Sent home with antibiotics after DIEP reconstruction

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Anonymous
Anonymous Member Posts: 1,376
Sent home with antibiotics after DIEP reconstruction

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  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited April 2019

    I had a mastectomy with DIEP reconstruction. I was sent home with pain meds, which I only took once because I did not have a lot of pain.

    When I received a copy of my surgical report and hospital reports, it states that I was sent home with pain meds and an antibiotic.

    I never developed an infection nd I haven’t seen my doctor since I received the report, I’m just curious if most DIEP patients go home with an antibiotic or not.

  • LilacBlue
    LilacBlue Member Posts: 1,636
    edited April 2019

    I was not given them Mavricksmom, and not aware of any necessity for them, especially, like yourself, not having any infection and healing well. Wishing you a smooth, swift, uneventful recovery.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2019

    I was sent home with a round of powerful antibiotics after my implant surgery. No infection. Bleh. I dislike taking them, but I followed instructions to the letter. Of course that was seven years ago.

  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited April 2019

    LilacBlue (by the way, I LOVE your "name," it instantly draws a picture in my mind and makes me smile!)  and farmerlucy, (my husband was raised on a 200 acre dairy farm and we met in a pig barn.....so romantic, LOL) Thank you so much for your responses.  I was just curious because I wondered why the fellowship doctor or PA would always ask me if I was still taking the antibiotics.

    Unfortunately while the DIEP surgery areas are great, I was left with three areas on the underside of my breast that are open wounds, ooze and bleed, due to radiation "burns"  from my first time with BC in 2003.  I'm ok though, going back to work in May, knowing it will literally take months for my wounds to heal. I am very grateful that is all I am dealing with so no complaints!

    Have a wonderful day!


  • Cp7865
    Cp7865 Member Posts: 6
    edited July 2019

    Mavericksmom...I had the diep flap surgery on June 4th. I now have an open wound on the bottom side of my breast after my PS removed some black scab (maybe some necrosis). He is having me use Xeroform dressing to treat. It looks so bad to me, even though he did not seem to concerned. Are your wounds healing and if so how was it treated?

    Thank you for sharing your experience. I hope your are healing well and are happy with your surgery results. : ).

  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited July 2019

    I had three wounds as you described, with black thick scabs and white areas. Not to discourage you but it took six months to heal to the point that they weren’t bleeding and oozing. They healed but don’t look normal. hey are on the under side of my breast so it doesn’t bother me.

    I never heard of Xeroform dressing, what does it do? My visiting nurse asked my doctor for Santyl cream which I used on the black areas and the white areas. It helped to speed up the process. I won’t lie, it was pretty disgusting to go through. Sections of tissue would need to be cut off and that wasn’t easy.

    My PS was unconcerned the entire time. After a couple months I only saw the PA except for my last visit a week ago. I will see him again in March to discuss further surgery. I just need to recover for the whole episode. Did you have radiation? My PS told me the wounds were from the radiation I had in 2003 which severely burned my breast.

    I wish you the best. One day at a time! Please let me know how you are doing.

  • Cp7865
    Cp7865 Member Posts: 6
    edited July 2019

    Iva did not he radiation. I’m not sure why the slow healing. I also had nipple sparing mastectomy and developed necrosis on the nipple, so it was removed a few weeks after mastectomy. The Xeroform dressings are pre moistened gauze (some antibiotic ointment and Vaseline type substance). I have to put a strip directly in the wound, then cover with not adherent bandage. Change twice daily. I guess I just don’t see how this could heal staying moist at all times? It has only been a few days since he removed the scabbing.

    I kind of got the impression from my PS this could be a long process.

    Thank you for the reply. It helps knowing someone else that has been through this. I think I have been worrying that I would need the entries transplanted breast removed!

  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited July 2019

    I remember thinking the same about keeping it moist.

    You actually helped me too! I felt very alone with the type of wounds I had. I never heard anyone else describe the back scab areas until you posted, thank you!

    It was a long time getting to where I am at! One spot is covered with very thin “tissue" which dries out and flakes off constantly. The largest one has a different texture but definitely doesn't feel like breast skin should.

    Emotionally it is difficult to deal with and caused so much stress for me. I don't have a lot of patience, I like things done “yesterday," so that alone caused stress.

    Now I try to be like water, go with the flow and choose the paths of least resistance. It doesn't always work for me, but trying to relax and not trying to get all the answers immediately has helped

  • Cp7865
    Cp7865 Member Posts: 6
    edited July 2019

    YES! I also don’t have much patience. I want everything to be done and have some kind of normal back. I am constantly told by my PS that I’m only 7 weeks out from my surgery. Seems like long enough for me!! Lol Some of my friends (some of which are nurses) has told me to do as you said. Go with the flow. Rest and low stress and lots of protien and I may heal faster.

    I will keep in touch and let you know how it goes!

    Have you had your second surgery yet? Did your stomach area heal nicely? I feel like that part was a breeze....

  • OCDAmy
    OCDAmy Member Posts: 873
    edited July 2019

    I had DIEP and no antibiotics. I believe they said because it was my own tissue. When I had expanders I was given antibiotics.

  • Mavericksmom
    Mavericksmom Member Posts: 635
    edited July 2019

    My lower surgery healed, but I am not happy with that either. One side is great, the other has a huge bulge. I thought it was a hernia and asked the PA when I saw him April 1st. He checked, had me stand and cough, but I didn't have any pain so he said he didn't think it was a hernia. He had a fellowship person with him too. My PS only checked that incision once after the surgery and the rest of the few times I saw him he only looked at my breast. That was my main focus and I honestly didn't think to bring up the bulge again.

    I had a bad experience with the surgery. I am obese and have lymphedema in my left arm and side. No one said anything about swelling or how I would look after surgery. I spent four days in the hospital and didn't actually see my body until 8 days afterwards. I gained 20 pounds in fluids, I looked hideous! I thought I looked bad before, I looked so much worse afterwards! I freaked out! The swelling and weight did come off after a few weeks but no one even mentioned that could happen. I had two huge round areas at either end of the incision, where the drains were. My belly button was so huge, the square area around it seemed to be about four inches square. That also shrunk back to a more normal size, but is discolored where the stitching was and doesn't look great.

    I don't even know why they move the belly button up. I kept forgetting to ask. If it is for blood supply I get it, if not, they should ask the woman before assuming she cares about her belly button. I can completely understand why a young woman (and some older women) would want to have the same kind of look she had prior to surgery so she can still wear clothes and bathing suit that shows off her body. I am LONG past those days and the only one who sees that area of me are doctors. Sorry, I digress.

    My MO wants me to see a gastroenterologist at the cancer hospital I went to and I have an appointment with her August 14. I am going to ask her about the bulge.

    I am joining a local gym that I used to go to on August first. I know I need to make diet and exercise a priority. I went back to my healthy, balance diet, but I have a lot of trouble eating. I get bloated after I eat anything. I don't eat much at one time, I couldn't if I wanted to because of the abdominal pressure. I'm lso telling the gastroenterologist about that. I did increase my protein intake until I was healed, which again was about 6 months.

    These kinds of surgeries are so hard because most of us have no idea of what to expect. I had a great PS, but he didn't explain much to me and I didn't know to ask many of the things I encountered. In all fairness to my PS, I was in shock when I saw him before surgery and I don't really know if he never explained things to me, or if I didn't "hear" him after he spoke a few words. I was actually blindsided. I saw the BS who informed me they wouldn't take off my healthy breast, (I wanted a BMX), then he told me I should have the reconstruction and he called the PS in to see me right away. I know he wanted to save me another trip, (the hospital is an hour away) but I had no time to process what he said let alone what the PS said. Hind sight, always 20/20!

    Definitely stay in touch! I will too!

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