reconstruction surgeon

lily-lily
lily-lily Member Posts: 2
edited May 2019 in Breast Reconstruction

I was recently diagnosed w/ a 2nd breast cancer, Stage 1 IDC, almost 6 years after my 1st diagnosis. I am fortunate that we caught it early. Since I've had lumpectomy/radiation on the breast already, it seems a mastectomy is my best option. It has been a tough few weeks but I think I have decided to move forward w/ a bilateral mastectomy and DIEP flap reconstruction.

I've met w/ 2 plastic surgeons for the DIEP flap. One that has worked w/ my breast cancer surgeon for many years whom she recommended and the other from a different hospital network here in Atlanta whom she's never worked with. Has anyone used a dr. that wasn't recommended by your breast cancer surgeon and what was your experience like?

For those w/ 2nd diagnosis - how did you decide whether to do unilateral vs. bilateral? I keep going back and forth on it.

Thank you

Comments

  • Ja9831
    Ja9831 Member Posts: 44
    edited May 2019

    I recently sat with the reconstruction surgeon my bs recommended and I did not like her at all. So I went to see another reconstruction surgeon that was recommended by a friend and love him as well as his bs. So although I loved my original bs, I felt I did what felt right to me. I have my surgery in June

  • LAstar
    LAstar Member Posts: 1,574
    edited May 2019

    I highly recommend Dr. Marga Massey in Charleston. I live in Oregon and it was worth the trip. I didn't even go back for Stage 2 surgery because she did such a lovely job at Stage 1.

    I opted for BMX because some suspicious spots on the opposite side were seen in an MRI, but nothing was found in the contralateral breast. Had I known then what I know now, I would definitely opt for a UMX for the following reasons:

    1. I thought of my breasts as a set, and wanted to have symmetry. However, a BMX means double the risk of complications. I had complications on my cancer side that requires a re-do a few years later. I would have deeply regretted removing a healthy breast and then having complications.

    2. It's really nice to have a good arm and strong side when recovering from this surgery.

    3. The numbness in that area took a while to get used to, but it would be nice to have feeling there still.

    These reasons don't take into consideration your diagnosis and personal risk for cancer occurrence in the opposite breast. Your MO should be able to tell you if you have any additional risk that should be considered.

    Some reasons for BMX might include:

    1. Reduced risk, if applicable

    2. Flaps will be taken from both sides of your abdomen regardless of your decision because you will need to be symmetric in your abdomen, so there would not be an option to have a second DIEP later.

    3. If you need to have a reduction or lift to be symmetric on the other side, you could consider going all the way and having DIEP, but it is more complicated to build a breast than to modify a breast.

    Just some thoughts from someone who has had to think about some of these issues. I hope you make the decision that brings you the most peace and emerge with a great prognosis and beautiful results!

  • meeko1452
    meeko1452 Member Posts: 41
    edited May 2019

    I didn't have a DIEP flap, but I DID choose a plastic surgeon who did not work with my original breast surgeon (who did my lumpectomy). I opted for direct to implant with my single MX, so this meant I also had to switch to a different breast surgeon (one who worked with my preferred PS). My initial breast surgeon was COMPLETELY understanding about it, and even called the plastic surgeon I wanted to work with and my new breast surgeon to speak to them personally about my case.


    I am very pleased with my results, and am glad I went with my gut.


    Good luck with your surgery, and I am sorry about your new diagnosis.

  • lily-lily
    lily-lily Member Posts: 2
    edited May 2019

    Thank you, ladies, for your responses. I really appreciate it.

    As it turns out, due to scheduling and me not wanting to delay the date even later, I gave the surgery coordinator the go ahead to schedule w/ the Dr. that my cancer Dr. recommended. Bilateral Mastectomy/DIEP Flap reconstruction. Of course, I am second guessing my decision already and grasping for anything that will tell me that a UMX will be ok.

    Meeko1452 - do you mind sharing your thought process in choosing UMX vs BMX?

    LAStar - your insight is extremely helpful. Do you mind sharing what complications you had? I appreciate your advice on speaking w/ the MO. I will make that appt tomorrow.

    For those that have had BMX, do you still constantly worry about reoccurrence? What was your plan afterwards as far as screening? I was told the future screening would not be necessary w/ a BMX. However, that makes me just as nervous?
  • rrshannon
    rrshannon Member Posts: 117
    edited May 2019

    lily-lily For me decisions are hard sometimes but the decision of a double instead of single after my second diagnosis was easy. A, I wanted to make sure there was no microscopic cells in the other side and B, besides two breast cancers I have had 3 other organs with pre-cancer so I was trying to reduce the risk of yet another future cancer. I was immediately at peace with my decision. I was not a candidate for a DIEP so I did expanders, I did have some complications though it was on my cancer side. I had a rare blood vessel bleed after surgery that required emergency surgery and the removal of my right expander. I feel that the worry of reoccurrence will always be in the back of my mind. Screenings are usually ordered when systematic which doesn't make me comfortable but I am very comfortable with my Breast Oncologist and I also see a Gynecology Oncologist who are not hesitant on screenings to make sure everything is going well.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited May 2019

    lily lily,

    You don’t mention the type of breast cancer you have (hormone receptors/her2) or the grade for either of your diagnoses. I would expect that to factor into the ‘no more monitoring’ idea if you have a BMX.

    In response to your original question, I didn’t use the plastic surgeon recommended by my breast surgeon and I didn’t follow the surgical plan suggested by my breast surgeon. I liked him and he did my mastectomy. He recommended BMX with implants. The PS he recommended was super and supportive but was not interested in doing flap reconstruction. She gave me good information and recommended the PS who did my DIEP.

    LAstar covered many of the things that went into my decision for unilateral mastectomy. Removing healthy breast doubles surgical risk. The flap can fail and it could fail on the healthy side. A bilateral mastectomy with DIEP reconstruction would have resulted in significantly smaller breasts for me. My reconstructed breast is the same size as my natural breast. BMX doesn’t change my recurrence risk.

    Almost three years after making the decision and 18 months after DIEP I am happy with the decision. You need to make the UMX or BMX decision that is right for you. You’ll know it’s right when you aren’t second guessing it.


  • LAstar
    LAstar Member Posts: 1,574
    edited May 2019

    lily-lily, I had a walnut-sized area of necrosis on one side due to small blood vessels in the SGAP hip flaps. DIEP vessels are larger and necrosis is not as likely. The breast eventually shrunk two cup sizes and I had to redo that side with a DIEP, which went very well.

    Adding another item to the "reasons for BMX" list: no more mammograms! I have had two MRIs since BMX but mostly to examine the necrosis. Now I just examine my breasts regularly and try not to worry about it any more. After 7 years, it has gotten easier.

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