All about Xeloda

Grannax, at the time of her scan and blood 1 month ago it is reported that ascites is mild. Her stomach does have some bloating to it. They are taking her off of Xeloda and onto Gem/Carbo.

lisamariep, I have a problem with my bilirubin, but my MO said it could be either the liver or the Xeloda.

I could have kissed him today! He not only reduced my dosage but he told me to take a week off for my feet to heal.

I am so relieved. He put off my scans until I have a few more rounds of Xeloda under my belt. So the end of August. Hoping for no hurricanes this year. Last year I had to reschedule my scans twice

thank you goldie0827 ! she has a scan scheduled for 7/11 and after that I guess we will see if there is more progression since being in Ibrance. I have also read about genomic testing- which they test your blood to determine what form of treatment works best for you instead of letting the cancer continue to grow while trying different things. Seems like you have to go to a specialty place in order to get this testing done. Has anyone heard or done that testing? Hard to get anything out of the oncologist as they always just give you new meds and send you on your way

thank you Grant- everything has been okay with her heart since the start of Xeloda?

No, they did not test my heart before starting me on Xeloda. I’m 71, how old is your mother

Rainedrop - Sounds like good news. Hoping you great scans when they come around.

Gumdoctor

Just got the call about dose reduction.

Going from 4,000 to 3,000 mg a day, 7 days on, 7 days off. Start next Saturday.

Very hopeful I will do better with this new tx regimen.

Gumdoctor

Megan. I've had genomic testing done. You'll have to tell your MO you would like to have it done. There are several companies that do this type of testing. I had Foundation One.the first time. Then, on a different BX of new liver mets my new MO sent it to Tempes. They take a piece of your tumor from tissue stored from BX. Your MO would have to order it. Mine were both covered by insurance. There are forms to fill out, etc.

But, let me warn you. It doesn't always show a better treatment for your tumor. Mine did come up with a mutation called ESR1. It only really tells the doc that my tumors have become resistant to any anti hormonal TX, Because of all the previous TX with AI pills, my tumors found a new source to feed on. So, AI etc. have not been working on me, therefore, progression. My answer for what TX is going to work is still a mystery. I was really bummed. There are some people who get answers because of other mutations/ alterations that show up. Some they have done trials already. So it's the future I think. But not reality yet. For me, the only firm info about my TX is that I don't respect to anti hormonal TX. That eliminates a ton of options. Therefore, my tumors are more aggressive, harder to control. 💞

I started my fifth cycle of X yesterday. Here I go again with the FOF, Feet on Fire for two weeks. I got a lot of stuff done yesterday so I can just wear my house shoes if necessary. Two days till PET, 5 days till MO and results. UGH the life we live.💞

Looks you got off to an eventful start. Lo

Can anyone recommend a sandal or flip flop brand and model style that you like and wear successfully without getting blisters or callouses? I've been googling "memory foam sandals or flip flops" and also "padded straps" and each item I find seems to have a drawback of some kind, like tight straps that cause blisters, or that the toe slips off the shoe bed, etc. Right now I'm wearing little white socklets and sneakers, but not quite appropriate for sundresses and summer skirts, and concerned about my feet getting too hot in them, as well. Thanks for any suggestions.

I loved my Ecco sandals and Clark’s.

Joyner recommended these to me. Just got here today, very soft and no rubbing anywhere. I ordered them online. They are called Vista. Just go to Roxy on line. They have tons to chose from. They don’t have a real thick sole but it’s very soft.

Hey, Xeloda buddies. Since this is one of my main threads, I wanted to post an update. I will have a “procedure” this week for a partially blocked bile duct. The blockage is likely cancer, but we won’t know what kind until the pathology report. The scary thing is that my TMs are normal, and if it is not a weird ILC met it could be primary bile duct cancer, which typically has a bad prognosis. That is a rare cancer, but my risk is higher than average because of a genetic mutation. So here I am hoping for bc progression! That is statistically more likely, I think. I am fairly calm, sad to see my family so worried, grateful to my onc and nurse for moving things along quickly for me. I am yellowish and very itchy from the elevated bilirubin. And more tired than usual. I started a thread call “Bile duct stricture could be ILC met” to see if anyone else had a similar issue, and received some kind words, but so far have not heard from anybody who had this happen. I will cross post to the liver mets thread where I also hang out a lot.

Shetland Pony - Hoping for the best for you.

Gumdoctor