Support for our sister ABeautifulSunset!

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ShetlandPony
ShetlandPony Member Posts: 4,924
edited December 2019 in Stage IV/Metastatic Breast Cancer ONLY

Many of you know our dear sister ABeautifulSunset here on BCO. She has had a particularly rough time the past four months, and has not felt up to posting much. I asked her permission to post an update on her behalf. She is not one to make a lot of noise or call attention to herself, so I am starting this thread not only for an update, but to give you all the opportunity to offer her your support.

After many years of controlled bone mets, there were suddenly bad liver mets. In April she had a liver resection and Y-90. A lot of pain and nausea followed. She had the tumor tested and decided to try the one somewhat promising chemo combo, vinocap. But numerous painful spinal mets interrupted that. She had radiation sessions in an effort to control the spinal mets. She recently spent some days in the hospital because her pain could not be controlled at home. Now she is home and wants to resume chemo, but must first get her platelets up. With so much time off systemic treatment, there is an urgency to get control of things. Having lived with mbc for over eight years, there is the fear that time may be running out.

ABeautifulSunset, I am so hoping for things to turn around for you now — for your platelets to improve, for your pain to subside, for the chemo to work, for you to enjoy your life. You are our sweet and brave sister!

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited July 2019

    Shetland, Thank you so much for posting this information and update about our dear ABesutifulSunset.

    ABeautifulSunset, I hope and pray that things turn around quickly for you. I know it is difficult to go through one setback or complication after another. It is easy to lose sight of any relief ahead. Give yourself time to recover from the suffering you have experienced so you can better handle the treatments ahead. I know it can be discouraging to wait. I will keep you in my thoughts and prayers and look forward to having you join us here again.

    Hugs and prayers from, Lynne


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  • Chicagoan
    Chicagoan Member Posts: 728
    edited July 2019

    ABeautifulSunset-I have missed seeing you around and am sorry to hear how rough the past months have been. I pray that your pain subsides and that you can resume chemo soon and get those stupid cancer cells out of your body. God's peace to you.

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  • JFL
    JFL Member Posts: 1,947
    edited July 2019

    Sunset, I am sorry to hear about the recent struggles. I hope you can get back on vinocap soon! I have found "vino" very tolerable with minimal side effects, BTW. You will be in my thoughts.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2019

    Thank you so much for the update. Sunset, my thoughts are with you for better, pain free days

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  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited July 2019

    Shetland thank you for updating. Sunset. I am praying that your platelets come up and you have options readily available and get pain under control.

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  • Nkb
    Nkb Member Posts: 1,436
    edited July 2019

    thinking of you sunset and hope you are having a good day today and will be flooded with platelets very soon.

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited July 2019

    thank you wrll wishers, and especially Shetland Pony, to take the time to look out for me. And amongst your own troubles, as well.

    Pain is a debilitating demotivater. So, I haven't had much motivation for the past four months.... except motivation to ease pain... which takes pretty much everything I have. I spent 8 days in hospital, and I've been home on a pain pump all week. Little help.

    Tomorrow is an important day. Hopefully things will go well. If not, we all have next week to look forward to, when Mercury is finally leaving retrograde. 🤞🏻

    Sunset


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  • Iwrite
    Iwrite Member Posts: 870
    edited July 2019

    Thinking of you today ABeautifulSunset! Sending (((()))) Hoping you get answers that will bring you pain free days. (Mercury finally leaving retrograde is definitely something to celebrate 🎉)

    Thank you to ShetlandPony for setting up this thread

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2019

    Shetland Pony, thank you so much for filling us all in on what a ABeautifulSunset has been dealing with these past several months.

    To you, ABeautifulSunset, my thoughts are with you. I had never heard of Mercury in Retrograde, so I googled it. Well, it says the event occurred in March as well as this July and dh and I both went through some shit in March (not anything as difficult as what you are currently going through, but definitely some upheavals) and then this month too! So it's interesting how MR could possibly affect whats going on around us.

    I hope you can find ways to ease your pain and also get your bloodwork to the point where you can get back on treatment. With a screen name like ABeuatifulSunset, you and your posts are and have always been very dear to me. Many hugs to you.

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    sunset~My sweet angel. I was just thinking of you. I am in your pocket making noise and cheerleading right next to you. (Kick me out when you get annoyed ) you are loved and you are supported through the miles dear friend. Shetland! Love you both!

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited July 2019

    ABeautifulSunset. I knew you were absent lately from the boards, I always like to assume it is for good reasons, like traveling..not being in hospitals, tests, incredible pain...

    It sounds like you have a plan, like get the platelets/pain under control and start a systemic tx. Hopefully, you have a palliative care team at your hospital that is working on your pain. Pain can just be so debilitating and you don't deserve to have that added to your recovery. You just don't.

    You have many who care about you. Keep posting when you feel like it. Find some joy to get you thru this tough spot..even if it is a bird that sits on your windowsill..anything that makes you smile.

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  • candy-678
    candy-678 Member Posts: 3,950
    edited July 2019

    ABeautifulSunset- My prayers go out to you. To get your pain under control and start treatment to kill those cancer cells. We are here for you. Post when you can. Hugs.

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited July 2019

    ABS,

    Your user name is one of my favorites! I send you a large hug from my beach to yours. Hang in there!!

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited July 2019

    thinking of you my friend abeautifulsunset 🌅 im so sorry to hear that you're going through a tough time. Pain is exhausting and cranky-making and just plain ol zaps a person. I really hope you and your palliative care team are able to find you the relief you need and I am resting quietly in your pocket in the case you are in the need of a bad joke or a place to vent. Big giant gentle hugs

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  • illimae
    illimae Member Posts: 5,710
    edited July 2019

    Sending you my best good vibes for pain relief, meds to knock the cancer back and the QOL that allows for many more years.

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  • Husband11
    Husband11 Member Posts: 2,264
    edited July 2019

    Abeautifulsunset, you are in my prayers.

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  • Jaylea
    Jaylea Member Posts: 478
    edited July 2019

    ABeautifulSunset, sending you prayers for strength and courage, dear woman, as you work though these issues. May you get immediate pain relief so you can start the next phase of your treatment plan. Shetland, it was very kind of you to start this thread - you're in my prayers also.

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited July 2019

    Platelets are LOWWWWW still. ☹️

    waiting to see doctor now.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2019

    Praying for strength and the best possible outcome for both ladies. <3

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  • 42young
    42young Member Posts: 162
    edited July 2019

    Praying for both of you!!

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited July 2019

    gonna do the chemo anyway!!!!!!!! Yayyyyyy!!!!!!!!!

    Omg I'm so happy.


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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited July 2019

    Sunset Look how many friends you have, all of us cheering you on. I'm glad we can be updated now with this thread. I'm going through a rough patch too right now. You just never know when it's going to happen. 💞

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited July 2019

    grannex, I've been observing a lot of rough patches lately among us. Time for a change of tides.


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  • S3K5
    S3K5 Member Posts: 606
    edited July 2019

    ABeautifulSunset , pain can be really bad with spine mets. Glad to know you will be starting chemo. Hopefully the chemo will work on your liver and bone mets, improving your pain symptoms. Do you know which chemo you will be on? Does your MO have a plan to address the low platelets?

    My thoughts and prayers are with you. You are right, many are going through a rough patch but there is always hope that things will turn around.

    Please keep us posted. All the best to you. You have a lot of friends on this forum - some (like me) are silent followers.


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  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited July 2019

    Sunset, Great that you can finally get back to treatment!!! there is nothing like pain to mess with your mind & body!! I was just reading 2019 summaries of vinocap sound like they got surprisingly high response rates for the combo with few SEs, and hopefully that is how it treats you as well.

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  • Rosie24
    Rosie24 Member Posts: 1,046
    edited July 2019

    Beautiful Sunset, Sending my most positive vibes your way. Hoping for your new chemo to blast those mets and give you some relief from your worries.

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited July 2019

    That is awesome news! Hope you respond positively in terms of both pain and cancer killing. We are cheering you on!!

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  • jobur
    jobur Member Posts: 726
    edited July 2019

    Beautiful Sunset, I am so sorry to hear you are having such awful and uncontrolled pain! Hope vinocap will be your ticket to better days. Anyone so excited to do chemo deserves amazing results.

    I always loved your screen name too, and especially your location. Looking forward to hearing Mercury and the tides are going in the right direction.

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  • SchnauzerMom
    SchnauzerMom Member Posts: 374
    edited July 2019

    Beautiful Sunset, sending you all good wishes!! May your pain lessen and the chemo do its job for you!

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  • Tina2
    Tina2 Member Posts: 2,943
    edited July 2019

    Sunset,

    May the chemo serve you well!

    By your side,

    Tina


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