If you are not Stage IV but have questions, you may post here

Thank you, i am in Canada. The nearest NCI is in Buffalo New York (funny as i was typing this I saw a commercial for that center on the TV lol). I will discuss this with my doctor to see if my insurance would cover it if i went there. I googled the out of pocket cost and i read that it would around $5000, yikes i definitely can not afford that. It is a great idea and i will see what i can do.

I've been recently diagnosed with stage 2b hormone driven breast cancer. Last night I wet the bed. I am wondering if anyone has had this as a symptom of stage 4 breast cancer?

Libby

What are the symptoms of metastatic bone cancer. I am having pain in my right hip that is going down my leg. The pain comes and goes. It is not there during the night but comes out of the blue during the day. Massage and chiro has not helped. The pain feels like dull throbbing pain.I took panadol osteo 2 weeks after the pain started and it went away for about a week. Now it's back again. I was diagnosed with ILC 10 years ago, stage 3.

hey girls. I was wondering For my mom, after chemo they don’t do a CT or PET because no signs or symptoms. So, for those diagnosed with mets, did you have symptoms that led your DR get a scan? Thank you

ucf, I was diagnosed denovo in Jan. I had axillary node involvement so my MO wanted ct and bone scans before starting treatment. I had a lung nodule and 2 liver Mets show up. No symptoms. I went straight to Ibrance & Letrozole. Best wishes to your mom

Updated on my status. Breast MRI showed area of concern, I go in Thursday for ultrasound. Saw "pain" doctor today, he is MSK specialist. He said I am in good physical condition, no muscle or joint issues and said get a bone scan.

My best friend was put on Afinitor and Exemestane about 3 months ago. She immediately developed pneumonitis and had to stop the meds for two weeks. Her counts were down during this as well. She took heavy doses of steroids to help combat the effects the pneumonitis was having on her lungs. She can't breathe and its horrible to see her like this. She's back on the meds now and was given two inhalers but they aren't helping. Does anyone know of anything she can do to relieve the symptoms she's having with breathing, coughing, etc.... She is also considering going to Tiajuana for treatment that is alternative to traditional meds. I am at a loss how to help her! She was on Ibrance for 3 years and she stopped responding to that treatment.

Dear Flo, do you have pain or another reason to suspect bone mets?

There may be osteoarthritis or something non-malignant going on with the knee and they are being careful to get good pix since this is a baseline scan. Don't jump to conclusions, you might injure an ankle or another joint!

hi all,

I have some questions about my mom and I would just like to get some opinions. She is 65 years old originally diagnosed about 8 years ago. She had her first recurrence in her spine almost 2 years ago. One year later she had another met on her spine and now she has two more spots on her back, the original recurrence (which was operated on and radiated) is now progressing and she has a met on her jaw. She is currently taking Faslodex.

Should she be doing more?

What is a long term prognosis for someone like her?

She has a lot of fatigue but generally doing OK

thank you, I appreciate the response. I guess my greatest concern is how quickly spots keep coming up but she has only been on the faslodex a month or so, so patience is key.

My other question would be regarding if the pattern of the disease is hereditary. I also had breast cancer but I am a carrier of the brca gene mutation but my mother does Not. I inherited the gene from my father so I wonder if my cancer is hereditary from her (we are both ER/PR+)or from the gene and if her recurrence has any indication for myself, you know what I mean?

Xgeva or Zometa are also given for bone mets. Is your mom on one of those

ucf, I found a lump in my breast six days after an annual mammogram. It was biopsied and found to be malignant. After a number of different doctor appointments andprior to scheduling chemotherapy, my oncologist ordered a bone scan. She wanted a baseline scan to compare to any future scans. When it showed suspicious activity, she ordered a pet scan and it was determined there was bone metastases.

I still saw my Onc yearly even after 17 years from my initial BC. He didn't find anything during my checkup. 9 months later I found enlarged lymph node around my collar bone. A PET scan found the spots in my bones. I was in shock as I had no pain from the mets.

yes, just yesterday they prescribed Ibrance. The doctor first wanted to see if faslodex alone could work but her bloodwork has gotten worse and not better so he has added ibrance.