I’m sorry to keep posting but the fear is to much

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  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited July 2019

    I am very concerned about you because of the pain and suffering you have. Lymphedema is a possibility. You can get it on the trunk of your body, not just in the arms. You can get it from lentigo. Doctors usually think about it after lymph node removal, but it can also come from lentigo. At any rate, maybe this is a new avenue? Did they try massage and compression in the past 9 months?

    https://www.healthline.com/health/breast-cancer/pe...

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 79
    edited July 2019

    when I try to click it says not available :(

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 79
    edited July 2019

    I did read about that, didn’t know lentigo could cause it though. They haven’t tried that no :( it’s never came up as a possibility to them x

  • GiddyupGirl
    GiddyupGirl Member Posts: 240
    edited July 2019

    Mexico -- that is a brilliant suggestion.

  • marijen
    marijen Member Posts: 3,731
    edited July 2019

    Worried, how long ago did you last see the dermatologist? What did the dermatologist say about follow-up? And how recent were you dx'd with pneumonia? Was it both lungs or the left one

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 79
    edited July 2019

    I had pneumonia when I was around 16-17 I’m 23 now so many years ago and I’m not sure I think both. I saw the derm a few months ago

  • marijen
    marijen Member Posts: 3,731
    edited July 2019

    I looked up lentigo and it says an excisional biopsy is better than a punch biopsy. Did the derm say to follow -up? You could go back since it’s worse now. I also read that it can involve the lymph nodes and it’s a pre-cancer. Did she tell you that or anything

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 79
    edited July 2019

    there’s two types one is cancerous I think the other is just a skin condition I don’t have the cancerous one, I wasn’t aware of any of that x

  • marijen
    marijen Member Posts: 3,731
    edited July 2019

    Did you get a copy of the derm report? It is a good thing it’s not the cancerous kind, that would be pretty awful. I just find it so hard to believe they send you home with so much pain and with no good explanation, or antibiotics even. And not telling you to come back either? My lymphedema was very painful, it took an expert physical therapist to get me relief over two years time.

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 79
    edited July 2019

    yeah I think I uploaded the derm report on here, I know I’m stunned at how they can leave me like this. What did your lymphedema feel like

  • marijen
    marijen Member Posts: 3,731
    edited July 2019

    Like my breast exploded to three times the size overnight. About six weeks after radiation. The first two physical therapists refused to work on it, my MO sent me to another clinic where I asked for the best therapist they had. She was a godsend, it was huge, red, sore, peau d'orange. They gave me antibiotics, two courses, and steroids that didn't touch it. A punch biopsy that was negative for IBC. And the radiologist lied to me and said she never had a patient like this. Because at the same time I ran into one of her patients and she had gone through the same thing. I refused to go back to her.

  • Worriedasworriedcanbe
    Worriedasworriedcanbe Member Posts: 79
    edited July 2019

    that’s honestly horrible I’m so sorry they left you like that for so long :( that’s just cruel. My symptoms are so similar to that, did you get tingling at all in the breast and heat? And did your armpit and upper arm get sore?

  • marijen
    marijen Member Posts: 3,731
    edited July 2019

    Yes it was hot to the touch. The swelling is what caused the pain. My axilla and upper arm were sore from the surgery. I am still sore from the surgeries that were three and a half years ago. But I don't have the fear you have of not knowing what it is. I had to figure it out myself. Delayed breast mastitis and the punch biopsy added angioedema.

    The hot weather made it worse. I found a good suntan lotion with avobenzene in it that helped a lot with the redness. It’s called NO-AD.



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