May 2019 Surgery Support Group
Hello Ladies,
I will be having a BMX May 6th. I am curious, do I need to get a post surgical bra before or after my double mastectomy?
Are there any other must have products I should plan to get?
Comments
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Hello - I meet with my surgeon May 10th and anticipate surgery before the end of May. I haven’t received my surgery date yet, which is making me nervous since I finished chemo 4/11 and don’t want my tumor to have a chance to start growing again. I’m having BMX with no reconstruction, and likely full axillary lymph node clearance on the right, since one node was already confirmed positive on my original biopsy. Radiation to follow this summer. Looking forward to getting this all over with
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I was fitted with a post-surgery bra by my surgeon/nurse immediately after surgery. I'd ask and see if they do that. They're pretty expensive considering the time you'll be wearing one (just a week or two), so getting one free is great.
I bought one of those Amoena zip-up camisoles with the drain pockets just in case - I only wore it a few times (like when I was washing the recovery bra).
Other than a bra or top that holds drains(and a lanyard for the shower), I only needed front-close tops and loose fitting pants (pj or exercise). If you want to sleep in a nightgown, you'll need one that buttons or snaps up the front. Slip on shoes are best the first couple of weeks. Your arms will be weak and bending is not comfortable.
For med supplies: a big bottle of Tylenol, and a small one of senna (or someone who can get it for you if you need it a few days after surgery). The visiting nurse brought me a supply of gloves, gauze pads, and tape for drain care.
Get yourself a nice treat, like cookies, if that will make you smile and feel better when you're stuck close to home the first week or two. One of those cheap word puzzle books is good for passing the time and exercising your brain.
You'll need someone to open pull-top cans and jars and sealed snack bags that first week when your arms and hands are weak. I have heavy plates and glasses, and using paper plates and plastic cups was easier.
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Hello ladies,
I am 39 years old, recently diagnosed with DCIS, my UMX is scheduled for May 10th. I decided to go with tissue expander.
Somehow the phone call confirming the date for my surgery was the worst one, I think with the date things start being real?..
Maybe someone wants to share how you are planning to spend the days before the surgery? Work till last moment? Take some time off? Go somewhere? I told my family I'd probably like to go somewhere with them for a weekend just before the surgery. And hopefully will take a couple of days off to get my house in order.
Good luck to all of us!
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I'm scheduled May 6th for BMX bilateral mastectomy. My husband needs to use up his vacation time before the end of June. He wants to do something before I have surgery. I have several doctor appts, and need to get this house in order... Want to cook plenty of dishes to freeze. My hubby is spoiled. I do all the cooking and cleaning. So I told him maybe in June we'll do something. Hopefully by that time I will be up to it.
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Hello everyone! I am scheduled for Unilateral MX with sentinel node BX and direct to implant prepectoral silicone implant on May 9.
On March 4, I had a concerning area on screening mammogram, which was biopsied that day. My path came back as a ductal papilloma with atypia, so excisional biopsy was done on April 18. I was blindsided with the DX of extensive, high grade DCIS with necrosis and without clear margins. My surgeon and I agree that unilateral mx is the next best step.
I will be working up until the day before my surgery. The weekend before my surgery is my 48th birthday, so I suspect DH and I will go camping that weekend.
It is nice to meet all of you, and I am looking forward to hearing about everyone's uneventful recoveries. We've got this!
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I just saw my Breast Surgeon...First it was to go over the paper work, then the nurse realized I didn't have a L-Dex test done for lymphedema. So they immediately had me see another nurse to do that...No sure if it is covered under my insurance. Did it anyway to be sure. I have lymphedema in my left leg. The test was good, but do need several for 3 yrs after surgery.... After that asked to see the Dr.... He was busy, waited, he did sit and took his time with me... I told him I want to be flat... he looked at me like I was crazy... I told him no extra skin... He said he does leave extra skin Just in Case you change your mind... I told him, I am not changing my mind... I know what I want... No dog ears, no flabby skin left behind... He then agreed... But said I would need a plastic surgeon who will do the flab under the arms..getting rid of the hard roll of fat.. They call it Dog Ears. The BS won't touch that.... So they made an appt May 1st... I asked if he accepts my ins... They weren't sure.. Now looking on line, He Doesn't! I don't want an out of pocket expense of thousands.... So tomorrow I need to call the plastic surgeon office and see about the ins... If not cancel that appt - call back my breast surgeon and get another ps who does accept my ins.... This all has to happen before May 6th.... Headaches...
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I’m having a lumpectomy and reduction on May 20th. As it happens we have tickets to see The Who in concert on May 18th. I thought that ended up working out pretty well.
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JulieSim
I’m awaiting my surgery date but it will be scheduled for the week of May 20th. What to do before surgery? Deal with work, house in order, take a trip? My head is spinning. So overwhelming.
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I saw my surgical oncologist yesterday, we went over everything with him, did bloodwork and ECG, I don't think I have more appointments coming, and the surgery is two weeks away.
Today is my last day at work, I haven't been sleeping for a while and there's been a lot of tension going on with my little kids, so I decided to stop working earlier. I am potty training my little one, catching up on their appointments, taking some time to get my house in order, will send my dentist next week..
Funny enough, I have registered for weight loss program in March, day before I got diagnosed
no need to say, I gained even more weight
started with sciatica and everything.. I was already given post op exercises by PT, I want to start exercising a bit before the surgery.
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meeko, Paris and Lisanicole, we wanted to extend a warm welcome to the BCO forums!
We're wishing you the best of luck with surgeries. If there's anything you need help with or have any comment for us, please feel free to contact us. We're always here.
Best wishes,
From the Mods
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I went to the breast cancer "boutique" in the city today and to get fitted for my postoperative compression bras. Holy cow...if anyone ever needs a sports bra that doesn't let your breasts bounce even a little bit, these bras are the way to go.
My surgeon had recommended two different styles. They are going to file insurance for the more expensive one (I think the Patrice?}, and I paid for a slightly less expensive one out of pocket so that I will have one to wear while I am washing the other one. I made it through the whole process without crying, so that was a win.
BS also said that underarmour makes a nice zip front compression sports bra, but my normal bra size is a 40 or 42 B-C, and the underarmour one only went to a band size of 38 and I didn't want to risk wearing anything too tight.
They also had better button front PJs and loose, lightweight button front tops that I had been able to find at Marshalls or Ross, so I picked a couple of those up, as well.
My insurance, BCBS, denied my genetic testing. BS said they usually deny it the first time and then approve it after the appeal. This is the sort of thing that would usually stress me out, but from this whole crappy breast cancer experience I am trying to be less anxious and irritable to to trust that things will be okay, so I am just going to let my BS handle it for now.
Tomorrow I will finish planting tomatoes and peppers and some flowers in the garden, then DH and I are going to scrub the house so we don't have to worry about much as we get closer to surgery.
I hope all of you were able to find some joy and beauty and worry free moments this weekend!
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Julie, having a little extra time with your kiddos before surgery is a GREAT idea! Hopefully the weather will cooperate and you can spend some extra time outside with them (which will also be great exercise, as a bonus!). Enjoy every minute with the little ones, and don't fret too much about the toilet training. You can always start up again after you recover, and whenever someones asks if there is anything they can do, you can tell them they can change diapers for you
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Nice meeting all of you!
Pinky24, do you have your surgery date already?
Meeko, I ordered my post op bra a couple of days ago, my size was tight, I ordered one for now and will decide about the second one later. Nurse in the hospital suggested to go one size bigger to avoid extra pressure and pain, however I wasn't sure about it. I am also not too sure what to wear through the whole process, I am doing single mastectomy with tissue expander, how it's gonna look and feel if I go one size bigger with the bra?..
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Hello nice to meet everyone. My surgery was supposed to be in April but has been challenging coordinating BS, PS, and the hospital's schedule. My surgery date is confirmed for May 14. I've purchased button up pj's and tops. I purchased a few hook and eye cotton bras from walmart that are very comfortable and I hope to be able to wear them post op. I also purchased a wedge for my bed so I can feel more comfortable sleeping on my back since I'm not normally a back sleeper. I've significantly reduced my work schedule and I hired a cleaning person because it will drive me nuts not being able to lift a finger and I can't rely on my husband to do it since he will have his hands full with our kids. Etsy and Amazon have lots of post surgical and post mastectomy items. I've been keeping up with exercising, acupuncture,therapist, and chiropractor appointments to build up my immune system to prep my body both physically and mentally for the surgery. I'm glad to be apart of this group knowing that we will all be going through this together within the month of May. ((Hugs)) to you all.
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I don’t have a surgery date yet; I have my MRI and echo tomorrow, bone scan and CT Thursday, then meet with surgeon a week from Friday (5/10). Hoping for a surgery date either the week of 5/13 or the week of 5/20. I work at a school and plan to take 2 weeks off, so I’m hoping I can make it back for the last week of school. I wish I could do something fun like take a quick vacation during this time, but I’m out of sick days and having to take unpaid time off now. Maybe after I finish radiation we will have time for a getaway before school starts up again Hope everyone is doing well and feeling prepared for surgery!
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Hello!
My BMX is tomorrow May 1. I had my Setinol node injection this afternoon, sent off my kids to a friends house for a sleep-over, and now trying to get ready to go to sleep so I can get up tomorrow at 4:30am for 5:50am check-in time, for 7:30am surgery.
I am also having immediate reconstruction and requested for pre-pectoral (over the muscle) expander, my PS said he will have to see the condition of the skin and will try. I hope I do.
Mixed emotions.... I think I am ready as one can be in this situation.
Wishing you all ladies best!! -
Tiggie, Thinking about you today! Be gentle with yourself while healing and check in when you feel up to it!
Spratt, It sounds like you are doing a great job taking care of yourself mentally and physically preop! I find myself doing "2 a day" workouts for the first time in my life because I want to be in great shape for the surgery!
Pinky24, I hope that the scheduling works out for you and that you get a relaxing vacation!
JulieSim, it seems that my BS and PS are both big believers in postop compression, so my postop bras are a little smaller than I would have liked, but I'm sure it will be just fine either way. I know for sure they aren't super comfy and I will be happy when I get to wear something more comfortable.
This weekend is my birthday, so we are going camping and HOPEFULLY I can not think about cancer very much and just enjoy myself. I hope all you can do the same!
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Good afternoon ladies -
I am scheduled for a lumpectomy on May 8 and while I consider myself very fortunate to be in the situation I am in (as opposed to some of you who are further progressed and are experiencing much more drastic treatments) I am still scared. Not scared so much of the surgery but I’m scared the pathology will come back worse than it was originally thought. I also had the genetic testing done and now im worried insurance will not cover it.
I’m trying to focus the next week on my workouts and hitting them hard while I can as I know I won’t be able to lift or run for a bit. Also trying to stop fretting about the unknown.
Good luck to you all
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Hi Ladies,
I’m scheduled for a single mastectomy with sentinel node removal first thing tomorrow morning. I went in today for my four radioactive injections. I was super nervous up until that point, but now I’m just tired and want to get it over with. My biggest concern isn’t the pain or the actual surgery, but how long it will take me to get back to being able to do everything I do. Next week is going to be a tough on my kids I think, depending on how functional I am. Good luck to everyone else here! It’s so nice to be able to see how others have done
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Tiggie Wishing you all the best. Please let us know how it's going, when you're up to it.
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Mumoftwo416 Hope all goes well tomorrow... may it be easy breezy for you.. and that you have a quick recovery.
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Good luck Momoftwo, hopefully everything goes well tomorrow. I feel the same, can't stop thinking about the kids and how they will adjust. Let us know how you are doing when you can.
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Today saw the plastic surgeon, he agreed to do the surgery along side my breast surgeon. Very surprised, here it is Wednesday and the surgery is all set for Monday...
Told him I want to be flat and no more surgeries... He said he'll be doing the T incision.
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Thinking of you, Mumoftwo and hoping today's surgery goes smoothly.
Christene502, I am so happy your PS listened to you and will be working with your surgeon. I am definitely going to tell my BS and PS before surgery that if for some reason they get in there and decide I am not a good candidate for direct to implant, prepectoral reconstruction, I want them to just leave my left side as flat as possible (I'm not a candidate for nipple sparing anyway because the DCIS is too close to the nipple)
CMCK1973, I totally understand the anxiety about pathology. When I went for my lumpectomy, my BS and I were SHOCKED at how large the area of DCIS was (the core needle bx hadn't even shown DCIS, only a papilloma with atypia). So now I am terrified that the pathology after my MX is going to be much worse than we think. This whole thing is an exercise in trying to teach myself optimism. Best of luck with your surgery next week, and let us know how it goes.
Also, my heart goes out to you all with kiddos. I know that must add a whole layer of complexity to recovery for you. Remember that kids are amazingly tough and resilient. Try to send them out on fun outings with friends and neighbors to give them a chance to burn off steam and to give you a chance to rest. And remember that during recovery the best thing you can do for you kids is to take care of yourself.
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I want to wish everyone good luck first. And for those of you who've had your surgery already, I hope your recovery is proceeding well, and that you're sleeping and not in too much pain.
I'm scheduled for a lumpectomy, sentinel node biopsy, and reconstruction on May 10. I've never had surgery before. I've never had general anesthesia. I'm a bit freaked out, but also surprisingly calm. I sometimes think I must be in some kind of denial, but that's not possible because I think about it a lot and of course I'm doing all the preparatory things and appointments. Today was my last multi-vitamin, baby aspirin, curcumin supplement, and green tea for at least a week. Sheesh.
I took advice here to heart and bought a wedge pillow and a top that has pockets for the drains. Not sure how many drains I'll have, could be just one, or none. Could be as many as three. I'm prepared either way. I also learned here of the studies suggesting that morphine may not be a great idea during breast surgery so I discussed it with both the BS, who said they don't use morphine, and during my presurgical consult with the anesthesiologists office. I didn't want opiates anyway, as who knows how I react to them. There are other options.
Anyway, I'm rambling, I apologize. I have zero clue what to expect since I've never had anything done and that really sucks, being in the dark. I'm so grateful to those of you who share your experiences so that I can at least have some idea.
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I had my pre-op scans yesterday and today - MRI, echo, CT, and bone scan. The bone scan took a lot longer than I expected. After he did the full body scan, he did additional pictures of my head and my arms. I’m thinking, my arms? You think I have cancer in my arms?? Then he went to show the pics to the doctor and find out if they wanted any more (like maybe my toes?) and that took a long time, which of course starts my mind racing. All of the waiting and uncertainty is really getting to me. Cancer sucks
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meeko1452 On Facebook, I have joined several breast cancer groups. It's not for me to say, but want to share with you what I have read from other breast cancer ladies who have had implants and most have major issues with them... and most are having them taking out... going flat... I am so surprised, young girls, in their mid 30's, 40's, even one in her 20's... One lady showed her surgery after the implants taken out and another of the revision. Tattooed nipples since there weren't able spar.... I was told by my B/S that they won't spar mine... I might get a pretty tattoo..
Good Luck to you...
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Recovering from 5/1 BMX and immediate reconstruction, going home today after 2 nights stay due to very blood pressure of 80/40. I think BS would have let me go after 1 night had I invited but I am glad I stayed 2 nights, I don't think I would have been able to manage as well I was way too exhausted and woozy and it was good to have nurses checking in on me regularly, helping me with bathroom, and getting things as I needed. Would not have had that kind of luxury at home with 2 kids...! The pain wasn't bad, I tolerated it with just Tylenol, felt like I had bricks on my chest making it very difficult to breath.
BS came in this morning with a pathology report (quick!) and said all is clear and said I am "cured". wow. PS said that he was able to pace the expander pre-pectoral, spared all skin and nipples. He said once the expander is filled and the exchange for implant happens, it won't even look like I've had surgery.... something to look forward to I guess, because it certainly does not feel like it now. I can see and feel the shapes of the expander in my chest... hopefully that will be filled out in the next few weeks.
Good luck to everyone in your surgeries! I will keep you posted on my recovery at home....
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Tiggie You brought tears to me eyes saying you are Cured.... I dream my Doctor will say that to me, but I know that's not the case.
Glad you weren't in much pain... Hope that goes well with everyone else including me.
Hospital called - my surgery is scheduled at 7:30 am, Monday....
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today is Friday and everyone around me is happy that it’s the weekend but all I can think about is having surgery and I just want to get it over with. I’m full of anxiety, I’ve had outpatient surgery before and it was no big deal, this feels much different. PMS is not helping either...all I want to do isn’t cry 😭
Mom2bunky good luck to you, I think the anesthesia is the best part of surgery....it’s like a nice long nap 😴
Meeko1452 wishing you the best on your results
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