How are YOU monitored for Recurrence or Mets?

Options
124»

Comments

  • Dukip
    Dukip Member Posts: 40
    edited May 2016

    I am in the UK.  Diagnosed aged 43, presented symptomatically - as mammograms only start at 50 here.  Diagnosed in September 2014 and finished chemo and Radiotherapy in July 2015.  And here in UK surveillance/monitoring is a chat with oncologist once a year.  No scans, examinations (apart from annual mammogram for 5 years - one down, 4 to go).  Oncologist said he will discharge me in September 2017.

    No blood tests, no scans (apart from baseline before chemo), no examinations.

    What do you US sisters think about that?

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2016

    Not all doctors/insurance plans in the US do scans following a diagnosis of BC, claiming that too many false positives come up. My BS and MO did physical exams (checking deeply under arms for lymph nodes) every three months for the first year, then switched to twice a year the second year. Following that, I see them once a year for the next three years. Those who do not have a Mx, do have yearly mammograms after their diagnosis. If I have symptoms that last over a couple of weeks, I am to see them to look for metastases.

    I have a close friend who was diagnosed with BS ten years ago and went through chemo and radiation then after her Mx. She has had yearly blood tests for BC and had one two months before her recent recurrence on her chest wall. That tumor marker test came back without any issues and she was surprised to find a lump two months later. She has been through chemo and radiation again now at the age of 86. She has a fighting attitude though and will come through this.

    I am focused on doing everything I can to avoid a recurrence but know that it is out of my hands. I want to live my life and enjoy the time I have, instead of worrying about what might happen. Best wishes to all.

  • Artista928
    Artista928 Member Posts: 2,753
    edited May 2016

    Dukip- In the US, or at least with the MOs I know, you see them after 5 years once a year for life. There is no d/c. I will be monitored for a bit for the lung nodule seems every 6 mo for 2 years to make sure it's nothing and then it'll be no CTs unless I have symptoms. I wouldn't say it's pro scan here after bc but maybe before with some MOs.

  • NewMeBonnie
    NewMeBonnie Member Posts: 3
    edited June 2019

    I was given a double mastectomy told I had a low onco score and goodbye it was stage 1tc . A ct prior to mastectomy showed lung nodules 5mm, spinal fracture and lesion , kidney cyst. . My tumor was there for 7 years misdiagnosed as enlarged lymph node but it was cancer. I had severe complications necrosis after surgery but plastic surgery addressed it. Now six month out I made an appointment with research hospital onocologist. She advised that she thought I was metastatic. Ordered tumor markers they are high, metabolism is off ,bun level high, anemia, she also order full body Pet/Ct and bone density. I see her Wednesday sh

  • NewMeBonnie
    NewMeBonnie Member Posts: 3
    edited June 2019

    One more thing this onocologist thoroughly looked at my records and has totally prepared me for stage 4 Diagnosis. I would never had a double mastectomy if the first drs took the fact it was there 7years, and ran tests when they say lung spine and kidney problems. I feel they were impersonal and wanted to cut and go. Thank God I went to a very big research hospital that are taking everything very seriously. Bad or Good news I know they will test markers and scan when they need to and offer multidisciplinary treatment social work, nutrionist, so I fell safe for better or worse . I also like that she prepared me for a stage 4 diagnosis it gave me time to process in my mind

Categories