MRI measurement of ILC

Melmatt
Melmatt Member Posts: 29
edited June 2019 in ILC (Invasive Lobular Carcinoma)

Hi everyone, I’m new in “town”—just diagnosed with ILC. I had an MRI on Monday and from what I’m reading it sounds like the measurements could be a lot different on MRI from what the ultrasound said. Any personal experience that anyone would like to share? Thank you in advance!!

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  • wallycat
    wallycat Member Posts: 3,227
    edited May 2019

    **raising hand***

    Yes, I was told 7mm and it turned out to be 1.8cm. Of course, I know gals that had the reverse; told it would be bigger and it turned out smaller.

    Best to you!

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  • Pinky24
    Pinky24 Member Posts: 28
    edited May 2019

    my impression is that MRI usually shows larger than ultrasound, but I’m not sure if that’s true across the board. They really don’t know what’s there until surgery and pathology.

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  • Melmatt
    Melmatt Member Posts: 29
    edited May 2019

    thanks ladies—the waiting is making me crazy but I will know tomorrow!!!

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  • wallycat
    wallycat Member Posts: 3,227
    edited May 2019

    From everything I've read, ILC size is less important than for IDC, if that is helpful at all.

    Interestingly, my mammogram AND my ultrasound found ZERO tumor. None. They wanted to send me home and see them the following year.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2019

    Mine was the what the MRI showed but not sure my ILC was typical, it was a very distinct tumor 1cm almost identical to my 1cm IDC tumor. MRI was very accurate in my case.

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  • Stanford
    Stanford Member Posts: 6
    edited May 2019

    Hi- my mammogram showed a 9mm mass and the mri showed 11mm. When they removed the tumor it measured 11mm. This was the first year I had a 3D mammon’s. Curious if it would have been seen in a regular mammogram

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  • OnTarget
    OnTarget Member Posts: 447
    edited June 2019

    A late bump on this-

    My ultrasound showed 2.7cm, MRI showed 2.9cm plus a 2cm area behind it that was susipcious.

    The actual tumor was 3.0, plus the tissue around it had a lot of atyipcal hyperplacia.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited June 2019

    yes I had a suspicious area on mri that turned out to be normal tissue.

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