Herceptin and Perjeta only, side effects (neuropathy?)

jstod111
jstod111 Member Posts: 2
edited June 2019 in HER2+ (Positive) Breast Cancer

Hi guys

My wife was diagnosed with stage 3 IDC HER2+ in October of 2018. She did 12 Taxol with Herceptin and Perjeta every third cycle, 4 AC, bilateral mastectomy (no reconstruction) and has 6 weeks of radiation and 13 cycles of Herceptin and Perjeta to go. Her pathology showed a complete response.

I've been reading up of the side effects of Herceptin and Perjeta. I was surprised to see that neuropathy and hair loss is listed for Perjeta. I was hoping she could avoid more hair loss issues and icing (we iced hands and feet during the 12 Taxol cycles.

If you've had Herceptin and Perjeta (minus Taxol) what was your experience like? How did it compare to Taxol + Herceptin and Perjeta? Any issues with hair loss or neuropathy? Did you ice hands and feet for Perjeta?

Thanks in advance,

Jeff

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2019

    Hi Jeff, and welcome to Breastcancer.org,

    We're so very sorry to hear of your wife's diagnosis, but we're really glad you've found us. You're sure to find our Community an incredible source of information, advice, and support -- we're all here for you both!

    We're sure you'll get some responses soon, but in the meantime, wanted to share a warm welcome.

    We look forward to hearing more from you soon!

    --The Mods

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  • Birchbark26
    Birchbark26 Member Posts: 26
    edited May 2019

    hi Jeff

    My daughter was diagnosed with stage IV breast cancer

    Estrogen/progesterone negative HER2+ Positive

    She has an infusion of Herceptin and Perjeta every 3 weeks without the Taxol

    The only possible side affects for her are that her hair is not growing back as she thought it would. She never lost all her hair but it thinned out a lot

    She is recently having trouble with dry eye, focus, and contact lenses are uncomfortable. We are not sure if this is due to the infusion

    She never iced her hands or feet

    I hope this helps you. Best to You and your Wife


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  • Fairchild
    Fairchild Member Posts: 206
    edited June 2019

    Hi! One of my tumors was HER2 positive. I did THCP, ending in December, and have been on Herceptin and Pejeta infusions every 3 weeks since then. My hair has grown back, but still thin-ish on top. I have about 1/2 inch of hair 6 months after ending chemo, but I don't know if this is cancer-related or due to another metabolic problem. Otherwise, I have no symptoms from the meds. I hope this helps your wife!

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