When I stop Arimidex, how long before SEs go away?

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Anonymous
Anonymous Member Posts: 1,376
edited June 2019 in Hormonal Therapy - Before, During, and After
When I stop Arimidex, how long before SEs go away?
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  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited June 2019

    I've been on it for four years next month-- one more year to go-- July 2020-- and I'm counting the minutes. I haven't had bad side effects, but they have been noticeable. Constant hot flashes at first, just wave after wave. I didn't have any hot flashes when I went through menopause in 1999. Now either I'm not having as many, or I'm used to them. Or, the temp is already in the low 100s here.

    I've had various joint/muscle aches, but I don't know if they're due to Arimidex or not. Right now my right arm is very painful, but that might be mouse use. My sleep is total crap-- averages about four hours. I do nap a lot. My oncologist's nurse just blows off my SE questions, as if to validate me might discredit them. Whatever.

    For those who have gone off the AIs, how long before SEs go away... if ever?

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  • NancyD
    NancyD Member Posts: 3,562
    edited June 2019

    I took a three month break last Fall and was hoping to see a decrease in my side effects, which are mostly joint pains. Didn't happen. So I went back on anastrazole in January.

    I just had a visit with an orthopedist for the pain in my knee which pretty much keeps me from walking any distance that would be considered exercise (around the house or grocery store is about all I can do). He says its severe osteoarthritis, and there's nothing really they can do at this stage. I am chalking it up to growing old, which as a breast cancer survivor isn't a bad thing.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited June 2019

    It can take quite a while. I have been off for 3 years and still have some joint pain at night but it is so much better.

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  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited June 2019

    EEK! Three years and you're still feelin' it?

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  • Meow13
    Meow13 Member Posts: 4,859
    edited June 2019

    only at night, salonpas seem to help alittle.

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