Bone Mets Thread

Hi Lauren - I will try to find the article. AMP

Just wanted to connect a bit, as I have mets to bones, and also some of the unwelcome issues others have. Sherry, I have. had stomach problems for the past year. I have lymph node mets all around the midsection. I never had problems with digestion or belly pain until this year. It does tick me off. I take a double dose of Protonix now, by rx. It feels like what ulcers must be like. I hope you get some relief soon. Food is such a big part of life's pleasures for me, when my appetite is off or my sense of taste is skewed, I get a tad despondent! Stomach irritation is just the last straw sometimes.

Best of wishes to everyone here, I will read back as much as I can so I know more about what's been discussed here. Big hugs

Gailmary & Miaomix

Thanks a lot for all the information.

It's been amazing to be in this group.

Sherry--Sorry to hear about your stomach mets.

We really do not know that we can find it somewhere in our bodies.

My PET scan results said it is essentially resolved but when I feel pain in my bones and head,I think the cancer is gone to my bones and to my brain,I am very scared all the time.

Janet

Jaylea...I've been thinking about you and wondering how you were doing. So, I guess you still have the feeding tube? Hopefully, that will end before too long. You are a real trooper! I don't think I've ever hear a complaint from you during your journey. Continued thoughts and prayers heading your way!

Hope

Hi everyone, I had liver Mets, but have been NEAD since May 2016 when they removed the tumor. I have lymphedema that is semi under control, but it causes a lot of problems because it goes up into my neck...

Anyway, I have a new achein my upper left arm (cancer-side) and am going to have a PET to see if I have mets there. My question is, can it cause a lot of pain? It’s almost like it got worse once I knew they needed to scan.

Sherry, I just lost one of my best friends to esophageal cancer (primary). She had so much more time than they gave her! There are so many treatments too handle side effects, please make sure you bring them up at your doctor visits. I pray you will live comfortably until they find a cure! Sleep well, everyone

Lily...I did “the bad chemo”, radical double mastectomy, radiation, herceptin infusions for a year, tamoxifen, then was started on Arimidex. I quit Arimidex because of SE. I am osteopenic and have broken my tailbone and my right wrist four times with six surgeries because I always break it at the end of the plate and screws...always both bones. My treatment/surgeries started January 2010. My breaks started 2016. I’m not sure if this helps? Please keep in mind that everyone is different and that God is still in the healing business. Hugs!!!!

Good morning,

I want to apologize for my comment to Sherry earlier. I did not mean to hurt your feelings, I’m truly sorry

here here! I second Mae’s sentiments!!

So important to be able to acknowledge one’s role and say we are sorry.

Lots of love from Philly muaaaaa 😚

Fighting a little cold (or is it allergies?? Meh!!!) I just want it to be gone already.

Thank you TNMTNGAL........its hard to know what is good and what isn´t.......I could not tolerate Arimidex either

You are welcome. I agree, onward and upward.

Philly, so sorry you have a cold. It seems mean to add insult to injury with being sick!!! I hope it goes away soon.

One of the things I hate most about BC is that nothing can just be sore or a pain, it’s all something we have to watch and wait to see if it becomes something else that we have to worry about.

I am waiting to get a PET CT because I have an ache in my left arm (cancer side). My therapist could not manipulate my arm to change the pain and it hurts at rest, not when I’m doing an activity It always seems to be something.

ichangedmyname, I am the biggest baby with a head cold ..well really a stuffy nose. I was in labor and whined more about my stuffy head than the labor pains..doesn’t matter what color It’s so annoying


I am now. Having GI symptoms that have me worried about mets to intestines. Bone pain is increasing on my left side. Suddenly it’s mid femur and mid calf. Of course I had another spill and hurt my knees so that may be it. I have to calm down. I’m going to visit my new grandson soon. Having herceptin and xgeva 2 days before. Doc offered to switch letrozole to aromasin. I’m afraid to change anything.

Suddenly I realize it’s exactly 2 years since reccurance. 24 months and I’m afraid the bottom will fall out. Ok I’m afraid . I’ve been lucky so far. Maybe it was the person from my insurance co who kept insisting on a home visit by their nurse. After declining 3 times I just flipped yesterday and said. “I have stage 4 cancer..if you can’t fix that leave me alone” That was very rude and mean to the woman on the phone just doing her job so I apologized and hung up. I really should have said it to the company president( as if they care) It hit me very hard.. I try not to say Stage 4 around anyone.

Grateful I can say here what no on wants to hear. Not so brave today. I’ve had a good life. Just so many symptoms that may be nothing.
Take care all my mets sisters.
Maire

Thanks a lot JoE777

have a good weekend.

Thank you Daniel86 that you tube video from the conference was great. I will follow up with my mo. So informative.

Mycells many of us had horrible bone and joint pain when first starting on Herceptin/Perjeta, although usually in the lower half of the body (hips, knees, legs). It's scary when you have extensive bone mets, but it seems to be some kind of reaction to the drug because it happens to a lot of us. Once my body adjusted to the treatment it was no longer a problem, took about 4-5 months before it eased up for me. Several women here recommend Claritan for the bone pain and it does seem to help.

Amarantha, what a delight to hear from you. I often think of you and your DH and hope you both are doing well. Sorry to hear about the spine mets, but likewise pray the Xgeva is merciless on them and kind to you. xoxo