Starting/declining hormone therapy Nov, Dec, Jan 2018

Spoonie - a couple more pics for you! We are all thinking of you and will check in for an update tomorrow.

It is sooooo hard being patient when waiting for a call from an Oncologist.

Thanks everyone for being in my pockets. And Tucker and Domino are the best....I am trying to be like them. Promise.

Boo. That stinks.

OMG. I called, again to leave a message and found out that no one has even been assigned to look into my messages from over the weekend or my voicemails from this morning regarding my abnormal scan and labs. UGGGGGGGGGGH!!!

Trying not to be upset, but I am......she said that hopefully someone will call me tonight.

This is just awful. Trying not to dive into a pool of tears.

Hey Spoonie - I agree waiting sucks wide and the medical profession tend to forget that it is an actual human with hopes and fears waiting for the news on the other end. I agree if a good cry will help go for it but get set up kleenex garbage bag (it ruins the moment if you have to pick up wet kleenex after your cry and use your sleeve). I know you are scared honey but really try to breath close your eyes and feel every last one of us giving you hugs and helping you to hold on. Will be thinking of you until you get your good answers.

Spoonie - OMG I remember this and waiting and not knowing is the most frustrating part. Kudos to you for taking initiative and calling them! I think you need to keep bugging them. So sorry for the wait... if it helps, here is Domino totally empathizing with you. See that expression? That's says boo on waiting, but at least can be comfy while waiting!

lol Edj3 great minds think alike! I did just that. Wine and chocolate down the hatch. I thought about calling again but I'd already called 3 times today. The last time mostly in tears. Le Sigh.

Thanks ladies for being here with me. It helps. And of course Domino takes the cake.

Its 5:30 here so unless she's doing after hr call tomorrow will be the day I guess.

oh Spoonie I am so sorry you have to wait even longer! Loved edj3’s advice 😁. I feel like we could all use that as a standing order to be used PRN! We are all here for you. I am sending all the good thoughts and strength for your wait. Go ahead and cry if you need to, hell throw in a scream or two if it helps!

I’m right there with you, edj3. Fingers, toes and eyes are crossed!

First, yeah it's definitely swollen.

Second, nice neck!

I have been checking repeatedly to! I thought something had gone crazy wrong because no one was updating on any thread I follow!

Spoonie- it's so hard to keep your brain from working over time after you have had a cancer diagnosis! SLOW DOWN BRAIN!!! Let Spoonie rest!

Keep us in the loop!

Spoonie - OMG that is maddening. Here are Domino and Tucker saying, “What? No call? MEH.”

On the bright side, if they sent you an email it’s got to mean that it’s nothing over concerning to them so they prob don’t think it’s a recurrence otherwise they’d be more on it.

And it’s good your cancer rehab appt. got moved to tomorrow so you will at least get that face to face

Spoonie - that is awful, I am so sorry for such an uncaring act. However edj3 gave you great advice cry cuddle vent repeat.. And Pebbles and her pups(adorable by the way) are right too. You get to see someone (hopefully one with a brain and heart tomorrow) and make that appt with the endo. Maybe repeat the wine and chocolate to help you get through the night. Will be here tomorrow to check in on you.

I just don't get it. They (doctors) preach to tell them when something has been going on for longer than two weeks, I'm doing just that, yet no one at all seems to be concerned. It is maddening. Especially with having a lymph node AND a thyroid nodule appearing on freakin imaging, to go along with the fever, weight loss (yeah, I lost another 2 pounds in 2 days), and NO ONE cares.

Yes, while it could be nothing, it might not be a recurrence, it still could be. Until someone can prove that it's not cancer, I'd rather have this thing biopsied than say "ehhh no big deal". Ugggh. I just want a doctor to talk to me. No one wants to. Why????

I'm sorry ya'll. I have watched my brother die from lymphoma. I have seen both of my siblings struggle with their Thyroid cancers. And I am SCARED TO DEATH of METs. I just want a doctor to explain things to me and yet, here I am with a dumb email and waiting for a referral.

It doesn't make sense to this logical mind of mine. I guess I'm just crazy.

THYROID METASTASES FROM A BREAST CANCER DIAGNOSED BY FINE-NEEDLE ASPIRATION BIOPSY

"Breast cancer is less frequent, but a new thyroid mass should be considered as a metastasis of breast carcinoma in any patient with a former history of this malignancy. Breast metastatic cancer is evaluated at ca. 16.0 to 32.0% in postmortem examinations, but only 4.0–9.0% cases are encountered in clinical papers [2, 8, 13]. Metastatic disease of the thyroid could present as single nodule, multinodular goiter or thyroiditis [2, 10]."

Management of the Solitary Thyroid Nodule

"Nodule size in not predictive of malignancy, and the risk for cancer in a thyroid nodule has been shown to be the same regardless of the size on ultrasound [22, 24, 26]. Previous guidelines had recommended that the decision to perform a fine-needle aspiration biopsy (FNAB) should be based on nodules >10 mm. It has now been demonstrated that cancer in nodules <10 mm is not less frequent, and if this value is used as a cutoff, then a significant proportion of cancers will be missed [22]. The prevalence of extracapsular or metastatic growth was shown to be similar in nodules >10 mm and <10 mm [22, 27]."

"The primary aim in investigating a thyroid nodule is to exclude the possibility of malignancy, which occurs in about 5% of nodules. This begins with a thorough history, including previous exposure to radiation and any family history of thyroid cancer or other endocrine diseases. Clinical examination of the neck should focus on the thyroid nodule and the gland itself, but also the presence of any cervical lymphadenopathy. Biochemical assessment of the thyroid needs to be followed by thyroid ultrasound, which may demonstrate features that are associated with a higher chance of the nodule being malignant. Fine-needle aspiration biopsy is crucial in the investigation of a thyroid nodule."

My nodule is 1 cm, hypo-echoic, and solid....according to this I should be getting a biopsy. So why am I not???? Estimated risk of malginancy is 10-20%. Uggggh.