Just diagnosed with more IDC

Wow, you poor thing! That is a lot to deal with!  It really does sound like you would benefit from a bilateral mastectomy. Keep us posted as to what is decided. Until then, I know it is disappointing, but you can only move forward!  I actually went into shock when I was diagnosed in Dec 2018 with ILC.  I had been cancer free for 15 1/2 years and never thought I would ever get it again. Yet, that is what happened and I had to deal with it and move forward.  What other choice do we have?

I am sure others will post here too. This community offers a great deal of support and is great at sharing information!

April0315,

I also had 3 IDC tumors on the left side. Two of them were discovered after mastectomy and did not show up in the MRI because they were very small. I also had paget disease on the same side affecting the nipple. I had bilateral mastectomy with radiation. I also suggest the same for you. I know it is shocking but at least you found out early to choose the correct procedure for you.

April, I was absolutely horrified by the idea of the mastectomy. But after my DIEP I felt fixed, it came out better than the photos I had seen. My suspicious area turned out to be normal and nodes were clear. No other cancers except the 2 spots were found. I wouldn't have known that for sure if I did 2 lumpectomies and would have required radiation. Hope things go well for you.

I'm sorry about your diagnosis April0315. It sounds like you have a good team to guide you. I would have thought your BS would have already requested the Oncotyoe though. Why wait? I too have bilateral BC although I was surprised by the second side after my BMX pathology report. Glad I decided to remove them both at the same time. My breasts look pretty good (I think). You seem happy with your PS so no reason to not expect great results after surgery. It's a challenging year ahead but you will get through it. I like your sense of humor too that helps! Let us know know what the MO recommends. I did chemo first. I guess the benefit was that I knew for sure the chemo was effective on the tumor and lymph node and pray it worked in any cells that were on the move as well. Best wishes for you

The MO does order the Oncotype test. Mine did. After my lumpectomy the Path report showed a micromet in my SN. My BS was surprised- I was stunned. He said it would get me chemo. Not his call. He even went so far as to order a port for my second surgery to even the margins. Premature to be sure. I told the hospital idk why he did that. Hadn't even had the Oncotype test yet.

My test results came back at 11. No chemo. I did have radiation - 33 treatments in all.

Some breast surgeons make decisions that aren't their's to make. My BS and MO respected each other but I could tell there was a bit of a control issue between them. My MO also said my BS staged me wrong. I was a Stage 1b not 2a. Both are good doctors however.

If at all possible I would have the test. It made the difference for me in being able to dodge chemo.

Good luck.

Diane

Thank you I am blessed. That’s good April. At least your BS knows -mine just asdumed. Btw once the test is ordered it takes about 2 weeks to get the results. I know...more waiting. Ugh. When I had the test in 2011 it was $5k. Luckily BC/BS covered the cost. I know Genomic Labs where the testing is done will work out a payment plan on a sliding income scale if your insurance won’t pay.

Diane