Calling all TNs

santabarbarian, I have a question for you or anyone else. We were pretty much on same timing with chemo, surgery and rads. I finished chemo December 20th. I heard about a lot of people with bad nails and toe nails. I never had an issue til this week, I lost my 2 big toe nails. Are you still getting side effects?

Volleyball, No I have not had any issues. I had only a deep and lasting anemia that has finally lifted! Sorry you are dealing with this!

Hi guys,

Long time no talk! I've been in finals. Are we talking about booze and boobs?

I'm with Moth. Very very likely Booze Causes Cancer. They're just looking for space on the wine bottles next to the birth defects warning to print the words: "Alcohol Kills."

I don't drink at all. II gave up booze entirely for health reasons two years ago, pre-cancer. I mean it's sugar which is already a no-no. On top of it it's poison. I got enough poison with the CHEMO. I'm going to restrict my toxins to the ones that prevent cancer. I'm a little pissed at booze for sure. At least the cigarettes have the warning labels. And I will also never drink again!

But, I do not judge and I do not begrudge. Diet is a personal choice. This is all about personal freedoms. I am never ever going to preach at anyone about anything. That said I'm going to do a little shout out for AA down below, in case anyone needs it.

Hell everyone's already got cancer here. We're not exactly in the prevention stage. Or or we? If we're not dead we are vigilant. At least I will be. I mean if you get attacked by a lion one time, it is normal to take precautions against lion attack. I'd say that lions are nothing at all like lightening and neither is cancer. If you've had it once, that lion might still be around somewhere, or maybe it's attracted to your perfume? Who knows but a few changes and some precautions would be wise. When oh when will they come out with an anti-lion spray?

I'm just thinking, the mediterranean diet betrayed me. Lived in France for 6 years and 18 months in London. Can not believe anyone in the cancer diet community is still recommending wine. There is absolutely no indication for alcohol medically or dietarily unless you are in alcohol withdrawal and then they have meds for that. And if they are using it as a lure to start eating non processed foods then they should point that out. Like this, eating this way is absolutely awesome. If you subtract the booze you have a really healthy and nurturing diet for mind body and soul. So enjoy all this but swap out the wine for evian or san pellegrino. That would be fine!

I can see it would be really hard for someone with a spouse who drank around them in early treatment though! That would piss me off for sure. There you are miserable on chemo or post surgery or pre surgery or waiting for ads etc. and there's this insensitive idiot drinking, so basically getting high. I mean when people around us are sick and going through treatment we don't get high around them we take care of them. Or at least don't get high around them. Show some respect and booze in private if you can't abstain temporarily.

Any way, if anyone here thinks they might have an alcohol use disorder small or large, you will never find a hipper, cooler, more fun, and more supportive group of buffoons than the complete lunatics who join AA. Just saying, it's a ton of support and no one's more positive. No one. They are trained in root level positivity. The hard way. The real deal. You'll find people there with cancer, people there with everything. And alcoholism has a much higher mortality rate than cancer and also has a higher relapse rate. So you won't feel like the odd one out on death's door. Just hold your breath on the way in as you pass through the cloud of smoke. They all ideally quit smoking too, eventually but the first 3 years it's about the booze, so there's a lot of smoking outside.

There's got to be someone. When the topic comes up there usually is. Someone will search the site who maybe has a booze problem and find this thread maybe... who knows?

These below links are links to AA meeting apps to use on your phone. Surf to the link on your phone. Download it for free and you have it if you need it. It finds the meetings and the times and give you directions and descriptions and they are free apps. Just in case someone wants to check it out. Or maybe has a friend. Literally don't need to have your wig on to go. Show up on a walker no problem too. Completely done up with hair and makeup fine as well. You just show up. It is fun. Also, just repeat the words they say and worry about your immortal soul and your belief in god or a higher power later.

https://play.google.com/store/apps/details?id=org.meetingguide

https://itunes.apple.com/us/app/meeting-guide/id1042822181

That's all. I'm off to RADS! Loving rads.

Booze and boobs! It's the sexy cancer for sure...

hey guys were any of you found to be egfr positive?

I have 'equivocal' EFGR amplification...

I did Foundation One test and thats how they reported it. It means there was a EFGR amplification but nothing that strong.

There are drugs that target EFGR. A friend of mine is one one for lung cancer and NED for the last 5 years.

Yay NavyMom!!! Great to hear about these milestones!!!

Navymom and Luv! So good to read your posts! Wonderful updates, - thank you for sharing!

Hugs and be well wishes to you, and of course, all here! This board has made this "journey" do-able for me!

Thank you. Love your story and outcome. My wife of 37 yrs. has TNBC, stage IIA, no nodes. Just finished #2 of 4 AC then on to 12 T chemo treatments. She is doing really well. She is tough. Misses her hair and babysitting 2 of our 6 grandkids. Thank your son for his service. I was a federal agent for 25 yrs. We retired in 2011. She is BRCA 2. Her dad did his 1st chemo today for pancreatic cancer. We are anxious for Sept 26 which is the last scheduled chemo. One day at a time and God has been so good to us for such a long time. Love to hear such wonderful outcomes. We are ready to share ours in the years to come!! Let's do this.

Yay, NavyMom! I'll echo the thank you to your son for his service. The thank you extends to you as well since it must be very difficult as a mother to know that your son is sometimes in harm's way on our behalf.

jrominger, I'm sorry that your wife has joined our ranks, but it's great that she has a supportive spouse. I'm sure that you will find the forum a great source for information and support. I hope that your wife's remaining chemo treatments go smoothly.

Last month marked three years since my diagnosis. My treatment path was very circuitous and long so it will be more than a month before I'm three years out from surgery and a few months beyond that for radiation. Still, so far, so good in terms of no evidence of disease so I find that encouraging.

Lyn

Travis, Kber!

[Dear Autocorrect, Travis??? That wasn't even close to thanks. Doh!]

Lyn

Excellent, Santabarbarian!

I've seen different interpretations...from diagnosis, from surgery (if done before chemo), from the last chemo or even from the conclusion of all treatments. I've noticed that some studies don't clarify. If one has delays due to complications, surgery scheduling problems, trying to get second opinions, etc., the dates can be very different so it would be helpful to explain the assumptions used when researchers address survival odds. I know that it doesn't change the outcome for any of as individuals, but I still like to know.

Lyn

I had surgery before chemo, and my MO counts my first surgery as my date.

@jrominger, your wife’s diagnosis sounds similar to mine. Hope her treatment is uneventful.

This just popped into my head...are there any men with triple negative cancer? The few gentlemen I recall seeing on the forums have all been hormone positive.

Thank you, urdrago71!

LoveMyVizsla, I need to ask which date my oncologist uses at my next visit. I meant to ask last time, but was thrown when the PA walked in instead of the MO I love. I should look at it as good news that my MO is focusing on patients with a greater need of her expertise, but I admit that I selfishly felt a bit abandoned by the person who guided me through my treatment. It didn't help that the PA knew nothing about the Peruvian study presented in December in San Antonio suggesting that my changes of survival are far worse since my chemo was delayed. Again, it won't change the outcome, but I want to know that the people in charge of my care are staying up-to-date on research pertinent to my condition. I see a "general" oncologist, not a breast specialist, and I can only imagine how much information floods them each day requiring work above and beyond the patient contact hours. i also know we triple negative folks are also in the minority when it comes to BC subtypes. Still...

Lyn