Anyone else have pain after first whole breast radiation?

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  • Spoonie77
    Spoonie77 Member Posts: 925
    edited July 2019

    I'm sorry for the confusion. I was meaning that if I hadn't been sent for an LE assessment I would've asked for one, like EDj3 did, for the simple reason that I get all the weird things and I wanted to prevent the worst of whatever RADs was going to bring my way. :)

    I was given the following stretches to do by my LE PT, whom I saw prior to RADs starting. I was advised this would help maintain range of motion, prevent cording, and keep lymph fluid moving. There may be different ones you would receive, but IMO these are generally good for most people. As always, ask your team and never do something if it hurts.


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  • edj3
    edj3 Member Posts: 2,076
    edited July 2019

    Be super careful with those wall stretches. Your pec is going to get tightened up by the rads. So only go to the point of very gentle stretching.

    Two arm exercises my OT gave me are what she calls bye bye.

    Keep your arm straight and your palm pointing behind you. As you raise your arm in front of you, move your hand in a bye bye movement with straight hand/fingers, only bending at the wrist. Go as far up as you can comfortably.

    Now do the same thing but with your palm facing your body--move your arm out to your side with that same bye by movement of your hand and the same straight hand/fingers and only bending in the wrist. This one will probably be a little harder, at least it is for me.

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited July 2019

    Yes, you're right EDJ3. My PT gave those the label of "challenging" and to only do those once I could do the "easy" ones easily. It took months for me to be able to do them. My range of motion was very limited coming out of RADs, despite all that I did during it to prevent the outcomes. Makes me wonder how awful it would've been if I had done nothing at all. Yikes and eeek.

  • Togethertolearn
    Togethertolearn Member Posts: 278
    edited August 2019

    I just had my 4th today and yes I for sure know I was sore after day one. Not really since then but day 1 absolutely!

  • Calli0p3
    Calli0p3 Member Posts: 21
    edited September 2019

    Hi there,

    I wanted to apologize for not showing back up. I got a chance to house sit while finishing radiation and needed that chance to get away. The place is old, no wifi, not great phone signal. I was worried at first, but it turned out to be great- I just focused on the property and my treatments, and simply needed that time.

    I did have ups and downs, I think I my perfectly fine lymph nodes were irradiated, exactly as I clearly begged all involved not to do. I am probably going to have to take legal action on that- as they had in writing (a form they gave me, btw) that I did not give permission to involve any lymph nodes that were not in the breast tissue.

    Otherwise, I used every suggestion I could find from this forum. I put lotion on immediately after each session, and reapplied several times a day- even when I wasn't burnt. As a result, thanks to you all, I only had burns along the inside of my breast, where I think sunlight got in (it was July/August and I was naively wearing my light, wide neckline summer shirts). The blisters were bad, I'm not gonna lie, and I still have them more than a month later).

    I had problems with raw throat and hiccups in my first few treatments, but they went away as soon as I started breathing correctly. Even though it was my right breast, I found myself for my initial few treatments, tensing up and basically hyperventilating out of fear. Once I got myself to calm down, use my stomach area to pull breath in and out, and breathe shallowly, the throat pain and hiccups went away.

    For weeks after I finished treatment, the area where I got the boost got more and more burnt everyday. My nipple hasn't recovered. It is swollen and never calms down. It hurts. I worry that it will never be okay. The skin around the nipple is darker than any of my skin has ever been, and under my arm, where I should not be burnt, it's tan too, but not as bad.

    I bought some glutathione to help support healing and lighten the skin. I am supposed to take it orally, but I'd read that that is not a good idea, as it also gives cancer a boost and helps it proliferate. So I am only using it topically. For me, it seems to really help with pain. But, I don't think it's lightening a thing.

    Thank you, everyone, for your kind support. Despite my being unexpectedly without internet so I didn't even realize what was happening, I am grateful for you wonderful advice and kind words.

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited September 2019

    Calli0p3 - It's good to hear from you. What a nice time to "unplug" and just focus on you while house sitting. Sounds like it was helpful.

    As to the continuing breast pain and change in skin color, I just wanted to let you know that you're not alone.

    My nipple and breast hurt for months after RADs. I do have Breast and Nipple LE that was caused by RADs, but even while I was in beginning treatments and then later when it was mostly managed, the pain/aches/buzzing/tingling/zaps continued. I don't think until around 6-7 months out did those symptoms start disappearing for me.

    As for the skin changes, my nipple is still and likely always be very darker than my other untreated one. I am still tan/brownish from my ribs, armpit, clavicle, to my sternum and an inch or so below the breast. My Cancer REhab doc says it's just a unique tattoo right? LOL. But, it is fading, gradually with time. It's been 11 months now since RADs finished for me. My SO says that maybe next year my skin will be mostly "normal" again. It's questionable as to whether my armpit hair will ever reappear, but hey, that part I don't mind, just one less place to shave.

    Wishing you more healing and relief as the weeks tick by. It's so hard to be patient when we want our bodies to be back to what they were pre-cancer and they have their own ideas about that kind of thing. Hang in there. Gentle hugs.

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