I had delayed reconstruction, and so far I'm thrilled.
I haven't posted in a long time, but I remember reading a lot of negative posts about mastectomy and reconstruction when I was a regular, so I wanted to come back and share that it can also be a positive experience.
I had my double mastectomy in October 2017. I can't say the early days after surgery were pleasant, but I didn't have any complications or problems. My family was very supportive and helpful, which made it better.
Before I had the surgery, I told the surgeon I did not plan to do reconstruction. I thought I would be happy being flat. The only real complaint I have about my cancer journey so far is that my chest looked terrible. There was no plastic surgeon involved, and my breast surgeon did a great job getting rid of the cancer, but left me looking ugly and misshapen, and I had huge mounds of axillary tissue on my sides.
I was still planning to stay flat, and even joined the "Flat and Fabulous" group here and on FB. But I am overweight, and without boobs to balance it out, my stomach looked even bigger, which really messed up my self-esteem. I also got called "sir" more than once by teenagers and young adults who assumed a flat chest meant I was male.
Almost a year after my mastectomy, I decided I wanted to have revision surgery to make my chest look better. I saw a plastic surgeon, and we discussed my options, including reconstruction. I told him I still just wanted to have the revision surgery, and we set a date. But about a week before surgery, it suddenly hit me that I DID want breasts. I didn't want anything too big, but enough to give me a feminine curve again. So we talked about it and decided implants were probably my best option.
I had an area of extremely thin skin and no underlying tissue on the left side, so he told me we'd take it very slowly and just see what my body could handle. The tissue expanders were placed with no problem. The first fill was completely painless, but as it got more stretched I got muscle pain for a day or two afterward. I wore a mastectomy bra with hand warmers tucked in the pocket to relieve the pain.
He only put in 50 ccs every 2 weeks. I have some stretch marks under each breast, especially where the skin was really thin. But everything went well, and I just had my exchange surgery 7 weeks ago. The surgeon also removed most of the axillary tissue while he was in there. I really didn't have much pain or discomfort after this surgery. My breasts are small, but not too small, and I love them! I am really thrilled with my plastic surgeon, and have already recommended him to a friend who is going to have a mastectomy.
Several people have commented on how much happier I seem lately, and I know it's because I feel better about the way I look. I'm also SO relieved to be finished with this part of my cancer journey.
I didn't post this with the intention of influencing anyone's personal decision. I just wanted to share my experience in case it could help anyone in any way.
Comments
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so happy for you! Sounds like you and your plastic surgeon are a great team.
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Thanks!
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Guenhwyvar, Thank you so much for posting this! Sending you a ((( cyber hug)))! I needed to hear what you wrote. I had IDC in 2003, treated with lumpectomy, re-excision, chemo and radiation. I refused Tamoxifen/AI's. Dec 2018 I was diagnosed with ILC same breast. I went into literal shock when I got the diagnosis because after 15 1/2 years, I was sure I was cured, in fact, I always thought I would have been cured with just surgery!
I will never feel cured again. I will always know it can and probably will come back.
Anyway, this time I had a mastectomy. I wanted a double mastectomy and my surgeon refused to do that! I went to a cancer hospital and he said they don't remove healthy breasts! I also asked for no reconstruction. That too was all but denied. I use the word "denied," because what I wanted didn't seem to matter, my doctor immediately called in a plastic surgeon and the pressure was on to do reconstruction. I "caved" and had the reconstruction.
I had DIEP reconstruction which left me with a "muffin top" and flat lower abdomen. I am also having healing issues with my reconstructed breast due to prior radiation. This and the fact that the PS completely reconfigured my body (I am over weight too) made me wish the doctor had listened to me and done what I wanted, double mastectomy without reconstruction! After reading your post, I realized that I too would be called a "sir" and I wouldn't have felt better about myself than I do now. I am not sure how to deal with not having a waist anymore but I must say, when I look down at my body when I shower, my breasts look normal and that feels good. The wounds on my reconstructed breast are on the underside, so I can only see them using a mirror. Getting used to my body will definitely take time, but I think in the end it will be worth it.
I guess what I am saying is that the saying "be careful what you wish for" is probably true. Your post made me realize that maybe my doctors did know what was best for me after all! THANK YOU!!!!!
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Mavericksmom, I'm sorry you had such a bad experience. I know it's frustrating when people, especially doctors, assume they know what's best for you and won't take your wants and needs into consideration. I'm happy my post helped you look at your situation from a different perspective. I hope you will grow to love the body you have now. Thank you for your post.
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