Did I make the right decision?

Options

Hi Ladies; I am about to start my radiation treatment next week. My Oncologist gave me a choice-16 treatments or 25 treatments both with 4 boosts. I chose the 16 treatments and was confident in my decision. I am trying to think positively that my SE’s would be minimal. I went for my CT Scan and tattoo markings today and told the radio tech what my decision was. He proceeded to tell me how much I was going to burn (I’m larger breasted) and told me I didn’t need to put on my cream of choice (Aquaphore) until after I got home and I wouldn’t like Aquaphore because it is “gummy”. I’m trying so hard to make choices according to the great info I’ve gotten from this site and staying positive. Now I’m questioning everything I thought I would do. Please help with your experiences and any tips would be greatly appreciated. Especially woman that have shorter but more concentrated treatment

Comments

  • Flower216
    Flower216 Member Posts: 119
    edited May 2019

    Hi Purple!

    I just finished rads two weeks ago and I had 33 treatments. I used Aquaphor and Aveeno cream, which is what my RO recommended. The Aquaphor is a little sticky, and the nurse gave me an extremely soft gauze pads to put in my bra to keep it clean ( I didn't use it much-I just did a lot of laundry!) Soft bras also help! But I did overdose with the Aveeno, partly because it felt cool and soothing. I only had minor discoloration with the boosts, nothing painful. Everyone"s skin reacts differently, but for me, applying the cream 3-4 times daily did work well. Good luck with your treatments...the few weeks will fly by!!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2019

    Don't put the Aquafor on in the day before your treatment because it will increase the burn; but put it on right afterwards (I brought a small tube & smeared myself in the changing room right after I was done), and put some more on before I went to bed. Do it from the start, don't wait until you start to burn. I also bought a small fan & trained it on the area when I started to feel 'hot' toward the end of my treatments. Everyone reacts differently and there is no way to predict who will get a little red & who will have more problems. Either way, it's a short blip in your life; you'll heal and move on. If your radiologist is on board with 16 treatments, then don't second guess your decision (although you might mention to him/her that the techs attitude and comments were NOT helpful). Best of luck!

  • kksmom3
    kksmom3 Member Posts: 183
    edited May 2019

    I am small breasted so I can't speak to that, but personally, I hated Acquaphor. I used it for 2 weeks because they recommended it, but yes, it is really sticky, ugh. I kept having to peel my tank top off of me. Gross. I finally switched to plain organic coconut oil. Felt much better. Acquaphor also stained my dedicated tank tops which I tossed. It leaves a gross yellow stain on stuff, I didn't realize at first that it was getting on my white sheets. Had to toss them too. I have heard that larger breasted ladies do burn worse, maybe because you girls have so much more to burn! I'm a barely B, so nothing hangs or spills over. I do think that has a lot to do with it. If I were you, I'd talk to my dr about the length of the treatments again. The tech is probably right, they see you everyday during radiation, and they know the ins and outs. The tech could have been a little more compassionate. All this to say, I had the 20,16 with 4 boosts. I got good and red, a little peeling, but nothing unbearable. Be sure and use something 3-4 times a day, just make sure nothing is on your skin right before treatment.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited May 2019

    Similar to Flower, I used something 3 to 4 times a day. Applied pure aloe Vera gel right after treatment(it absorbs quickly so I did not get it on the steering wheel on the way home) and used aquaphor the rest of the time. Two other things: wore only cotton next to my skin, including bras and took a warm shower before going for a treatment so my skin was clean. Also, to quote an ancient commercial, "a little dab will do ya"!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2019

    Get some cheapo bras/tee shirts etc. and just toss them when you're done.

  • Butterfly1234
    Butterfly1234 Member Posts: 2,432
    edited May 2019

    I bought camis and didn't wear bras during my treatments. Much more comfortable. Please try not to stress. My treatments went well with only some slight redness and itching near the end. I used aloe for the itching and Shea Moisture coconut oil for skin. I had to get everything approved by RO nurse. Best of luck to you with blessings

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited May 2019

    I bought men's cheapo sleeveless undershirts to wear during rads, under a bra in public and just under my shirt at home. I'm a larger gal and I barely got pink. There is no predictive factor. I used aloe (the 100% pure gel), let it dry a bit, then put on the Aquaphor. I guess it's a little sticky. Big effing deal. Isn't cancer worse? Also, boosts aren't stronger, just aimed at the tumor bed alone instead of the full or partial breast treatment. A lot of women start healing during boosts.

  • Boston12
    Boston12 Member Posts: 22
    edited May 2019

    Just wanted to mention one thing about Aquaphor - it contains lanolin. I've never been able to wear wool and it's the lanolin that's the problem. The only places where I had any discomfort was where I'd slathered on Aquafor. My RO was on vacation, so she didn't see the problem for two weeks. When she returned, she took one look at my breast and collarbone area and identified the problem because it was much redder where I'd used the Aquaphor versus the Aveeno. I switched to Calindular which you can find in a health food store, and the discomfort went away immediately.

    I had 33 treatments and 7 or 8 boosts and had little difficulty, except for reddening of the skin. I'm very fair skinned so everyone expected me to burn, but the redness was gone within a week.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited May 2019

    I've had both the hypofractionated schedule (20 sessions) and the longer 33 sessions and didn't notice much difference in how my skin reacted. I honestly don't think it matters too much what you use--just put some kind of cream on several times a day. I used calendula cream, Aquaphor, and Desitin--just kind of grabbed whatever was closest. I wore soft, old exercise-type bras. I definitely wouldn't buy anything new--they will likely get stained from the markings. Besides, it's fun to treat yourself to something new when you're finished!!

  • cassiecanada
    cassiecanada Member Posts: 166
    edited May 2019

    Hi Purple- I know- the second guessing is agonizing/ I just finished 16 treatments
    ( hypofractionated) and read dozens
    and dozens of posts beforehand.
    The takeway is that each womans
    side effects are different as is
    the choice of creams/ etc to use
    throughout the treatment that each womans sude effects best respond to- and, of course, the radiologists recommendations leading the way!
    So my story is mine alone and if
    it helps in anyway, then i am glad.-
    I still have only barely visible pink
    and no pain or burn despite being
    finished radiation-i realize effects
    sre delayed and am still waiting.In
    the meantime, From day 1 i applied
    In the morning and at night aveeno
    cooling menthol scent free moisturizing
    lotion. ( but not before an appt)- this was
    reccomended by radiologist who told me
    not to use aloe as it is dehydrating.
    Water is in first ingredient of this cream
    which was also recommended. Thats
    pretty much all i did. She said when and
    if redness occurs this week etc- to
    apply pro shield. I have no idea why
    i did not have any side effects throughout
    radiation- its quite possible that
    those that dont, dont post here.
    The bottom line is that when one cream
    etc may not work etc, ask radiologist
    fir another choice and this forum
    of helpful ladies have other great suggestions too
  • jessie123
    jessie123 Member Posts: 532
    edited May 2019

    Purple -- I also just finished the hypofractionated treatment and I'm not having bad SE's. I have just done the first boost out of four. I'm a week out from the whole breast part and still fine --- just kind of dark pink - no itching. Remember the hypo fractionated regime is a larger daily dose, but a total less dose --- so less radiation overall than the 6 week program. Also, I can't imagine having to go 6 weeks - I'm sick of it at 3 weeks. I have large breast and just put the aquaphor on at night before bedtime and didn't even do that until the 3rd week. I do get tired, but that comes and goes - it's not overly severe. Also, I am fair skinned so that doesn't seem to make a difference. Good luck.

  • cassiecanada
    cassiecanada Member Posts: 166
    edited May 2019

    Hey Jessie- we’re done! woot!

    so busy- seems like yesterday

    when i said you were “ leading the way!”

    there is an end-

Categories