ILC recurrence

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  • nash
    nash Member Posts: 2,600
    edited June 2019

    I had two primary PILC, one in each breast, 11 years apart. I also developed brain mets from the second primary tumor. My onc said there was no way to determine whether the second primary was truly a new primary, or if it was metastatic disease in the contralateral breast. But that it potentially could be the latter.

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  • OnTarget
    OnTarget Member Posts: 447
    edited June 2019

    I was diagnosed with mammary cancer in my left breast and during the breast MRI, they found two Birads 4 items in the right and an additional 2cm mass on the left which couldn't be detected on Mammogram or ultrasound. At that moment I decided to do a BMX regardless of the outcome on the right. I have dense breasts, and the worry that things could be hiding in there drove the decision.

    My BS was not against it, but wanted to discuss it, but then the biopsy came back as a tiny bit of ILC in the right, and she said I'd made the right choice. I also chose to ditch the right nipple since I had to lose the left nipple because the cancer was big and close.

    Funny enough, my left nipple was clear and my right one had issues!

    My mammary carcinoma diagnosis was changed to ILC in both breasts after the BMX. Plus random DCIS and LCIS and other atypical stuff.

    I am extremely happy that I chose BMX and that I ditched the nipples too. I feel so much relief.

    If I hadn't had the BMX, I have a feeling that I would have been one of the people who had a recurrence a few years from now in the right side, not knowing that the tumor had been there all along.

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