Suicidal

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I’m two years out from a recurrence to a lymph gland. I had a psych oncologist who told me that “this will come back” and also said “tell them that everyone that lives here dies of cancer” when we were joking about me worrying about prospective buyers of my house (not my house I didn’t want to move).

Probably due to that and also ptsd I think about cancer returning and dying of cancer all day, every day. At the two year mark what little support I had has dried up, but I’m left with major depression and all that happens emotionally and it’s too hard.

I feel like life’s not worth living not with this on my mind all the time.

Comments

  • Scrafgal
    Scrafgal Member Posts: 631
    edited July 2019

    ruby

    I remember you and the story about your onco psych....try a new therapist...visit the 10 year,+ survivors thread and get inspired by those sisters....some of them have survived recurrences and other cancer diagnoses....get outside and and take a nature walk...just do what you need to do to survive each today, and one day at a time.

    Keep us posted on how it's going...

  • edj3
    edj3 Member Posts: 2,076
    edited July 2019

    Please try a new therapist.

    If your PTSD is rooted in other causes as well, reach out for help for those issues (I say that b/c the PTSD from my own sexual abuse has returned, triggered massively by this breast cancer and I AM getting help).

    You're not alone, although the support here is virtual, it's definitely real.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2019

    Dear rubyredslippers - We are so sorry you're suffering... please know there IS help for you. Scrafgal and edj3 gave you great suggestions. There are many threads here full of encouraging stories from stage IV members, such as: 8 year survivor stage 4!!!!

    Also, please talk with your doctor or other doctor, about what you are feeling. Sometimes getting a second opinion or connecting with other health proffesional helps see some light at the end of the tunnel! You can also reach out to the Suicide Prevent Hotline of your local area for support and to find resources to help you through this difficult time. Please keep us posted and let us know how you're doing, we're all here for you!

    We are thinking of you, and sending you gentle hugs.

    The Mods

  • gb2115
    gb2115 Member Posts: 1,894
    edited July 2019

    I agree try to find a different (better) therapist. Most of them don't say inappropriate things like that. They are supposed to help, not cause more problems.

  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited July 2019

    Pardon my French, but your onco psych is an idiot. Certainly we all die of something, but it is flat out WRONG to say your cancer will definitely come back. And "tell them everybody who lives here dies of cancer"...what the hell?! You are NOT doomed. Nobody can predict whether you or I will get cancer again. I'm 4 years cancer-free. My sister is 6 years cancer-free. My great aunt, who was diagnosed at age 24 in 1912, you know, the DARK AGES of breast cancer, lived to into her 90s and died of Alzheimer disease!

    It is not unusual for people who have battled serious illness to develop depression and PTSD. I did. My husband did, too, after open heart surgery. The right therapist, who has experience working with people overcoming serious illness, will help you a lot. There are also meds that can help. You don't have to live this way.

  • Bonnie7
    Bonnie7 Member Posts: 57
    edited July 2019

    Hi Ruby,

    I too have had very negative and unprofessional remarks since my last reoccurence in 2015, from so called professionals, who should really know better! If I did not work as a Nurse I think I would have made formal complaints against 2 separate Doctors, but I did not wish to rock the boat and firmly believe karma will come into play!

    I have often told friends, patients and acquaintances that Cancer can play profound mind games and it is difficult to get past these at times.

    None of us are promised tomorrow but why waste time worrying about things that will probably never happen or things you really cannot change.

    Surround yourself with people that you love and care about, make an effort to do one different thing each day, remember those round about you will have their own things going on...it will all help! Please do not succumb to 'C's' parasitic ways!

    Big hug!

    Please keep in touch! X

  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2019

    It does seem like 95% of the things we worry about never happen. I remember when I was first diagnosed I could not think without cancer creeping to the front of my thoughts. Then one day I went all day not thinking a single thought about my cancer. Time does heal, now cancer has been put on the rear burner of my mind. I had a recurrence scare that brought the whole experience back but thankfully it was nothing.

  • SofieKatz
    SofieKatz Member Posts: 102
    edited July 2019

    Dear Meow, not all of us are as fortunate. And depression cannot be reasoned away.

    I often think of good ways to end things before I have no control to do so.

    And dear Redrubyslippers: Have you ever thought about getting a real service dog? I don't know the source of your ptsd (and holy sh*t you have that AND cancer!!), but cci.org provides trained service dog to veterans suffering from ptsd. There is a waiting list, but look into them. I raised puppies for them! And if not military related, maybe another organization or experienced dog trainer can help. Service dogs for diagnosed ptsd are the difference between life and psychological, emotional and physical death.


  • Meow13
    Meow13 Member Posts: 4,859
    edited July 2019

    Reason had nothing to do with my mind. There was no way for me to control my thoughts. Just saying time is what finally put things on the back burner.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited July 2019

    rubyred,

    I am so sorry you are feeling so afraid. I think it's very difficult to mentally wrestle yourself out of fear, because fears arise from the Right brain (unconscious mind). If you have a fearful R brain your L brain will never talk it out of being afraid. I am an advocate for a foster youth in my town who found INCREDIBLE relief of her longstanding anxiety through Neurofeedback. The system was "Neuroptimal". in about 8 sessions things really shifted for her. Neurofeedback works with the R brain and gets it to calm down by "feeding back" the R brain's activity in the form of auditory feedback (clicks and skips in music). It is very simple, no efforting, your brain realizes it is watching itself and it calms itself down in order to get clearer music. Once it calms itself down, and practices being there, it likes that better and stays in a calmer state.

  • Bookworm14
    Bookworm14 Member Posts: 176
    edited August 2019

    Ruby red slippers,

    I can understand your feelings completely. And it is hard to try to stop them no matter what others tell us (with good intentions). Sometimes time will help, meds, or it is something you fight forever. I do urge you to find a new doctor to see if new routines or meds may help. But please talk to someone.

  • Micmel
    Micmel Member Posts: 9,450
    edited August 2019

    Ruby~I understand completely that feeling. Because I live it. I'm scared to death of death. I just lost my father, and it hit me hard. Add into my own stage four diagnosis de novo,I could crumble at an opening of a grocery store. Meaning any little thing makes me sad. Any place I go, I'm sad, everythought I have is sad. Cancer rules my life. But thankfully love rules my heart. That is why I go on. My DH and my beautiful children. Sister, brother, my mother and step father. That's why I fight. I can soo understand the dried up help feeling. Or the you look fine commentary. I have been stage four now for three years and 7 months. I fight everyday, I cry everyday, I'm scared everyday. Take it one day at a time. It's all you can do. Cherish those happy moments. Every chance you get. I wish you the best. Maybe it won’t come back.. it does happen. Therapists can suck badly. Find a new one.

  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited August 2019

    Thank you everyone that has replied. I appreciate all of your support. I am extremely depressed. I have not returned to that psychologist - I hadnt seen her since not long after she made that comment. Damage done though.

  • DorothyB
    DorothyB Member Posts: 305
    edited August 2019

    might be time to look for one that you feel more comfortable with?

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2019

    Ruby, we really do hope that you find a better therapist, psychiatrist, and/or doctor(s). There ARE things that could help ease your depression. We're all here for you!

  • LoveLife-1
    LoveLife-1 Member Posts: 2
    edited September 2019

    I was just referred to a surgeon yesterday - I went to emergency room with breast issue and they feel its breast cancer. Also a CT scan shows it probably is. I am paralyzed with fear. I am already being treated for depression - I have been on paxil for years and it has worked. Now I am deeply depressed since hearing this diagnosis. I live alone but I have a great family of brothers and sisters. I am sitting at home alone now because they are all at work and I just feel paralyzed. I managed to get dressed today but I can't seem to do anything else. I am so afraid of everything I am feeling.

  • Moderators
    Moderators Member Posts: 25,912
    edited September 2019

    LoveLife-1, we're all here for you. It is very normal to feel overwhelmed with feelings when you are first diagnosed, or are fearing a potential diagnosis. It is one minute/hour/day at a time. Things do get easier when you understand what is going on, and gain a plan to manage. When do you meet with the doctors about what's going on? Do you have a therapist? Perhaps you reach out to the doctor who prescribed your paxil?

  • Meow13
    Meow13 Member Posts: 4,859
    edited September 2019

    Yes I agree with moderators, I would call the prescribing doctor and ask. They may want to add a different medication temporarily to help with this incredibly stressful time.

  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited September 2019

    Ruby red slippers,

    I am a retired clinical social worker and treated many people with PTSD and as a cancer patient, I definitely know I am now suffering from it. As a mental health professional, all I can say is your therapist was totally inappropriate. You are right, you can’t unring the bell! It’s hard to believe she specializes in oncology psych. I totally agree w those suggesting you try someone new. You might want to look for someone who specializes in PTSD and uses EMDR as adjunct therapy. It’s pretty remarkable for managing depressive and anxious symptoms. I’m so, so sorry you are struggling so much. Read other posts on this community. Best wishes your way!!

  • wallan
    wallan Member Posts: 1,275
    edited September 2019

    Hi Ruby Red Slippers:

    So sorry you are going thru this. I can relate because I was told by my oncologist the first time I had BC that the treatment will not work and I likely have two years. I was so upset because she would share this each time I went for chemo. I was stage 3 then.

    Anyways, that was 15 1/2 years ago and I am cancer-free. I did have another BC primary 2 1/2 years ago (stage 1) and I am on Arimidex for it. I have had bilateral mastectomies. You can see my profile.

    I see an oncologist social worker for panic attacks and depression this time around and she tells me its common with BC survivors to have anxiety and depression because getting BC is like being hit by a truck. Its a trauma. She says to not to think of the future, but to think about what I need now. So if I have a headache, instead of thinking brain mets, I ask myself what I need now... which leads to tylenol and peace and quiet. Or, if I feel sad, what do I need now? Maybe a hug, or going for a walk in nature or an ice cream cone etc... and just keep doing this. Its self-compassion and it has helped me alot. She also told me to cry if I need to cry for release. I like her because there is no pressure to be sure to eat right, or exercise or anything. Just what I need and I decide. ANd she says that most BC survivors that she has seen completely transform themselves and do what they want for jobs, for hobbies, for partners etc. She gives me hope that I can do what i want for the remainder of my life. Its my choice and to be gentle with myself because I have been thru a trainwreck.

    Same as you. Hugs to you, my dear. I hope this helps.


    wallan



  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited October 2019

    Thanks wallen, that is really helpful. I appreciate everyone’s replies. I’m in a better space at the moment. I still have bad days and I still think about dying from this everyday - that woman has a lot to answer for

  • LoveLau
    LoveLau Member Posts: 105
    edited October 2019

    Will dialectical behavior therapy help with breast cancer depression. I am thinking of repeating I dontbhave cancer do you think it will help or hurt?


  • rubyredslippers
    rubyredslippers Member Posts: 228
    edited November 2019

    what is dialectical behavior therapy

  • obsolete
    obsolete Member Posts: 466
    edited November 2019

    Good morning, please LOVE the beautifully sensitive being that you are. You have every reason to BELIEVE in your every ounce of goodness, creativity, self-nurturing ability, strength and endurance. Empower your thinking with positive energy from deep within yourself.

    Humans are all incredibly powerful beings. Practice meditation, yoga, Tai Chi, creative arts, classical music, nature walks, etc. to better harness your spiritual abilities. Focus on your higher self and our the wonders of our universe, beautiful sun rays, colorful flowers & leaves, birds and bees. Transition to holistic plant based diet & lifestyle. And again, most importantly, believe in and LOVE yourself because you are beautiful within. Best wishes.
    d

  • SofieKatz
    SofieKatz Member Posts: 102
    edited August 2020

    Me too. Not sure what else to say except I understand.

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