I am really tired and angry!

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After this BC journey, I really wanted to start living a normal and happy life, but nothing will be the same again :( I am really afraid of everything concerning the health and almost every month I find something new to worry about. I had my check 2 weeks ago. Everything seemed to be ok, my results were perfect and just 3 days later I paid attention to a mole on my cancer breast that had been there at least 4 years (I do not remember before the surgery) and I do not know why this time I decided it's not ok. I went to 4 dermatologists and their opinion was that it's atypical, there are some changes in the middle, and it might become melanoma at some point. They said it's not urgent, but I have to remove it. Of course, I could not wait. I went to my plastic surgeon and he removed it. Now I am waiting for the pathology results and only melanoma is in my head. I think it's already melanoma and they did not see it very well. I am really afraid that there might be some cancer cell there.

And I am angry because i do not believe anyone that it will be OK, even the doctors who were not in a hurry to remove it. Even my oncologist must have seen it during the last check and hope he would react if it was so bad. I am really tired of my hypochondria. How to calm down?

Comments

  • illimae
    illimae Member Posts: 5,710
    edited April 2019

    Yeah, isn’t cancer PTSD fun?! While, I think you’ll have to talk yourself off the edge more often now, the frequency should subside over time.

    My first thought is usually new/more cancer too but I make sure to consider what’s most likely as well. A pulled muscle is much more likely to cause my neck pain, than cancer in my neck and upon further checking (follow up and neck ultrasound for a thyroid issue), a pulled muscle is exactly what I had.

    It will get easier.

  • Peacetoallcuzweneedit
    Peacetoallcuzweneedit Member Posts: 233
    edited April 2019

    Yeah - I do this too.....when I find something - and there has been quite a few things since my diagnosis - I have to consistently apply the voice of reason to the fact that "probably my bun was too tight today and it isn't scalp mets, and that is why my scalp hurts" or "if the rash clears in three days it isn't mets" then I challenge myself with --> wth you had cancer in both breasts and your cervix at the same time....um being cool about anything isn't in your cards." then I get all panicked, then I have to calm myself down......sucks....because that is the cycle....which I am hoping continues to subside the further down the road I get....I hear you 100% - sending calm seas to you...because riding the rough waves can take it's toll....

  • Alicethecat2
    Alicethecat2 Member Posts: 105
    edited April 2019

    Syringa

    Well done for being proactive. You saw a mole. You got it checked out. You got it taken off. Good. What more else could you have done? Nothing. It's natural to be vigilant after such a shocking experience.

    Your first doc wasn't in a hurry, which is a good sign, but you were proactive when you heard it had to be removed. Good.

    I'm a few years ahead of you. As time goes on, BC recedes into the back mirror.

    Alice

  • Syringa
    Syringa Member Posts: 29
    edited April 2019

    Thank you ladies! I know that I have to get used to this situation somehow. I know that I am a human and I have my pains, moles, rushes that are normal for everyone who is alive. But this pessimism, fears, mental weakness....they are really killing me slowly and worsen my quality of life. And this is not only because of cancer. I've always been like this. I even think that this emotional weakness I've always had, brought my cancer. I have to learn somehow to be over the things - not to imagine all black scenarios for every situation.

  • beep7bop
    beep7bop Member Posts: 130
    edited May 2019

    I am not happy today either, I have had four surgeries in a month 5 in the past two months if you count core biopsy. I am in pain, sick of the hole thing have four doctor appointments next week so far, this is taking up my whole life. I want to go see my mother in Az. She and I were going to play Bingo when I went out there but then all this came up. We spend our Birthdays together this time of year. I missed it she is 89 and I want to spend time with her. She won't come live with me, she likes being in her own home and I understand that. It's about the only thing we agree on but we love each other and like Bingo and the slots. Turned out I had Bilateral cancer in multiple areas of both breast and both IDC and ILC so that makes it invasive mammary. Go figure. Oh I am sorry your having a ruff time of it right now. But hey we will pull it together because that's just what we do.. Hang in and feel better.SickTiredDevilLoopy

  • wallan
    wallan Member Posts: 1,275
    edited May 2019

    Hang in there my dear. It does get better over time.

    Don't be so hard on yourself. Your so called "emotional weakness" is not a weakness. Negative thinking, jumping to conclusions is something all humans do. I think you are so lucky to recognize it in yourself. That is a huge step forward right there. Not to mention admitting it.

    After cancer, it is natural to wonder if every ache or change in your body is cancer returning. Why wouldn't you think that? Getting the mole removed was proactive and an advocate for yourself. You are not crazy. You are normal. Being worried and anxious is the usual course of events after BC treatment. And if you had anxiety or worry before BC, well, now you have an additional worry to your list. But this particular worry will fade over time the further out you get from your diagnosis. It will never completely fade, but it will be much less intense.

    Hugs to you

    wallan

  • rockymountaingirl
    rockymountaingirl Member Posts: 78
    edited May 2019

    Syringa, as the previous comments show, we are all in a similar situation: we have been forced to confront the fact that very bad things can happen to us, and it is really hard to forget that lesson once it has been learned. So we become extra vigilant, and we worry. This is good when it prompts us to spot a potential problem and get it checked out, as you did, but constant worry and an inability to believe that "It will be OK" is no fun for anybody. Although the worry will likely diminish over time, I think you are right to be looking for a better way to deal with it now. I had (and still have) a slightly different problem -- I like to have some control over my life, and when I was bombarded with uncertainty and conflicting information during the process of diagnosis, it drove me right up the wall! Now, with treatment over, I am again faced with uncertainty as I wait to see if my cancer will come back. Did I mention that I'm not good with uncertainty? I am also not good at dealing with the stress that results from uncertainty, but I am getting better at it. Am I completely in control of my thoughts every minute of every day? OMG, NO! But I can enjoy my life, and when the bad thoughts come, as they inevitably do, I know some things that I can do to help me wrestle the nasty little things back into their box so I can slam the lid on it and get back to being a reasonably happy person. How do I do that? I learned a long list of unhelpful ways of thinking and feeling and acting, and how to deal with them, when I participated in a six-week stress management workshop led by a psychologist who specializes in working with cancer patients. In addition, I met several times with a social worker attached to the cancer center that provided my care to discuss what was working for me, what wasn't, and what I might do to cope when the stressful times come.

    Your emotional distress is not a "weakness" that you must learn to put up with; from your description, it is a problem that is making your life very difficult. You deserve better. I suggest that you treat this as a problem that needs to be addressed, just as the mole needed to be taken care of. Tell your doctor, and anyone else who might be helpful, that you need to find someone who can help you deal with your worries. In the meantime, I will share the "homework" that the stress management workshop participants were given for the first week: 1. schedule some pleasant events; 2. practice relaxation; and 3. do some "self care" activities, such as exercise. In other words, be nice to yourself!

  • MaryScout
    MaryScout Member Posts: 38
    edited May 2019

    Hi Syringa,

    I really get where you're coming from. My breast worries are just ADH at this point, but cervical cancer and 3 melanomas just about sent me over the edge, I have to tell you. I understand when everything seems like cancer.

    For what it's worth, my tipping point was when my husband was diagnosed with prostate cancer. Honest to god, I read so much in oncology journals and surgery and radiation journals that I could have probably treated him myself! :) Ultimately, I got on effexor, and it has been a life saver. After having gotten on it, I started to see the other anxiety triggers that I had that were slowly dissolving -- crazy things like driving across high bridges, semi-trucks too near, etc. Any way, I know it's not for everyone to get things like anxiety meds, but it has been a life-saver for me. And, surprisingly, not just for the cancer stuff, but for other things in my life that I just thought were "normal" but were really debilitating at times. Just throwing it out there because I think to keep quiet about this possible direction just serves to further stigmatizing things.

    I agree with everyone that time does help things so much. Hang in there! Really thinking about you and pulling for you to find peace.

    Yours,

    Mary


  • PollyOne
    PollyOne Member Posts: 21
    edited May 2019

    rockymountaingirl, I like the idea of doing something fun and self care, so am going to try that today.  

    Syringa, I had a normal mammogram in January 2018, but something about my breast just didn't look right, so I went into my PCP in June last year. It was a good thing I did, because the mammogram in September 2018 was abnormal, and you are probably all too familiar with the whirlwind of testing, appointments, and surgery that followed. Because of my "sensitivity" I got treated a lot earlier than I would have if I'd waited until January 2019 for the next mammogram. 

    I've struggled with fatigue, and a less than supportive work environment so I'm also tired and angry. I know stress isn't great for happiness and potentially my long term survival so then I stress about being stressed. I think the thing that has helped me the most was my oncologist's advice that any new symptom lasting less than two weeks probably isn't cancer. Even so I went in to urgent care when I got a strange swelling on top of my scar. The nurse who examined me was really sweet and told me the reasons why she didn't think it was anything serious. I followed up with my BS and he confirmed. But it was so helpful to go in and get it checked. I've decided if I'm concerned, it's ok to seek a professional opinion. 

    I read in Love, Medicine and Miracles that the women who talked the most about their anxiety and depression actually had the best survival rates, so thanks for sharing what's going on for you. I haven't been able to make it to a support group yet, and hearing someone else is struggling too really helps me. 

    Big, soft, gentle, hugs to every one today 


  • momand2kids
    momand2kids Member Posts: 1,508
    edited May 2019

    Syringa

    good job having it chebcked out--I just did the same-- and for me it was melanoma-- but it is small, contained and has a 99% cure rate-they took it right out, big margins, and I feel like I was proactive (and my derm, who I see 2x per year every year did not think it was anything either!!!). One thing that the emotional upheaval of breast cancer (and thyroid 5 years later) did for me was prepare me to be my own advocate, insist on being seen and drive as much of the process that I can. I had the mole biopsied on Tuesday, removed on Friday, another excision on the following Tuesday and now I am just healing and will have the stitches out in 2 weeks.

    Be gentle with yourself- you are not that far distanced from the bc experience--it will get better. And you are more vigilant, for sure, but that is ok..... the best advice I got during the run-up to my thyroid cancer was from one of my in-laws who is a doctor--he told me of so many patients who would come to see him with problems that were so preventable if they had come earlier... "it is all in the follow-up" he said. I never forgot that-- so I steel myself for my periodic testing for thyroid, colonoscopy, mammograms, but I just do them. Even though I know the outcome might at some point be something that I don't want- at least I know it will be early like all of these things have been for me. Gives me some comfort.

    Hopefully the mole will be nothing and you can get back to your life!!!!


  • Syringa
    Syringa Member Posts: 29
    edited February 2020

    Well, I haven't been in the forum for almost an year. That mole turned out to be atypical but benign and I already forgot about it.

    Now I am in another emotional crisis...I did the flashlight test of my breast in September and I noticed a dark spot in my right breast, which was the healthy one. So I went to several doctors and they said it does not look like cancer. Most probably it's some fat. And actually this dark sport is moving over my implant. And when I press it, it becomes transparent. But then I read about the very rear breast associated lymphoma. I joined a facebook group where they discuss it. Of course, I got crazy. I had an MRI, another US and they did not find anything suspicious and just minimal liquid around my implant. I went for another US, which measured the thing of the same size. 5 months later my breast is still the same. It is a little bit asymmetrical, I still can feel and see the bump, doctors say I am fine and the women in that facebook group are removing their implants and insist that all implants can bring us cancer. I am afraid and i do not know what to do. If i remove my implants I will be flat at the age of 36. But even removing them does not reduce the risk of lymphoma according to that group.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    I've heard Facebook has much more emotional & controversial posts than BCO about This subject.

    I an NOT removing my implants. Living & breathing can cause cancer.

    Did you have Allergan 410 texured cohesive gel implants? Those are the implants a question. But even the company is not recommending explant - just be aware of the symptoms & monitor. Even though I DO have those implants, I an not going to have them removed. I've had a detailed ULS and a breast MRI the end of 2019 that shows everything is OK. I'm 9 years from the original implants, I have no plans to go through more surgery. I will have them monitored by ULS every other year.

  • Syringa
    Syringa Member Posts: 29
    edited March 2020

    No, my implants are Mentor Siltex.

    It's really crazy in the Facebook group. Everyone is explanting and more and more cases appear.

    The panic is almost similar to the Coronavirus panic

  • Carla-Faith
    Carla-Faith Member Posts: 16
    edited June 2020

    Hi: I am 13 years out and still worry when something comes up. I took tamoxifen for 10 years. Everyday I wonder if new research is out there that no-one mentions and I should be taking something an addition 5 years. I feel like I am leaving myself unprotected. Does anyone take anything after the 10 year mark? Thank you for listening and giving me your thoughts.


    Faith

  • Ursulapeace54
    Ursulapeace54 Member Posts: 6
    edited June 2020

    I understand your feelings very well. Only thing I can suggest is to utilize as many tools for self care as possible: meditating, exercise whatever brings you a sense of peace if only for a moment. Traumatic childhood created a life long habit of catastrophic thinking. Overcome much but when hit from multiple angles it feels impossible to rally yourself back. All I can say is reach out to others too. I’m awaiting a diagnosis. After 3 mammograms 2 ultrasounds and a biopsy, each time being told , it doesn’t look cancerous, suddenly I’m being sent to a breast surgeon for another biopsy and the message “It could be a benign hymangeona or it could be an angio sarcoma.” I cannot at this moment look up information about the angio sarcoma. I would die if fear. I had Bell’s Palsy this winter. It took 6-10 weeks to recover movement in my face. Then I lost a family member to cancer and then shelter in place for weeks. The routine 3D mammogram thrust me into the nightmare. I’m so afraid of what comes next. For you: it’s ok to have the feelings you have. You are not alone. I hope I too can rely on this community going forward.

  • Ursulapeace54
    Ursulapeace54 Member Posts: 6
    edited June 2020

    beautifully said. I'm just starting my journey.. your suggestions and descriptions are comforting. Having support emotional support from people who have experienced the same thing may be very helpful. Thank you for posting your thoughts here. I'm new to this. Somehow you fool yourself into believing that “I've had my quota “ of bad situations. 2020 started literally with a trip to the emergency room and a Bell's Palsy diagnosis, once that healed, a trip to NY to visit a cousin just 1year older than me. 2 years ago, while he was recovering from a heart attack cancer was discovered. Full recovery from heart attack and at first we thought the cancer was quite treatable. In March 2020, he passed away the day our state went into shut down. Stress galore! Working remotely is so isolated. Finally scheduled overdue mammogram. Did anyone else start this ordeal with an inkling a feeling something wasn't right? Nothing to see no lumps but just a feeling that my right breast was in trouble. I'd stupidly postponed yearly mammogram twice! Finally went and then. Rounds of more mammograms and ultrasound and biopsy and today: THE PHONE CALL. “ It's probably nothing but.. etc etc.” reassuring report after each step and finally the word Sarcoma enters the vocabulary! All I know is that the biopsy reveals something but we are not sure if it's good or bad. I cannot get the bad out of my head. The 2 other times doctors said “I’m sure it’s not cancer”. I’m suddenly hearing about blood vessels and rare form of cancer...” . It's losing trust in the medical establishment that bothers me. That's very stressful. How to maintain trust.

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