Weekly Taxol group

Yeaay Yndorian......way to go....xx

I take 1000mg Vitamin B12 and B6.....and I take a powder probiotic at night but have terrible numbness for first three days on one arm and hand.....but it wears off to just a shadow of what it was, however it never goes........

My hair has been falling out so fast so today, just one week after it started falling out my friend cut the rest off so we have some long hair lengths to use now stuck on to a cloth hair band to maybe make a fringe to add to a hat.........I feel better with it all cut off but look awful and struggle with it being another thing lost.......

I am really trying to be 100% eith this and I do think the chemo is having an effect on the mets......anyway its 2am here so I am off to bed....

Good luck to everyone having a treatment this week.,,

For those of you that are taking B-6 and/or Lglutamine, do you mind sharing the study that says it helps with neuropathy?  My ON says there are no true studies that show a correlation.  I have searched online, but have not been able to find a credible source.  I would like something to show him, as he only says that exercise for 30 min a day is the only thing that has shown to reduce neuropathy.

Thanks for sharing Mncteach!  Going to the beginning of this thread it appears the regimen has been given all the way back to 2012.  I would think there would be something that supports it by now.   I am icing, but I would like to do all that I can to prevent it.

THANK YOU!!! PatinMN-I really appreciate the link and insight you have provided. 

Nanomom11: I didn’t have hand foot and mouth. I did have a serious chemo rash. The top layer of my skin came off my right arm up past my elbow. I also had bumps all over the tops of both hands and wrists and some on my feet and legs. I also started to get some neuropathy after treatment 10. The MO reduced my Taxol by 20% for the last two treatments. My last treatment was a week ago. Most of the rash is now gone. I have a very small amount of tingling in my feet and hands. The reduction worked for me.

Nano--After my 1st Taxol treatment, I had slight tingling in my left foot.  The ONC said to take B12 500-1000 so that it would not be permanent.  I've taking the B12 and now I rarely have tingling.  I just had my 9th tx today.  But to be fair here, I am MBC and to my knowledge we get lower dose's than early stage.  I know that my dose  is 126.  In the first few weeks I really had no SE's except slight fatigue on day 3/4.  BUt these last two sessions have caught up with me.  Now, I was fighting extreme depression for the last 5 days of each cycle.  I layed in bed and didn't care what happened. ( I've dealt with depression for over 30 yrs, but this felt different)  So, at my infusion this a.m I asked ONC if the steroids caused depression like that. She said that was a possibility so she halved my dose of Decadron.   I'll let you know if it worked. 

Annie-- I'm so sorry this has been so hard on you.   Sending big cyber HUG to the both of you. GOD Bless.

Kber,

thanks, that’s reassuring. MO reduced Taxol to 80% for last 4 treatments due to neuropathy and hand/ foot syndrome. Plus, pneumonitis still a bit of a bother. Thus, dosage reduction has helped to manage through. Although, I definitely can feel chemo accumulation getting to me. Nearly done now. 3 more rounds to go.

Kber: I'm planning to drink oral DMSO every day after finishing chemo. DMSO is a great font of organic sulphur wich is an essential tissue builder. I didn't drunk it during treatment because it causes corporal odor very noticeable. I'm now having MSM, which is odor free but it isn't the same. You can try dmso cream in your hands and feet. If you search in google you will find that dmso has an accion against cancer too.

Good luck with your last taxol tomorrow. I complete understand you, I'm feeling like you. I have my last on monday. Send you kisses

LoisWB Hi and you are only two behind me, my oncologist refuses to say how many sessions i will have just says we need to see what happens which i am finding hard.......as there is no goal or date to work towards....

I am on a break this week and its now day 9 after my last chemo........and i feel pretty good, had a fairly busy day yesterday and did more today too....so at least I know that it is having a positive impact......which helps.....

Lily55, I'm glad you're feeling ok. Take it easy and let the chemo works for you. Send you kisses

Angie-I have also been struggling with hand/foot issues that are really bothering me in my right foot. My symptoms are extremely cracked and peeling feet on the bottom and a completely numb toe. My nurses seemed like they were ok with it and said to put lotion on the bottoms. I went on with tx 7 but I’m worried about progression. What are you doing for yours? I’m thinking about asking for a reduction also. Did it help your symptoms

nanomom,

neuropathy was very mild at beginning of Taxol. Only since last 3 round or so that I’ve really noticed hand/ foot syndrome. More so of numbness and pulsating warm hands with pins/needles on the soles of the foot. Sometimes, it feels like I’ve got really thick gloves on. Finding that I can’t grip on to things very well. Oncologist has not prescribed anything special, so only taking vitamin B supplements. Not sure it’s helping that much.

I try to exercise at the gym once or twice a week to help with cardio and overall strength training. Can’t be certain that it helps with neuropathy, but at least helps to keep muscles from becoming too weak.

I do feel that the neuropathy is starting to become more noticeable. Oncologist agreed to lower dosage to 80% for last 4 rounds. It’s only been a couple of days since treatment #9, not really sure there’s a noticeable difference yet. Only 3 more rounds to go, so hoping neuropathy won’t become a long term problem.

Definitely is worth discussing with MO regarding how much neuropathy is affecting your quality of life. Hang in there! We’re almost at the finish line. Sending you lots of healing energy

SLLO - a number on people on the boards have reported their neuropathy starting or getting worse after Taxol ends. I meant to ask my MO about it and forgot. You reminded me to bring it up next opportunity.

Good luck with everything!

I think I notice my neuropathy more after chemo because my head was beginning to clear up (from chemo brain). I have better days now 14 weeks PFC but occasionally it likes to remind me with numbing pins and needles in my hands and throbbing feet that it's still hanging around

Margun I had my first Taxol yesterday. It went well and so far I feel fine but I didn't have many issues with AC other than loss of taste and constipation caused by the anti nausea meds. Everyone is different. I hope Taxol is easier on you