Positive Girls Club
Comments
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Well, my positive is a day late but not a dollar short. Our finances are not as good as they should be , as a matter of fact, they suck. So where I can get samples for dh I do. His drug bills are astomnomical even if he does get generics. So, I have gotten to be quite friendly with one of the girls from his GI docs office. He takes Prevacid and it is not on our formulary and would be prohibitive to pay for. So she cages me samples whenever she can. When I picked them up, we got to talking. For those that know me, this comes about quite often, LOL. Anyway, I was telling her how I had just finished a mystery shop and apologized for being late to pick up the meds. She asked about it 'casue Lord knows, in this economy every one needs a little extra. So we traded email addys and I sent her info to get started. The talk went on (surprised?) and it turns out she used the same ps for her "boob job" (as she called it) that I am using for my PBM in April. She gave him glowing reviews and made me feel so much better.
Like my mohter has always said, you get back what you put out 1000 times, be it good or bad. I guess I am getting the good back lately. -
Oh, and I had this terrific lunch at a local diner with my best friend. She and I have been trying to get it together one day without our dh's along too. We had the best time. There is something to be said for girls' time. It is so rejuvenating. That is why I love out get-togethers here in Philly once a month with the gang from this site. Anyone interested in March's check out the get-togethers thread or email me at bethpknit-pink@yahoo.com. Would love to hear from any of you on anything!
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Wow, happy to find the Positive Girls Club! Dx 12/19/06 after first scare (bad mammo) day before Thanksgiving. Had lumpectomy and Sentinol Node Biopsy 1/11/07. Stage 1, grade 1, no lymph node involvement, start rads on 2/26, than Tamoxifen. Have been feeling good and staying positive and grateful about prognosis even though this bc sucks. Family and friends taking it harder than me I thought until yesterday had my first breakdown. My dh having some trouble dealing and I am feeling guilty like I am doing this to him. Hoping he rallies and we can find the good in this thing. Told him I didn't think it was a good idea for him to go to any treatments with me, he went for rads set up and had that deer in the headlights look. I'm thinking maybe if he doesn't go, he won't see me as cancer girl. Any thoughts?? I just want to move on and enjoy life, I can handle the pity looks out in the world but at home it hurts. Sorry to be a sad sack, positive most of time. Good luck to all, Ify
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Well, I'm a little late with the PGC Friday Positivity, (it's Sunday), but here we go.
Silly as it sounds, I count as a positive the fact that my mascetomy has been scheduled (3/8). Not sure yet if the reconstruction will be done right away (appointment with plastic surgeon day after tomorrow), but am glad that something is being done.
Looks like I can post this here (sorry it's so big).
I learned to tat this past summer, and made this Hope Ribbon just this weekend. I dedicate it to all of you.
Cheers everyone, Kathi -
Wecome to the PGC IFY.....dont worry about being a sad sack, we all have our days but thats what this club is all about....we are here to pick each other up....there has to be a way to get through all this without feeling like it is the end of the world and it really helps ALOT to talk to others who are in the same shoes (so to speak)...
We all come here (or try to come here) on Fridays and post at least one positive that happened to us for the week...and then we come here when we are down so that we can whine to the others and they can stand us back up and dust us off again....
Come here as often as you like, I check this everyday, sometimes several times a day....
Jule -
Kathi,
My grandmother taught me to crochet and I have always regretted not having her teach me to tat...it is such a beautiful piece...I love the Hope Ribbon...
I think your positive is wonderful....it always feels good when you have a confirmed appt and such...feels like things are finally moving forward.....
I will put you on our calendar so that we can all be with you for your appt....
Take Care
Jule -
Here we are again at the beginning of another week already!!!!! It seems like time is moving so fast through this step of my treamtment (not that Im complaining).
I just wanted to take a few minutes to remind everyone to stay as positive as you can and that we will be here to pick each other up if the need be....we only had a few positive posts from last week.....Where are all you girls????
Time to check in so we dont worry about ya......
Hope all is well with everyone.....
see ya soon
Jule -
Checking in early this week with my positive post. My re-excision and SNB was today: initial results say clear nodes! Should have the full path report in a week. But whew! That's the best news we've heard yet! (Now come on, clean margins...)
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Sara,
So glad to hear about the clear nodes and I know the margins will be the same too....was relieved to see you check in early
Take care of yourself and get some rest....post when you can...
Hugs
Jule -
Hi All,
I'm posting VERY early this week, since I'll be out of town for the next 5 days. But, that's the reason for my positive post for the week. I'm going to Atlanta to attend Project LEAD, which is a program put on by the National Breast Cancer Coalition. It's a 4 day intense science training program for bc advocates to make us more effective in advocating, fundraising, and grant reviewing. I'm so excited to learn all the science about bc. The review materials I've received are VERY detailed, and I asked my 14-year old daughter to bring home her biology book so I could review cell biology (uh, haven't had that since college bio about 10000 years ago!).
Anyway, I hope you all have a great POSITIVE week, and I'll post next week to let you all know how the program is.
Renee
P.S. Jule, thanks so much for keeping this up! -
Renee,
You are such an inspiration! I'd like to get more active in advocacy, too, and just started looking around New York for some groups to join. Somehow, when I'm focusing on the ISSUE of breast cancer, I'm not thinking so much about my PERSONAL cancer. Does that make sense?
Thanks for motivating me to get more involved,
Sara -
Hi All,
I am really late in posting my positive for last week. My middle daughter is graduating from high school in May so she and I went to visit her first choice college this weekend. I guess the positive was we missed the big snow storm that hit here in the Midwest. We drove and had good weather driving there and back (Indiana).
Fireba, awesome news on the lymph nodes! Now that is a real positive. Rest up and we will be praying for clear margins.
Kathi, your hope ribbon is beautiful. Will be thinking about you on March 8. I am one year out and cannot believe how fast the time has gone.
Welcome to the club Ify. My DH too was pretty scared in the beginning and now one year later everything is back to normal. Your DH probably just needs time to process everything. I have heard that there is a book called I think The Breast Cancer Husband written by the husband of a woman with breast cancer that is supposed to be good. I came across it on another thread a couple of weeks ago. You might check and see if your library has it. Just a thought.
Sue -
Hi Ify, I thought I had replied to this earlier, but it looks like I didn't! My husband is a very reserved guy, and this has been especially hard for him, since he doesn't want to say or do anything to put extra strain on me. I encouraged him to read the boyfriends and husbands thread on this website (which I think he's been doing, though he doesn't post), and his two older brothers have been great about calling to check in on him. I think that until we really get into our routine (chemo, rads), he's going to struggle. He's the kind of guy who likes to take care of things, solve problems, and so on, and this is something he just can't solve. I think a lot of men have similar problems, and that look your husband gives you probably isn't pity - it's fear. Does he have a close relative he could confide in (that is easier for my dh than talking to a "friend" about something this personal). And I second the book idea, though my dh wouldn't read it himself (he's not a self-help reader or group joiner, sigh!). Maybe if you read it, though, there would be some tips you could gently pass on or incorporate? Good luck, I know the two of you will find your way together through this process.
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Ify,
Wanted to check in with you to see how your 1st rad treatment went yesterday.....
Once you get in the swing of things and get everything worked out schedule wise its not so bad and the time fly's.....
Jule -
Renee,
What a wonderful thing you are doing....I have read all your posts here for quite sometime and you are such a GREAT member to have here...your posts are always so up lifting and helpful.
It can be so hard to stay positive if you feel alone, but having this thread I hope that I/we can help others going throught their journey with bc by at least knowing they arent alone.
Have a safe & wonderful trip...make sure you take sometime to enjoy other things outside of BC while you are there too....
Talk when you get back....
Jule -
Suz56,
Wow, off to college!!!!!! and yes it is a blessing you missed the storm...we dont have that severe of weather here but have been watching in on the news....
Will look forward to seeing your post about how things go with the college search and your positive for the weeks ahead.
Jule -
Renee - go you! I'll add to Jule's post that you are such a wonderful and inspiring person to have here. You give me such inspiration!
And another positive, even though it's not Friday - I CAN SHOWER! I had my surgery on Thursday and couldn't shower until Sunday and I hate sponge baths so what bliss it was to be able to shower with my favorite LUSH soap! And I can drive, too - was able to tootle on out to visit the 'rents on Sunday. I feel back to almost normal. -
CrystalCat,
So happy to hear you are doing well and able to get out and about so quickly....
As time goes on it seems that each of us come here with more than just one positive and I think that in itself is a HUGE positive:)....as each day goes by we each get over another hurdle that BC has put in our path and that is the MOST positive thing we can do....
But you ladies should know: I STILL EXPECT TO SEE YOU HERE ON FRIDAYS (or as close to Fridays as you can get).........
All take care,
Jule -
Thank you for the good thoughts.
Surgery went well. The cancer was twice the size they thought. Nodes were clean. Now the wait, wait, wait, wait for pathology.
I was, however, a less than stellar patient. I was combative in surgery and got up to leave recovery before I was awake. Bad, bad me. I have really been fighting this whole process. And now I have the mediport to irritate me. oh, well.
Now a story. My girlfriends and I wore tiaras to the hospital and handed out suckers to everybody. Our first stop was radiology to have the isotopes join the parade. We sat down and a mom and her son came in. My name was called, I got up and handed the mom and son a sucker. After I was gone, my girlfriend told me the son asked to throw away his sucker. His mom told him if he threw it away, he wouldn't have a sucker anymore. He said it was okay. He knew the queen would give him another when she came back.
After surgery one of my girlfriends took me home and made me queen for the weekend. Being waited on, not even asking for something and it would appear. What a luxurious life. That is why no update for a couple days.
And now that I have my dogs back home, life is seeming a little more normal. But we all know normal is just a setting on the dryer.
And I will be wearing the tiara to all bc functions I will be attending. There were so many people that had smiles when they got suckers. It made the whole hospital thing a bit less stressful. So, my positive thoughts for last week are - tiaras and suckers for everyone!
charlie
This will only make us stronger! -
Hey JPAnn, Guatemala is so fabulous you would not believe it. I am a retired teacher of Spanish and French so I can get off the tourist track a little and still communicate. I have been once before and can't wait to go back!
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Hi Jule,
Thanks for the welcome, feeling better today. Days 1 and 2 on radiation went well, they tell me there is not really a good rads garment and not to wear a bra so here goes. DH is trying really hard after a big heart felt discussion so that front seems very hopeful. Thanks again for this place to come and share and vent when needed. Amazing to feel all the positive energy from so many women. Happy week to all. Ify -
Oh My God Charlie,
You sooooo fit in this group of misfits we are ....Your story made me laugh.....What a wonderful way to ease the stress. Your FRIENDS, now that is what its ALL about!!!!!!
How nice it must have been to be Queen Charlie for a few days....
All in all, I guess what Im trying to say is: Im proud of you girl.....
Hugs
Jule -
Fireba,
Thanks for the positive input. I will definately get a copy of the book for dh, who seems better this week. I don't think he is talking with any of his friends about this, he just managed to tell his dad this weekend. Hasn't gotten up the whatever it takes to talk with his brother about it, he lost his wife to bc about 10 years ago. We'll get throught this and if everything I have been hearing and reading is true (about finding the hidden gifts in all this chaos)hopefully we will come out stronger and more commited than ever. Thanks again and wish you a happy week, Ify -
Speederpuppy,
I have dreams of traveling but am still on the track for retirement ....some day I will get there and be care free and go where ever my little heart desires...
For now I want you to think of me while your there and do something really off the wall, out of the normal so you can tell me all about it when you get home.....OH and PICS are a MUST!!!!! -
Awwww IFY,
I wish there were more we could do to help with your DH, but you have to remember men are men and they show and deal with things very differently than we do...
I live alone, but have family close by...my youngest brother and I are extremely close, the night of my surgery all I wanted was to be home in bed, but didnt feel the need to have anyone stay....when I woke the next morning I found my little brother sleeping on the sofa, he had snuck in during the night...."just in case" is what he said....we spend tons of time together but we rarely talk about all this. Mom says he asks her once in awhile but he really doesnt know what to say.
Anyway, just my thoughts on men and dealing with this....
Things will get better for the two of you....how can it not when you have all of us rooting for you ....
Hugs
Jule -
Hi Sue,
Congrats on your daughter, glad you missed the storm. It's been any ugly winter here in Kansas as well, but 60o+ today. Sat in the sun to get my dose of vitamin D today, Yeah. Your the 2nd one to tell me about The Breast Cancer Husband so I better get a copy. Thanks again for the support. Hope it's a good week, Ify -
1stlite, I love the tiaras and suckers!!! What a wonderful way to get thru the experience with lots of giggles and smiles.
Sure way to chase away the fear! -
I 2nd iodine on that. What a great stress-buster for you and the people you encountered.
Molly -
Charlie -- What a wonderful way to deal with BC! Wish I had the guts to pull it off ...
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Went for my last entire breast treatment yesterday, YA YA, now that area can start to heal....but (why does it ALWAYS seem that there has to be one of those?)
They tried to set me up for my 1st boost treamtent today and it didnt work ....Im small bodied and the positioning of my lump site and the machine do not work together...they called a guy that is suppose to meet me there today to see if he can fabricate something to use with the machine to make it work....
I cried all the way home yesterday, dont know why, but it sort of hit me like a ton of bricks...Ive gotten sooooo close having this over and done with and NOW I run into a road block
Sorry to post something non-positive today, but I figure it is Thursday (not Friday) so maybe I am allowed....
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