My Husband, My Life, My Love, My Family, My Cancer

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  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 609
    edited July 2019

    Micmel: it is beautiful. Love this deep blue. I used to paint my nails in that colour. Have a good night and sweet dreams for you too.๐Ÿ˜˜

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    thank you I am thrilled with it myself. I wish it was sweet Dreams, insomnia has sent me into dreaming of sleeping! It made me think of role call!


    Muddling~ you ok sweetheart? Havenโ€™t seen you Lynnwood~same also. i hope that youโ€™re doing ok with the tx was a good choice for you and is treating you good. Miss you
    Bigbhome~Missing. My friend as well!
    Chicagoan~Miss seeing you.... dodgersgirl....Edwards.... Parry.๐Ÿ’›๐Ÿ’›

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  • booboo1
    booboo1 Member Posts: 1,159
    edited July 2019

    Wow...what a beautiful ring. I also love blue stones. Mel, you have such beautiful hands. I'm a nail-biter, so you'd have a good laugh if you could see my hands! Lol..

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019
    I used to grind my Nails down to The nubs, then one day my neighbor took a picture of me while biting my nails. I looked pretty dumb. Never did it again. I do my own nails and they are real. If I donโ€™t paint them. They become weak because of all the chemo and etc. but the two things ... I loved the most about myself. My hair and my nails. Itโ€™s all I have left. Thank god they made it. I almost lost a few. But managed to save them. Thanks for the compliment, I think they look old lol. Now they are swollen because of ibrance. They go up and down. Itโ€™s weird. Hugs to you my booboo!
    Yndorian~ I change my nail polish a lot. Once I get a crack thatโ€™s it. I also use the lightless gel. Sally Hansen and revlonn as well. Lasts a good long time!! My favorite color is blue! Always was. Ok purple for a few years. Lol
    Have the best day you can! ๐ŸŒธ
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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    everyone be safe In this bad weather coming through here. (NE) flash floods and severe warnings. Please donโ€™t drive through any rising or high waters.

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    i imageI am wondering if I am the only one who sees that, the bathing suit doesn't fit this woman the best that it could. I mean grab that poor sweetheart a cheeseburger. God bless her. I mean don't get me wrong I look like a pathetic patched up paper sewn doll. Those are some abs. But one wrong move and her goods will Be on display. Just looked odd to me. ? Am I right ? The water fall looks amazing...

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  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 609
    edited July 2019

    image

    I tawt I taw a puddy tat! LOL

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    lmao. I know right. Get some Velcro action going. I donโ€™t think Even if I taped my mouth shut, I would ever be that thin. I donโ€™t think my mountain man frame lol would allow me to get that skinny. Plus. Iโ€™ll admit it, when my DH cooks for me. Mama does her eating. Lol at Sylvester the cat. Always loved that cartoon!
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  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 609
    edited July 2019

    Mic, I'm not sure I understood your post, but my joke was because it seems there's a kitten that peeks out of his bathing suit. LOL.


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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    absolutely a strange pic. And I enjoyed your post!!! Lol. Why would they they print such a photo like that? Does the photographer not have eyes to see this lol.

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    image

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    I just listened to Danny Boy by the Celtic Woman. As I clean up my tears like wow. That is a really beautiful song. It speaks to how I feel about my DH. Wow. Lifeโ€™s is hard. I donโ€™t usually listen to music. It makes me feel weak. More of a sense of loss. The words means so much more. Music is beautiful... and so are all of you.

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  • Tanya_Djamila
    Tanya_Djamila Member Posts: 1,378
    edited July 2019

    Good morning all

    Yndorian you did see a putty cat.

    Micmel the ring is beautiful.

    Traveling home today. Spent some nice time with my family. Yesterday I couldnโ€™t get enough rest.

    Tanya

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Tanya~ Hello traveling woman!!!! I hope that you can get some good rest once you finally get home. I know you thrive on spending time with your family ! I can't get enough of all those gorgeous grandchildren and family. It's cloudy and very nice today 78. Can't beat that. I love the cooler weather. Don't like the heat at all.

    Lol at that darn putty cat ! Lol.

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  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited July 2019

    My MRI did not show progression thankfully but the extreme pain remains a mystery. The Metadol has been increased and everyone knows about the pain. I will keep you posted as to how the pain management goes. There was more discussion about the possibility of hospice again for pain management. I really do not want to do that in the summer.

    Micmel, I love the ring. I have blue quartz earrings, pendant and ear ring but not a ring.

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  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 609
    edited July 2019

    Marianelizabeth: I'm glad that this is not progression. That are good news! I'm wondering if your pain comes from any nerves envolved. I have noticed that my pain surgery just calm down with clonazepam. I know it is not the same, but maybe that or any other muscle relaxing can work for you. They gave me some kind of morphine drug when I was at hospital and it didn't work for my surgery pain, just kept me sleepy in a pain cloud. I hope your pain improves soon!

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Mariane~I am So thrilled itโ€™s not progression sweetheart. I feel like wrapping my arms around you and doing the spin dance. I am sending love over the miles. Big hugs. I hope you have a good pain management group, they are vital. I have one and it makes all the difference! Much love ~M~

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  • illimae
    illimae Member Posts: 5,710
    edited July 2019

    Marianne, sorry about the pain but glad you're stable.

    I'm almost all better, still have a little cough and sore throat but feeling more pep.

    Friday is big scan day, Echo, labs, NM Injection, NM whole body bone scan and CT chest, abdomen & pelvis. Long day for sure. Then friends from out of town visiting, DH is cooking a turkey, yum. I get results on Monday, hoping to remain stable, although it does get more difficult as time goes on and you wonder when your first line treatment will stop working. Anyway, not dwelling on that stuff, it's not fun. I'm going to have breakfast and find something fun to do ๐Ÿ˜€

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Jumping in your pocket for Friday Mae~~~~~๐Ÿฅฐ๐Ÿฅฐ I just took a long nap. Zombie woman checking in. Much love to all. I worry every time I pick up my pill combos. I say In my head, please work, because I can't imagine feeling worse. ๐Ÿ’”๐Ÿฅบ

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  • Tanya_Djamila
    Tanya_Djamila Member Posts: 1,378
    edited July 2019

    marianelixabeth soru about your pain but happy about your overall results.

    Mae Glad your cold is getting better. Iโ€™ll be with you Friday for your scans

    Have a good weekend all.

    Tanya

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Tanya~How are you feeling?? Have you gotten the rest you have needed to feel better? You were a busy busy woman with all of your travel. Sometimes I remember all the things I used to do and think nothing of it. Sometimes I didnโ€™t want to even go. But I did, as I look back at it, I am glad that I did go. I am glad that my DH motivated me to keep going. As I grew tired and got sicker it started to sink in. I realized I wouldnโ€™t be doing too much adventurous things anymore. It sunk in that everything I had done before I would have to be happy with. I have always wanted to go to beach resort with my DH.... like nothing ever before. Weโ€™ve never gotten there. Now I canโ€™t take the heat. It breaks my soul down to think I will never float on the water hammock with him. Like I dreamed. I will never swim to the swim up bar with him and lay back in his arms and watch the sunset. I love this man, I just want to be good enough. I want to make him happy. How can I do that ?
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  • Minnie31
    Minnie31 Member Posts: 501
    edited July 2019

    Marianelizabeth,, glad you have no progression and hope they can deal with the pain. Mae, will be thinking of you on Friday and in your pocket if there's room! Micmel, sorry about missing out on that sunset, sometimes we hate the limitations this illness causes. My hip causes such pain when I have to put my weight on it. The surgeon said there is still a possibility of doing something if the fractures heal well and the bone is strong enough for a prosthetic hip/pelvis. I feel now he just says that to keep me hopeful. It's so hot now every day I just want to hide away till night time! The beach is great, but can only do a few hours at a time. Roll on Autumn.

    Hope everyone else is doing fine with scans etc. Enjoy the weekend x

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Minnie~I am sorry about your pain in your hips. I really wish I had a magic wand to wave for us all. I am hoping Mae will wear large pockets. We all know the snacks are where itโ€™s at. Iโ€™ll bring lemon bars. And coffee cakes! I dont like the thought of us all everyday battling something. Worry, fear, pain. Anxiety,dread,depression. I just want us to have peace. We deserve that much. All of have been through hell. We continue the trip as it gets hotter and hotter.
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  • GiddyupGirl
    GiddyupGirl Member Posts: 240
    edited July 2019

    Micmel: You are more than enough. If you have a backyard or a balcony lay back in his arms and watch the sunset. To love and be loved doesn't need a beach or an ocean it simply needs the two of you - two minds one heart.

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Giddyup~Whata wonderful post to wake up and read. Thank you! I grew up in a place of magnificent room to roam and run and be among nature and trees, creeks , streams, beautiful trails and skies clear and open. My life no longer feels like my own. It feel likes cancer has stolen my stable happy life, I just have to sit and watch as everything around me stays the same.... while I change in every aspect. Emotional,physical, mental in every way. My Brain is sectioned off to not feel things. Which I guess could also be denial. But I'll float around here for a while. Seems. Like an ok place to be for now. Thank you for caring. I appreciate your post.. welcome to my second home. It's always nice when we support each other. Thank you so much !

    Much love ~M~

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited July 2019

    giddy up girl. Can I assume you love horses?

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  • GiddyupGirl
    GiddyupGirl Member Posts: 240
    edited July 2019

    Absolutely I have 12

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  • GiddyupGirl
    GiddyupGirl Member Posts: 240
    edited July 2019

    My apologies ladies I just noticed this was for stage four only. I am fairly new to cancer and am reading everything I can and Micmel story touched my heart and I just had to respond. I will wish you ladies everything good the universe has to offer. You are amazing women whose courage in the face of adversity blows me away. Blessings and huge hugs to you all.

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  • Micmel
    Micmel Member Posts: 9,450
    edited July 2019

    Giddy up ~ no worries. In my opinion cancer really doesn't have categories. The fear is real. There are others also that I've grown quite close to who aren't stage. Four. Friendship has no bounds in my world!! They post all of the time. Here. Friends are just that!! Just like two hearts are one as well!!!

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  • Gumdoctor
    Gumdoctor Member Posts: 675
    edited July 2019

    imageHi All...

    Just checking in. Have been reading/skimming, just not posting much lately.

    Hand-foot syndrome with Xeloda hit on cycle 1, day 4...by day 6, I could not walk. It has been very difficult...takes alot to make me break down and cry...this did it...

    Doing much better now...started 25% reduced dose yesterday. Feet and hands and lips burning/swelling, but I can function.

    I would really like to do a blog, but there seems to be a steep learning curve. Instead, for now, I have started a daily post on Facebook because it is so easy to do. I have some ideas on how to turn this into something more meaningful than just Facebook posts...but I have started...daily for almost 2 weeks and running so far...

    If anyone is on Facebook and wants to friend me to see these daily posts, please PM and I will tell you who I "really" am...hahaha...

    My posts focus on intentionally finding beauty in our challenging world...and digging deeper for inspiration from that beauty...each day is a different topic...so far all the pictures are my own...picture above is from my post yesterday on Contrasts...pink/green...sick/well...busy/bored...and how easy it is to overlook many incredible contrasts in our everyday world...

    This is becoming extremely important to me to start out every morning with something beautiful, inspiring, positive...and I hope it can help others too...

    Gumdoctor


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