Spot on Sternum

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Dlpaquette
Dlpaquette Member Posts: 93
edited June 2019 in Not Diagnosed With a Recurrence or Metastases but Concerned

I had a CTA of the chest today looking for a PE. There was no PE but the did find a spot in my sternum. They are going to schedule a bone scan but right now I am so stressed. I went from everything is going great to tons of muscle spasms in my ribs. While addressing this I ended up having a seizure like event. After 18 hours in the ER. CT of the neck and brain, Brain MRI, blood and urine they sent me home, now they are calling then stress related non epileptic seizures, that was last Wednesday into Thursday. Today oncology ordered the CTA, add to that anemia with no known cause, put through upper and lower endoscopies but no answers. All this in a couple weeks. I am hoping the bone scan comes up clean, they should also be able to see my lower spine which I didn't realize how sore it was until they pushed on it in the ER, I jumped! I. Just feel like my whole body is rebelling, but most worried about mets to the sternum.

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  • vlnrph
    vlnrph Member Posts: 1,632
    edited June 2019

    Wow Di, you have been through the wringer! The nuclear bone scan should clarify what is going on.

    Know that, if it is determined that the spot on the sternum is indeed evidence of metastases, there are highly effective treatments available and many of us are hoping for long runs on them. In fact, a single location might be eradicated, perhaps with radiation. Then IV therapy with Zometa may help block further mutate cells from getting a foothold. You will probably also want to have a baseline PET at some point.

    All that being said, maybe there is a benign diagnosis pending and you can come back to tell us about it...

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  • InnaB2018
    InnaB2018 Member Posts: 1,276
    edited June 2019

    Hey, Di, I am in the same boat as you. Everything seems to be fine, but a CT scan indicated that I have some sclerotic changes in my right humerus and on my manubrium. They are the same as 4 months ago, but the radiologist didn’t see fit to comment on them 4 months ago. My oncologist isn’t worried, but I am. Going for the bone scan on Thursday. There’s no rest for the weary...

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  • Dlpaquette
    Dlpaquette Member Posts: 93
    edited June 2019

    I called today to get my bone scan scheduled. I was told the next available is July 9th, fortunately I talk to the schedulers on a daily basis for my job at a pulmonary office, they made some calls and got me in next Tuesday. I have had one thing after another medically since July of 2017, I thought things were finally going to slow down after a long recovery from my deip flap in March, the incision is finally 99% healed. I have been an expert at internalizing stress but evidently my brain had found a way to externalize it with these seizures. I spent 19 years caring for a medically fragile child so I have tons of stress experience, I will get through this either way, to me the most stressful part is waiting for answers, once I have answers and a plan I am fine.

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