it. Please let her family know that she is missed and was much appreciated. Misha, Rose, How goes the battle? You know, I grew so close to everyone, so quickly. I had BMX in December, with a PCR. I haven't rebuilt yet. I got waylaid with an infection, then a heart attack. Now, I'm questioning even putting myself through the surgery.


    I really miss talking with everyone, but part of me wants to just forget I was ever sick. Fat chance. My hair is sooo curly! I still have a little pooch, but my weight seems to be stabilizing. We'll see. I'll try to check in more often. I think of everyone and pray for you all, often.


    Gina

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited July 2019

    Hello everyone, sad to hear about Jkittle. I had wondered too what happened to her along our chemo journey. Misha, your hair looks great! Gina, I hope your health is getting better now, and everyone else's too! 3 more treatments of H&P and I'll be totally done with treatments. Can't wait to be done, but then finishing treatment gives me anxiety too. It's been a long hard road, but I am feeling pretty good these days. Had some back problems (sciatica) but hallelujah it's much better now. My hair is getting curly too. It's good to see it growing again 😃 Passed my 1st mammogram since last year, bone density test was normal and I get my 1st colonoscopy in 2 weeks. So dreading that, but gotta do it. Trying to get everything tested that I possibly can. I keep telling myself the colonoscopy can't be worse than chemo. Lol JaBoo, my mom pulled through and is hanging in there! She'll probably never walk again, which is hard for her to accept. Hoping everyone has a good summer!


    Ros

  • Misha13
    Misha13 Member Posts: 240
    edited July 2019

    Hey ladies! Gina! I’m sorry to hear you had a heart attack after all of this other crap! Do you think you’ll ever rebuild or just go flat?

    Rose-happy to hear your mom is is okay, but prayers for her to walk again. The colonoscopy will be a cakewalk compared to cancer treatment! The worst part is the cleaning out of your bowels. I’m sure you aren’t looking forward to having more diarrhea!

    I am working out again and feeling absolutely fabulous! I’m getting strong and it feels great!

    While it’s still too short right now, I actually like the short hair and think I will keep it on the short side! My foobs are looking great as well. My left side is still tight as hell and I have to stretch constantly, but I have almost full range of motion.

    The aromatase inhibitor I take is not good, but it’s really not that bad. Joint pain in my fingers and toes (on top of the numbness I STILL have from Taxol) and muscle tightness, but I still feel 100x’s better than during chemo.

    I’m teaching summer school right now, and am just so grateful for each day I have. I have been thinking a lot about our chemo journey lately and you ladies as well. I wish us all blessings of good health!

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited July 2019

    Hi everyone! Hope the weekend has been relaxing. Sounds like you're doing great, Misha! 😃 Good to hear. I'm feeling good. Now if I could just lose that 10lbs (ok, closer to 20) I gained during/after chemo. I know I can do it if I really put my mind to it.

    Bf texted me that he was sick last night, so this morning I asked him if he was going to Urgent Care today. He has COPD and ended up in the hospital once before with pneumonia. Nope, he's feeling better and puts off seeing a doctor until tomorrow and he'll probably put that off too. He promised me when he got out of the hospital that he would never put off seeing a doctor again... Little bit ago, he texted me “runny nose and stomachache. Wee..I hate it" 👀👀 1st of all, he should've got his stubborn ass to a doctor today and omggggg..I wonder how many times in the past year, have I had a runny nose and stomach issues?? (Ty Herceptin & every other chemo related drug that I’ve had) Lol Sorry, but I just don't have it in me to be his nursemaid today. Happy Sunday y'all 😊😎

    Rose

  • RoseRed4
    RoseRed4 Member Posts: 72
    edited July 2019

    p.s sorry for the cursing. Men..and I’m the stubborn one, uh huh

  • Gndvll
    Gndvll Member Posts: 47
    edited August 2019

    Hi, ladies.

    I can't believe it's already August! I'm doing better, although I do miss the girls. I didn't have reconstruction, and I'm trying to decide whether or not to go down that path. I really have avoided making this decision. I am pretty comfortable with my foobs, but I live in Florida twenty minutes from the beach, and I'm still uncomfortable in a swimming suit. The more I wrestle with the decision, the less I'm inclined towards another surgery. I'm going to see the PS one more time, because I am recovered enough to actually have another surgery, but I'm living in waffle land and I just don't know.


    How is everyone else doing today? That's one thing I've definitely learned. I try to fully cherish and participate each and every day, and I treasure the mindset. I just don't take as much for granted as I did. It was, (and continues to be), such a blessing to simply be here. I'm truly thankful.

    I think of all of you regularly, and pray for everyone, often. Gentle hugs to each of you. Hang in there. I was so sick, for so long that I couldn't imagine ever feeling this whole and happy again. I really just dropped by to let everyone know IT DOES IMPROVE! Hang on to that, and know you are loved.

    Godspeed to each of you.

    Love,

    Gina

  • Misha13
    Misha13 Member Posts: 240
    edited August 2019

    Hey Gina! Glad to hear you are doing well! Going to the beach sounds so nice right now! I too am grateful for every day! I agree not having the girls would be difficult, but I also am NOT in a hurry to ever have another surgery, so I get it. That would put you back in the “sickness” place again at least for a while. It’s been over six months since my surgery; I don’t hardly feel pain ever and mostly just experience tightness in the lymph node area. I still need to lose the weight I gained after chemo and surgery when I was eating whatever the hell I wanted just because I could! Haha! Prayers for you and anyone else who comes across this.

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