Being dismissed because of age

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Sam183
Sam183 Member Posts: 60
edited May 2019 in Not Diagnosed But Worried

I am writing this for any woman who has been dismissed by either a Dr, Nurse or someone on here because “they are young”. I post what my Dr has said, what my mammogram and ultrasound report has said and whatever symptoms I’m having (or think I’m having) and to basically be dismissed bc I’m young is so hurtful. I’m 28 (turn 29 this year) but I guess that’s too young to worry about anything... this will be my last post on here, but I will private message the ones I have spoke with and were actually nice to me (when I’m able to. I’ve reached my max amount of sent messages today lol) I hope and pray for the best for everyone going through something. God Bless you all

Comments

  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2019

    Someone on BCO dismissed your concerns because you are 28? Wow, there are many many young BCO members. Breast cancer can happen at any age and sex!

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2019

    Sam183, I've just looked at all of your posts. Not once has age been mentioned. I noticed you mentioned private messages with djmammo, the radiologist who is kind enough to assist the members here. If, in any of his messages, he mentioned age, it would have been from a statistical perspective and certainly not personal. If anyone else mentioned age in a private message, perhaps take it up with that person instead of blaming the entire membership for one person's insensitivity. Best of luck to you.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    it wasn’t djmammo. It was someone else in private message.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2019

    Then, perhaps you should not have maligned the rest of the members here if your issue was with just one person. Please remember that most members are coping with a lot, some of them for years, and they might be having a worse day than you can imagine right now. And I hope you'll stick around and get to know some of us individually.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    I understand. I’m sticking around. Just gonna reply to people and post when I get new info or “symptoms” getting nervous for my biopsy tomorrow. But my fiancé and I are having a game night to help me relax

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2019

    Sounds like a good plan.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    Biopsy done ✅

    Back home now to rest. It wasn't as bad as I thought, but a lot of pulling and pressure. A little sore, hopefully it doesn't get worse when the numbing wears off. Now the waiting game. Hopefully it's just a Papilloma that needs to be removed and then everything can go back to normal.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2019

    Keeping my fingers crossed for you.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019
  • JanWeb
    JanWeb Member Posts: 11
    edited May 2019

    I know the feeling. Breast cancer does not discriminate against age. I went in for an ultrasound and the tech made me feel stupid. Oh you’re young I doubt that it’s anything. As I was leaving she said I’ll show your exam to the radiologist , see you back when you’re 40. I feel so dismissed and it’s sad.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    it is very sad. Cancer doesn’t know age. Statistics are just numbers and yes I’m sure the majority of women are a bit older, but that shouldn’t mean us younger women should be dismissed.

  • Beesie
    Beesie Member Posts: 12,240
    edited May 2019

    Breast cancer does discriminate by age. By a lot, in fact. Women in their 60s and 70s and even into their 80s are much more likely to be diagnosed with breast cancer than women in their 20s or 30s.

    Here is a chart from the Komen site:

    image

    That doesn't mean of course that someone younger is immune from being diagnosed, and no one who is young who presents with real breast concerns should be dismissed. There is no excuse for not taking any concerns seriously, no matter what the age of the patient. The risk of breast cancer for someone in her 20s might be low, but it's not zero and proper & appropriate (to the symptoms presented and the age of the patient) diagnostics are necessary no matter what the age of the patient.

    Sam, hoping for benign results from your biopsy.

  • djmammo
    djmammo Member Posts: 2,939
    edited May 2019

    "Statistics are just number"

    This is what I tell myself when I play the lottery. I figure someone has to win it sooner or later. Even thought my chances of winning the Powerball jackpot are somewhere around 1 in 292,201,388 when it comes to me as an individual, the odds are more like 50:50, either I am going to win or I'm not. And if I don't play, my chances of winning drop to zero. I will let you know if I win this week.

  • djmammo
    djmammo Member Posts: 2,939
    edited May 2019

    I was just posting that very graph when I saw Beesie beat me to it so I deleted the post.

    ===============

    Breast cancer is one of the cancers that discriminates by age as is prostate cancer. If a man lives long enough there will be cancer present in his prostate but many die of something else before it is clinically evident. There are cases that have been reported in the 20's and 30's but rare enough that prostate screening does not start until 40-50 years of age.

    I propose we look at the above graph a little differently than was intended. Instead of that curve representing the "number of cases of breast cancer by age per year", let's have that curve represent the "the appropriate level of anxiety to experience while you are having your symptoms evaluated, by age". I think thats a good start.

  • CrowLuv
    CrowLuv Member Posts: 29
    edited May 2019

    Djmammo - this is brilliant:

    "I propose we look at the above graph a little differently than was intended. Instead of that curve representing the "number of cases of breast cancer by age per year", let's have that curve represent the "the appropriate level of anxiety to experience while you are having your symptoms evaluated, by age". I think thats a good start."

    I love it! I'm going to keep this in mind for future reference for any health-related issues. The internet can be a wonderful thing - but the "cyberchondria" I see on various health message boards is OFF. THE. CHARTS. (I'm on a few for my other health issues - but very rarely, bc over the years I've learned that the more someone focuses on every single bodily sensation, the more likely that person will become consumed - and often obsessed - with health anxiety).

    P.S. my post is not directed at ANYONE here - I speak from personal experience. Just wanted to thank djmammo for his observation.

  • djmammo
    djmammo Member Posts: 2,939
    edited May 2019
  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    still waiting for results... 3 days now since biopsy... hopefully I get them today but I know it can take up to a week and Memorial Day is Monday Been watching a lot of Hulu lol

  • Tmh0921
    Tmh0921 Member Posts: 714
    edited May 2019

    I was Dxthe first time at 27 years old in 1999. There was very much an attitude of “you're too young". Fortunately, my surgeon listened and did a biopsy. I'm convinced he saved my life.

    Never let anyone dismiss you due to age, you have to be you're own advocate.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    my results from my biopsy came back as High Risk benign Papilloma. A Subareolar ductal resection is recommended. I'm glad it's benign, now I'm just curious why is it considered "High Risk"? I thought Papilloma's were "harmless" for the most part. Also I'm curious about the subareolar duct resection process is. My mass is 1cm in/under my nipple. Will they have to remove my actual nipple? Why do they have to remove the entire mass and do ANOTHER biopsy?

    Tried looking up "subareolar ductal resection" but it keeps bringing up "duct excision...etc" or other things that are not mentioned on my pathology report

    Any insight is appreciated. Thank you

  • djmammo
    djmammo Member Posts: 2,939
    edited May 2019

    Sam183

    All papillomas carry a small potential for papillary carcinoma and thats why they are all routinely removed. Perhaps yours had some atypical cells in it that makes it high risk, you will have to read the whole path report or ask your doc to know why.

    Duct excision and ductal resection are interchangeable terms. Subareolar just indicates the location. They will remove the mass and send it to pathology where they will slice it up and examine it under a microscope in its entirety, there is no second biopsy. In my experience nipples are not removed unless a cancer is invading it directly.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    Thank you djmammo. Report says: benign breast parenchyma with dilated lactiferous benign duct with features suggesting evolving papillary lesion favoring Papilloma. Pathology indicates: high risk benign Papilloma. Recommendation: a subareolar ductal resection is recommended.

    So subareolar ductal resection means they will just remove the 1 duct that it’s in? No extra tissue or anything? And after it’s sent to the lab they would call me if anything shows up? I’m just curious about the surgery procedure and recovery...etc

  • djmammo
    djmammo Member Posts: 2,939
    edited May 2019

    Sam183

    I am not a surgeon but I assume that only that duct will be removed unless they feel something else while they are in there. "Evolving papillary lesion" suggests that it may be a papilloma but its not convincing enough with the amount of tissue they got from the biopsy so they want the entire lump so they can get a good look at all of it to make a better diagnosis. After they are done examining it they will issue another path report with their final diagnosis and recommendations. Sounds like this will be a "same day surgery" situation.

  • Sam183
    Sam183 Member Posts: 60
    edited May 2019

    Oh ok thank you. Yes my dr office said it was be an out patient surgery I believe. Just waiting to schedule it.

  • Tg129
    Tg129 Member Posts: 3
    edited May 2019

    hi! I’m new here! I went to my OB in the beginning of April because I felt a long cord-type lump in the upper outer region of my breast. She felt both of my breast while I wasn’t laying on my back (I’m almost certain she couldn’t even feel the lump in this position because all of my breast tissue was pushed to that side) and said my breast feel Fibrocystic but she would sent me for an ultrasound just to be a be sure. After waiting two weeks for the ultrasound the rad-tech told me while performing he ultrasound she could no time find the lump. My OB called me the next day said I just have dense breast. The reason I am still worried is because I don’t feel this cord thing anywhere else on either breast. I also read online that ultrasound can’t always see everything. I’m only 25 and I feel I’m not being taken seriously. Has any other young person felt this kind of lump? It feels like a 2 inch long cord sort of deep in my breast.

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