Anyone else exhausted from the stress of all the waiting?

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Trying2staypositive
Trying2staypositive Member Posts: 119
edited July 2019 in Waiting for Test Results

Or is it just me? Maybe its worse in my case because Im just waiting on the first result of 2 issues and I dont even have a biopsy scheduled for the second one yet. Hate to say it but think they are waiting to see if the first one is benign or not. I have a big family history so feel that is whats making it triple scary for me.

Concentration at work is beyond difficult... also as a mom...but mostly Im so exhausted just getting through the day. Itsto the point for the past 2 weeks when I get in from work and eat dinner after making sure my son is ok (my husband is home) I go straight to bed.

Comments

  • Kat20NJ
    Kat20NJ Member Posts: 5
    edited June 2019

    Same here and I've only been waiting 5 days. I found out last week I have to go for a biopsy. That's scheduled for 7/8. I'm tired, getting stress headaches and I'm very on edge. Can't concentrate and have little patience for anything or anyone. Hang in there. It's definitely not just you.

  • footballmomma
    footballmomma Member Posts: 29
    edited June 2019

    The waiting is the worst. The wait for appointments. The wait for results. It's all so stressful. Mean while your mind wanders to areas it shouldn't, but you can't help it. This is awful and exhausting. I hope you get your results soon.

  • Elctrcldy
    Elctrcldy Member Posts: 14
    edited June 2019

    I am here with you and I understand the stress and anxiety you are going through! Plus I’m a bit obsessive and find myself researching the initial biopsy findings which only gives me more anxiety. I’m a working mom too with a mom who had breast cancer. I’m terrified right now of what the finding will be on my excisional biopsy. I hope everything is ok for you

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited June 2019

    Thanks all. It is really tough. Its been 6 weeks since screening through to first biopsy (they had trouble gettting my records for comparison at first which prolonged matters). So thats probably why Im so drained already at this stage. Get my first results for biopsy 1 thurs or fri...then onto schedule second biopsy which will take a few weeks to get in to get done. plus more time for results. For me I think its knowing it could be the end of July by the time I get my second biopsy results that makes it extra long and tiring. Also since its suspected the second thing might be a radial scar and those are surgically removed and sent to pathology as well.... Im wondering geez...is there any end to this? Lol Ugh. I already had other new very stressful things going on in my life that I cant control that was alot. I think maybe this just tipped the scales.

  • Time_hope
    Time_hope Member Posts: 13
    edited June 2019

    Oh man, I have been waiting since February for a diagnosis! Every time I think I am about to get an answer, they tell me I need something else. I have done two ultrasounds, a mammo, a core needle biopsy and a lumpectomy and I still don't know what it is. I go back on the 3rd and maybe then I will have an answer?!

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited June 2019

    Hi, hope everyone hanging in there! Totally understand because although I got first biopsy results now (adh plus alh which makes me even more high risk than I was), they need an excisional biopsy to rule out cancer in that area for sure. Still waiting on the second needle biopsy first though for the other area before excisional on both areas..sigh. Its tiring. Even assuming all ok besides adh/alh my dr has already mentioned prophy mastectomy because I cant take tamoxifen and have such strong family history. I was already thinking about it.

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited June 2019

    Also want to say thanks to all of you who replied to this. Its so comforting to talk to women who get it or are going through similar...especially when you are already high risk. I pray for good results for everyone 💖 I never expected post mammogram this year to suddenly be considering a major surgery best case scenario?

  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited June 2019

    honestly, this is the worst part of it all. The editing game is torturous. I pray you get your results quickly so that you can move on.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited June 2019

    It really helps to deliberately go out and have FUN. I went to an awesome concert the night after my biopsy. I barely remember the biopsy a year later, but I definitely remember the concert. All through tests, doctor's appointments, and surgeries over four or five months, I'd balance medical stuff with fun - afternoons at a park, day trips, even a few multi-day trips. It helps a lot at the time, and even more when looking back, so it's not just all grim crap in your memories of this year. It also helps your families.

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited June 2019

    Great advice re fun. Definitely trying and have a weekend trip planned in early Aug regardless. And yes, the editing game is torture. Considering a prophylactic mastectomy hasnt been a ton of fun either....as stressful as it is, some of my closest friends reactions to this whole thing with mehas me down. I posted separately about that under the high risk board. Really wasnt sure where to put it!

  • Flo80
    Flo80 Member Posts: 349
    edited July 2019

    the wait is grilling. I was diagnosed on June 13 but still don’t know what stage I am in and have an appointment with the surgeon on 5 July. I was so scared that it might have spread and that’s why I told my family doctor to get me a referral for ct scan of lung, abdomen and pelvis. The ct scan of lung is clear and I am still waiting for the others. My mri am ultrasound had showed little skin thickening and I have little peel de orange symptoms but I showed to many doctors and they don’t feel it’s inflammatory. I just forced my family doctor to get me a skin punch biopsy as she said there is no need but I still made her do that. I am still waiting for the results. My brotheri is an oncologist and he feels it’s because of local lymphatic blockage and not inflammatory and thus i am keeping positive positive as i am already diagnosed with ID

  • rosecal954
    rosecal954 Member Posts: 79
    edited July 2019

    Hi everyone. I can relate to all of you with the waiting. It's stressful and terrible to say the least. I have been NED for almost 6 years, lumpectomy and radiation, Stage 1. Up to now all my mammograms have been clear and have sort of taken that for granted until the letter came in the mail a couple of weeks ago saying I needed another mammogram with magnification. Came back multiple calcifications, right breast just under where I have the lumpectomy. Had the magnification mammo last week (very painful) Radiologist recommended stereotactic biopsy and I am waiting for the phone call to schedule the biopsy. I also feel stinging pain and vague soreness from time to time that breast too. I don't want to jump to conclusions but of course I worry. Our family has 3 back to back vacations scheduled the next 6 weeks so scheduling the biopsy will be difficult right now. I don't know how necessary it is for me to have the biopsy right now. All the thoughts are coming back from the first diagnosis time 6 years ago. The radiologist did tell me it's probably nothing, but wants to make sure so that at least was reassuring. Hang in there everyone. We can all do this and we are strong. Reading your comments makes me feel I am not the only one.

  • KR75
    KR75 Member Posts: 22
    edited July 2019

    i had a 4 week wait from my diagnostic to the biopsy, which was today. It was absolutely draining, I'm sure from the stress which resulted in trouble sleeping too. Over that first hurdle, now the wait for results!

  • Togethertolearn
    Togethertolearn Member Posts: 278
    edited July 2019

    For tim___ how do they not have an answer after all those tests!

  • Togethertolearn
    Togethertolearn Member Posts: 278
    edited July 2019

    Alice I really like your response. I’ve been debating planning some fun things and you’re right - just go do it! Why just have depressing memories?! I love the reminder, and will be thankful for your words when I’m off on a getaway this weekend now!

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited July 2019

    Breast cancer is weird. Thats what a tech told me. She is right. Besides the laundry list of atypical changes I was diagnosed yesterday with ILC. Very scared-not sure it spread yet but that one spreads to weird places when if does. Scares me alot. I found out learning the extent of this disease is the long game.
  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited July 2019

    I thought my "waiting" days were over. I had an issue with my bladder last fall. Doctor did a cystoscopy and it showed a mass, but he never saw anything like it before. He thought it was something pushing in on my bladder and tried to fill my bladder as full as possible to lift it off of the bladder. He did an abdominal CT prior which showed nothing. He told me to repeat the cystoscopy in 6 months. That was before I was diagnosed in Dec with ILC. Because of all the cancer treatment issues, I rescheduled my cystoscopy from April to June. My June appt was canceled by the doctor and rescheduled for last week.

    I had the procedure. This time prior to it I had a bladder ultrasound, also negative. I also had CT scan done for my cancer which said bladder looked normal. But, he saw the same growth! He kept repeating that he never saw anything like that before. Once again he tried filling the bladder and lifting it off. Once again it didn't work. He kept saying he didn't know if he should just leave it alone or biopsy it. He left it alone. I have an appointment in 4 weeks.

    I asked him if he thought it could be a lipoma because last fall when I researched bladder growths I saw a picture from a cystoscopy that looked just like mine. It also said they are extremely rare, which could explain why he never saw anything like it. He said it wasn't a lipoma and went into a long explanation to which I just listened.

    After all I have gone through with the ILC, this is becoming super stressful. I can't imagine it could be a growth if nothing showed up on 2 CT scans or the bladder ultrasound. I wanted a copy of the procedure report but the woman at the hospital medical records dept said the doctor had not signed off on it. She said she will mail me a copy of it as soon as he signs off on it. One week later, still no report. I am feeling sooooo stressed! I just want to know what it is so I can move on. I don't think it can be cancer, but that is what I thought about my ILC biopsy. I was convinced that after 15 1/2 years I would never get BC again and yet I did. Ugh.

    And so the waiting continues...….

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited July 2019

    Ugh so sorry Mavericksmom-Waiting is truly awful. I am waiting for bmx now and stressing over insurance (my ps is out of network and all deductibles outrageous). Also stressing about hormone treatments. I am very afraid of tamoxifen bc of family history of blood clots (Im premenopausal) and really all of them. Also had genetic testing today. So overwhelming. I know I cant give up I have a kiddo, but somedays I just think that would be the easier route. Just saying I understand worry and just wishing enough was enough already. I was already going through some personal drama. On top of that I may need a separate surgery unrelated to bc. Some days I want to just quit my job too to eliminate a source of stress and expectation; but we clearly need the money.
  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited July 2019

    btw, another thing. NOT saying you have bladder cancer and I know that bc spread is diff than a new primary cancer. But of course the thought of more worse case scenario worrying and waiting SUCKS That said if you are worried about another primary...my grandmother actually got bladder cancer in her 50s. (She never had breast). Had surgery, it never came back and she lived to 100. Literally! My moms story was another miraculous one too from bc and they are on opposite sides of family so not related! Even when things look bad sometimes things turn out the absolute best. Hope this is just a lipoma or some other benign thing so you get a freaking break!!!!

  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited July 2019

    Thank you for your comments. I'm sorry about your grandmother, but it does give me hope.

    As for you, I am so sorry you have to go through this. My heart breaks for you. My daughter calls her children “kiddos" so your mention of your child immediately brought out my “mom instinct" to want to protect you! Of course cancer does it's own thing and we can't protect anyone from it.

    You did bring me back to reality and put things into perspective. The test results and concerns you are waiting for are far more serious than mine. I know that wasn't your intent when you wrote your comment, but it is exactly what I needed!

    I feel so thankful that my children were older, one in high school, one in college, when I was first diagnosed in 2003. They both have families of their own now.

    Your response to my post has caused me to think of all the good in my Iife and that alone has helped me. I feel ashamed that it took a young woman stating her situation to hep me see how lucky I am.

    I hope you will update here. This is a very caring community and I know I am not the only one who cares about you and is hoping you get good news from your insurance and genetic testing! I too would be very concerned about Tamoxifen in your situation. I hope your doctors are listening to your concerns and will treat you with that in mind.

  • Trying2staypositive
    Trying2staypositive Member Posts: 119
    edited July 2019

    Thanks mavericksmom ❤️ Omgosh every new problem is probably beyond scary once you have had cancer. Please dont be so hard on yourself! Glad my words helped though! I am worried about my son alot...and what kind of treatments I will need to endure for his sake. The cost of everything including reconstruction has my mind boggled even if I can beat this disease. A little scared to be put into menopause at 46 (have some heart issues, bp, and a large vit D deficiency). All the women in my family went into meno late-mid 50s. They all tell my how horrible lack of hormones are....vain maybe but I am also scared of suddenly looking old with no hormones since I always looked younger than my age. Most people think I am maybe 39-40 not almost 47. I have an excess of estrogen so maybe that was why! (My skin mostly looks good) Maybe I need to just get over it.

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