Seroma please help ..advice

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NicoleRod
NicoleRod Member Posts: 2,906

I am 14 day post op my double mastectomy. Last night I noticed I have what looks like water like a wave moving back and forth on the right chest. I called the triage nurse this morning it's Sunday she checked with the on call doctor and they believe it probably is a sernoma. I have to call my doctor tomorrow and try to get in to see her. My husband and I live in Hawaii but have been in California for the past 6 weeks for my surgery and recovery. We were suppose to leave next week after I get the oncotype testing results back.

Can anyone tell me if it's possible that I got this because of doing to much to soon? I have been going out shopping and for lunch etc since my drains came out 4 days ago (they came out 10 days after surgery). Is there anything I should be avoiding right now to help this or anything that makes it worse? I sleep on that side (right side) does that make it worse should I not do that anymore ?? Should I go back to sleeping elevated like when I had the drains in?? Can I do my arm exercises?? I have read that the doctor can drain this but it can also just come right back, or they can leave it and it can take weeks or months to go away??

I should also mention I had no lymph nodes removed. Any info you all can give me I would appreciate.

TIA

Nicole

Comments

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    I believe seromas are quite normal and just happen. They can drain it. I got one, had it drained once, it got enlarged again, and then it resolved on its own over the next couple of weeks.

  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited March 2019

    Actually I am a little annoyed at my surgeon right now because she told me I only needed to wear the compression top for 1 day...and I just read on line that I was suppose to wear it for 2 weeks to avoid a sernoma from forming.... I wonder if I can put it back on???

  • CBK
    CBK Member Posts: 611
    edited March 2019

    Nicole

    SEROMAS are super common after mastectomy and a lot of other reconstruction surgeries. I had several and they never caused me discomfort or pain. They are easily drained in PS office with no discomfort or added medications. They should not interfere with your healing and will eventually go away.

    As it was explained to me it’s the body’s way of filling up space where something was taken away. I don’t believe over-exertion causes them either.

    Surgeons vary widely on compression garments and what they suggest, I don’t think you can blame your seroma on that, but give your surgeon a call! Some want you out of compression garments immediately after surgery.


  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited March 2019

    Thanks I did speak to the triage nurse. She said to call tomorrow to make an appointment to see my surgeon this week. She also said I can put the compression top back on (which I did) I figure it can't hurt at this point. Hopefully it will resolve quickly as I was feeling quite discouraged after reading some peoples horrible 1 year long experiences with this.

  • CBK
    CBK Member Posts: 611
    edited March 2019

    A year is a very extreme case I would think. Mine resolved after a few drains. And I had multiple reconstruction surgeries with different seromas!

    If you do need drained again no pain, no big deal, and no drama! Trust me and don’t worry about this so much. It’s a waste of your needed energy.

    Glad you spoke with a nurse!

  • AuntyLyd
    AuntyLyd Member Posts: 1
    edited April 2019

    After a bilateral mastectomy (no dog ears! female surgeon!!) I had one drain removed after 3 days and went home, then the second drain removed by the surgeon a week post-op. At that time she also aspirated the wound. The right side began to fill with fluid and was most uncomfortable, and my surgeon suggested that my GP could aspirate if necessary. After 5 days, I had another aspiration, then 4 more, 5 - 7 days apart. The space just continued to fill, it would not stay empty, and they took between 60 and 100 ml each time, and each time it was more than last. After the 5th aspiration, the surgeon said no more, "you have to let your body learn to absorb the fluid on its own". I am now 8 weeks post-op, and have a seroma almost the size of a breast. It is hard to fit comfortably into prosthetic forms, it sloshes around, which is most disconcerting, and it really gets me down from time to time. There is quite a bit of discomfort, with or without underwear. I cannot find any information about how to encourage my lymphatic system to absorb the fluid, or why it has only occurred on one side. Do I stay still or do I keep it moving? I have tried lymphatic drainage massage a number of times with no improvement, compression tops help comfort wise but do nothing to reduce the seroma or prevent them forming. Help anyone??

  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited April 2019

    Im with you. Ok so mine hasn't filled that much yet. First time it was drained 30ml second time 40ml. I am going to try to just let it absorb. I do wear the compression top all the time and sometimes I even wrap an ace bandage. It doesn't prevent it from filling but I do think it helps. I just wish we knew when it will absorb.

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited April 2019

    I had a seroma form on my lymph node removal side towards my back. I kept my compression garment on and my PS had me layer a couple of pads underneath the bra to create extra pressure there. It resolved without draining in about two weeks.

    But interestingly enough, 9 months later, that is where I can also get some lymphatic fluid buildup after I've done yard work or other heavier activity.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2019

    Dear AuntyLyd,

    Welcome to the BCO community. We are sorry for your complications with seroma and hope that you can find support and helpful information here from our members. It looks like you have received some feedback from your initial post that can be useful. Please let us know if you need future assistance with navigation around the boards. We hope you will stay active here and keep us posted on your recovery.

    The MOds

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited April 2019

    Compression top - where do you purchase that at please? I bought a size smaller sports bra and it seems to be helping. I read to use heat - has anyone else been told this? I've been putting the heating pad on a couple of times a day. I see my PCP tomorrow for my yearly and am going to visit with her about this, thank you. Best wishes to you ladies.

  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited April 2019

    My BS drained it 3 times once each week and I wear a compression top (which I got from the hosptial where I had my mastectomy) I wear it 24 hrs a day 7 days a week. Now it's basically gone. I recommend definitely wearing the top all the time.

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited April 2019

    Thank you, Nicole. I've left a message for the surgeon, just in case. I'm not sure how much pain you have to have to get it drained. I thought I'd ask the PCP tomorrow, I've been off work so much for everything that goes along with this. I hope you are doing well, and I may check into the top, we have a hospital cancer gift shop, I just worry about how much everything costs sometimes.

  • NicoleRod
    NicoleRod Member Posts: 2,906
    edited April 2019

    I got mine for free after surgery. Good luck I hope it gets better soon.

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited April 2019

    Thank you. The nurse called me and told me ice and not heat. I am going to try that when I get off work, just in case anyone else might use that information. Thank you, Nicole.

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited May 2019

    I went in and had my seroma drained yesterday, 4 large syringes of fluid. He told me he'd see me back in 2 weeks and we could drain it again if needed, but if the fluid keeps coming back with a large volume like that, he would put in a drain. Do you have to have an outpatient procedure to have a drain placed? I know, I should have asked him that, but sometimes I just sit and my mind doesn't work right. Thank you. It feels so much better!!!!!

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited May 2019
  • MDRR
    MDRR Member Posts: 133
    edited May 2019

    i developed a seroma on one side following my surgery. My mastectomy drains were removed after just under 3 weeks, but one side continued to fill up. It was drained 4 times, and on the 4th, she put a smaller drain back in. All in all I had the seroma for approximately 10 weeks before it just calmed down. My understanding was that it's just something that can develop in the body when tissue has been removed. They had me wear compression the entire time, but that didn't really stop it. Putting that drain back in is what finally seemed to do the trick for me.

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited May 2019

    Thank you, MDRR. I appreciate that. I spoke to a nice nurse today at the radiation oncology office, who told me to put that hand in my pocket. She said she had a drain many years ago and had a seroma and that was the advice of her doctor. She said it may not fix it entirely, but it might help - worth a try. Wishing you the best, thank you, Lisa

  • MDRR
    MDRR Member Posts: 133
    edited May 2019

    I forgot to address one other thing in your post -- when they decided to reinsert a drain, it was done in the surgeon's office. It may have been done that way because she's such an experience breast surgeon -- for something like 30 years. I say that because the much younger surgeon in the office who has less experience was going to observe to see how it could be done in the office. That makes me think that it could be unusual (but lucky for me!) that it was done in the office.

    Hang in there -- the seroma drove me crazy because I wasn't allowed to do anything with my upper body as long as it hung around; and I needed to train for a backpacking trip to the bottom of the grand canyon! fortunately it decided to clear up just in time for the trip. But it seems like forever as you watch it fill up every time they drain it!!

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited May 2019

    Thank you so much, MDRR. I'm glad your seroma cleared up so you could enjoy the Grand Canyon, I bet that was beautiful! Thank you for your help, and especially for understanding! It is filling up again, and I bet my radiation gets delayed. Best wishes to you, Lisa

  • rrshannon
    rrshannon Member Posts: 117
    edited May 2019

    MissouriCatLady Did you end up using a compression garment? I went into BS for a hematoma today and she drained that under ultrasound then found 2 seromas one on each side near my under arm. Both had 50cc of fluid. She then wrapped me up and I feel more pain than when I went in. :( She said she might drain them again on Friday that they probably need to be drained a few more times, especially the right side as I had to have my TE removed from that side and she said when there isn't an expander it is easier for the seromas to come back. Oh the joys for recovery, I was hoping to go back into the office this week at least part time but after all the draining I just came back home and worked from home instead, as she told me not to over do it this week.

  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited May 2019

    RR Shannon - I am sorry you are having trouble with this too. I read a lot about sports bras in the last week and have one coming in the mail today. I have one I bought at Walmart, but it is so tight and has a zipper, sometimes it is hard for me to get it on. That is the only thing my nurse navigator recommended, supportive bras - all the time. Nobody warned me about seromas, but we are learning. I empathize with you, I was supposed to start radiation in about 2 weeks. Mine is filling back up too. Hoping yours and mine go away soon. Hugs, Lisa

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