recurrent loss of taste and smell

My sense of taste has changed since I started eribulin. I don't taste sugar the same way. Much food tastes dull, so I use alot of siracha, ketchup and salsa. I've once lost my sense of smell while i was on A/C (adriamycin/cyclophosphamide). It came back.

Shippinggal, I also have altered senses of smell and taste. Noticed it was severely affected immediately after finishing chemo last year. Took several months before regained some sensation. But nowhere near normal a year later. Normally should regain by 3-6 mos post chemo, but there appears to be a subgroup who take much longer. Still waiting...

My taste never came back after chemo. It's been over 2 years.

Meowmmy65, I went to University of FL last week for a smell/taste conference. Heavily on smell. I would reach out to them to ask any questions. They are at the forefront of research. There is a thing called smell retraining which has been shown to help improve smell loss. Everyone there had a smell loss except me. My neighbor just came back from there because of a sinus infection that took her smell/taste. She is being treated and will go back in a few months after she does her treatment. Of course our sensory loss after chemo is TOTALLY different from the sinus problem people but maybe they've seen this before and can tell you your chances of getting it back.

Hi I'm new to this group. I have not been able to taste anything unless it's extremely salty or spicy and it's the side of my tongue that rate it. It's been about 3 weeks. I thought it would get better but it's not. I can smell. I can eat textures. That is it. My protein is very low, calcium very low and potassium super low. I was diagnosed with triple + metastatic breast cancer with bone mets in May of 2018. I had a 6 course regimen of taxotere which finished in October. (I lost some taste during this but it came back by Christmas) then I did 10 rounds of radiation to my hip while also having a lumpectomy to remove 5 tumors from left breast and removal of lymph from my auxiliary. Followed by 6 weeks of radiation to breast. In May of 18 I had the time removed from home and by Christmas the screw was working it's way out of my body. My femur and genial head were constantly breaking. On 4/23 I went into the hospital and had total hip transition. I gained 50lbs water weight in 3 days. I was discharged 5/15 and lost sense of taste 2 days later. It's a horrible struggle to eat. My regimen of meds is lupron every 3 months and letrizole every day. Herceptin and perjeta every 3 weeks. I'm just at a little of what might be causing this. Someone mentioned that it be better allergies. I've had a drippy nose since I was diagnosed. But side from no taste I can hear myself echo in my head like my ears are plugged. That's been about a month as well. Any suggestions

yes I also suffered several times loss taste and smell I even had mouth sores but all dissipated after all treatment and got my smell and taste back slowly hang in there.Back to normal and Praise God now a 25yr Survivor. msphil idc stage2 0/3 nodes 3mo chemo before and after surgery Lmast adriamycin cytoxin 5fu then we got married was planning at diagnosis then 7wks rads then 5yrs on Tamoxifen.