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  • allebasi
    allebasi Member Posts: 81
    edited March 2019

    Thank you, HikingLady! Yes, I'm getting as much rest as I can. Have freezer meals ready for reheating and paper plates. Hope I'll feel better soon. I poked a bit on the implant side and it's just so nice and soft compared to that awful expander.

  • Blackhawk41
    Blackhawk41 Member Posts: 14
    edited April 2019

    Hi All,

    I was reading through some of the more recent posts and some amazing information. I was curious if anyone has gone down in size and been pleased with their results. Before diagnosis I had 13 year old saline implants (going strong) and size 36DD. One ruptured after my last lumpectomy and without clear margins I ended up with a unilateral mastectomy as well as both implants removed. I stopped having fills back in August of 2018 because I told my PS I was trying to lose weight. She said get as close to your goal and then we will revisit sizing. Well a 50lb loss later and my frame is substantially smaller and she was close to actually draining some off my expander. She’s now mildly concerned the expander is too big for my frame. I said I’m ok with going smaller in size but I wanted something there. So far I believe my last total fill brought me to about 490cc. Im also going silicone which will be a (hopefully good) adjustment. Mentally I’m ok with being substantially smaller I just want to make sure I don’t come out of surgery (5/2) shocked and wondering where everything went. I opted for no lift at this time and hoping it’s enough implant on my good side to not be so lopsided.And good grief I can’t wait to get this expander out! Also any feedback on recovery times - I like to be prepared ahead of time - is greatly appreciated. TIA 💗

  • Shoregirl
    Shoregirl Member Posts: 375
    edited April 2019

    Hi Blackhawk41, congratulations on your weight loss!! I had a 50lb weight loss too after putting on 50lb while taking Lyrica. I had 470 pre-pec ultra high profile Inspiras at 1st. I felt they were too big and heavy, too much projection as well. But the worst was they kept flipping over in their pockets, flat side facing out!! The PS wanted to put BIGGER implants in to remedy this. And since he doesn't do a lot of fg nor will he do nip recon I realized we needed to part ways as we were not on the same page. I went to a female ps next. She was on board with downsizing, but told me it had to be done in stages. She did the 1st downsize and a lot of pocket work to prevent flipping. She only dropped me by 30cc to 440, but we went from ultra high profile Inspiras to full profine Sientras. I really liked them. Soooo much more comfy! The Inspiras were way too firm for my liking and very ripply when I lean over. Sientras were more squishy and no ripples. Unfortunately though she didn't add alloderm to one side as it appeared there was already enough from the initial exchange. As a result, that implant bottomed out pretty quickly (within a few weeks) and ended up 2" lower than the other. We were going to revise to go smaller again anyway in a 6 months so I didn't worry about it. But I had to have a lumbar fusion suddenly which delayed our revision and her office stopped par with my insurance. I found another ps that was on board with the downsize and fg. It was 13 months after the 2nd set of implants. We settled on 345 cc Allergan Inspira Soft Touch Moderate profile. They are cohesive like the Inspiras, but squishier like the Sientras. I really like them!! I chose that size because it was important to keep the base width of the implant the same size as what I had. There are size charts online that give you all the dimensions. Even though my projection went down I still have a small C. I was a full D with the 470s. But that is all relative to each individual's body frame. I didn't have a good cosmetic result with this surgeon. He tightened the IMF on the side he had added alloderm to so much that the implant is distorted flat on that edge, jacked way up higher and inward medially. He revised it again in his office 2 months later (Feb) but did the same darn thing AGAIN!! Too tight sutures. I endured that revision in his office with just local anesthesia for nothing. Needless to say, I moved on to PS4.

    He has lots of reconstruction experience and I felt very comfortable with his plan. He did some fg to my "good side" today. Wants me to wait until late summer for the botched side revision so it has had a good 6 months of healing time. Sounds like a good plan to me!! I know others have had successful downsizing and hopefully some will chime in. I don't mean to scare you. But it is much more complicated if you are considering a major size difference (mine was 125cc downsize all together). I do feel the female surgeon I had or my new ps would have had no problem though. Research ps very carefully and find out if they have done a LOT of downsize reconstructions. I wish you all the best!! :)

  • allebasi
    allebasi Member Posts: 81
    edited April 2019

    Went back for my 2 week checkup after exchange surgery and PS said everything looks fine. Having a bit of a weird rug burn sensation on my right side, guess it's the nerves regenerating. He said everything would continue changing over the next year but everything looked good. Don't have to see him for another month, and he cleared all my restrictions after next week. Can't wait to sleep on my side again!

  • robinblessed54
    robinblessed54 Member Posts: 578
    edited April 2019

    allebasi, Be careful sleeping on your side. I didn't sleep on my side for a year. You need to heal. It looks like you had a Uni so sleep on your right side. Did your PS say you could sleep on your side? Just be careful, you will have lots of time to get into your "new normal". If you had a lot of pocket work, it takes time for that to heal completely.

    Blessings, Robin


  • Blackhawk41
    Blackhawk41 Member Posts: 14
    edited April 2019

    Wow, thank you Shoregirl! It’s excellent info. Yes a little intimidating. I don’t even know what type of implant other than it’s silicone and not textured. My P is out of Brigham and Women’s in Boston and is well known. My nurse navigator used her as well. She’s very particular and definitely was on point guiding me down but now I do wonder on the pocket size. No one wants things flipping around in there. I was pretty big before diagnosis too compared to now! You are one brave woman and you’ve been through so much. I’m sorry it’s been such an ordeal for you but hopefully you are on the right path now and healing! Thank you so much for your help and information ❤️

  • Shoregirl
    Shoregirl Member Posts: 375
    edited April 2019

    Blackhawk41 thanks for your kind words. I am super please with my new ps. He called me the day after procedure to check on me. I had minimal bruising and pain and am already seeing nice contour results from my fg donor sites and grafted sites.

    It sounds like you have a great ps too. As for recovery with TE to implant exchange make sure you talk with your doctor about restrictions and specific instructions. So many women on this thread report this recovery is so much easier than msx. Of course everyone is different but even with extensive pocket work I was out running errands and off pain meds 3 days post op. Just not lifting, pushing/pulling anything over 5lb. Please don't get the notion I was back to my normal routine though. You do have to take it easy and give yourself plenty of rest and time to heal. For reference I am in pretty good health (not on any rx meds). I eat pineapple like crazy after surgery and supplement my diet with vitamins and take Milk Thistle to detox from anesthesia. I feel I bounce back pretty quickly thank God!!

    Best wishes on your upcoming exchange :)

  • christiekoe
    christiekoe Member Posts: 16
    edited May 2019

    Hi everyone. My exchange surgery is scheduled for June 4th. My four kids, husband and I are planning on flying to Florida for a week in July (10th). I can’t imagine not swimming or getting into the ocean. It will be just about 5weeks after surgery. Without compilations, how long did you wait to swim? Thanks for your input!

  • HikingLady
    HikingLady Member Posts: 650
    edited May 2019

    christiekoe Your PS will have his guidelines. I followed my PS's very specific instructions, and I think it was 6 weeks for me. In fact, I waited longer, since I was so committed to not risking any chance of an infection, and I had an additional challenge. Right side had radiation 15 years before and was slower to heal after BMX and also after exchange.

    By the way, with the way they dressed my incisions (steristrips) it was fine after about 24 hours to take a shower, just not immerse in a bath or go in a pool or swim anywhere.

    Do you know what Tegaderm Film is? Easy to find online and in large pharmacies on shelves with other wound care stuff. It's a transparent bandage, which seals around the edges, and might possibly be helpful to know about. You might discuss w/ PS whether it would be safe to use this film as a seal over your incisions to get in the water, if you're still not quite to his "safe to go in the water" date by then. If it's applied correctly, it can be a waterproof seal.

  • crossh
    crossh Member Posts: 44
    edited May 2019

    I also went to Florida recently, 6 weeks post exchange and was told by my PS it would be better not to risk infection by going into a pool or ocean. it's up to you, but IMHO it's not worth the risk of infection. I stayed out of the water.

  • Cpeachymom
    Cpeachymom Member Posts: 518
    edited May 2019

    christiekoe- I was told 6 weeks, same as the others. At 4 weeks I still had some “internal sutures” that kept poking through the skin. They clipped them, but I wouldn’t feel safe swimming.

  • kandyhunt
    kandyhunt Member Posts: 87
    edited May 2019

    christiekoe-- Not to pile on but I live in Florida. I would not get in the water. I only use a private pool and not the public one. Water in Florida can have some weird stuff in it besides alligators. I got an infection in my boob after exchange surgery due to lack of care during a hospital stay for cellulitis. I had to have an extra surgery. I was threatened that if the surgery to replace the implant failed I would have to have it taken out and start over at ground zero until all the infection was gone. The would be 3 more surgeries, One to take out the implant. the next to put in a TE and the third for the exchange, all the while not matching the other. I would not chance it. Stay out of the water is my advise.

  • christiekoe
    christiekoe Member Posts: 16
    edited May 2019

    Thank you all for your advice!

  • Sadlynew2018
    Sadlynew2018 Member Posts: 222
    edited May 2019

    Hello everyone! New here with 2 questions.

    First, after my last fill, my breast felt cold and the saline began to deep out of the spot where they inserted the needle. I’m thinking it’s a leaky implant?

    Second, I’m doing a flap transfer instead of an implant. Any tips on how much to inflate the TEs with a flap

  • star2017
    star2017 Member Posts: 827
    edited May 2019

    I didn’t remember much if s cold feeling but one te did leak. They didn’t seem too concerned. Refilled it until I was ready for exchange

  • notarobot
    notarobot Member Posts: 58
    edited June 2019

    Hello all, I'm a first time poster, but I've been reading the boards for several months now.

    I have already gone thru my second surgery ,DMX with TE placement , don;t know if I will be needing Chemo or Rads or both yet

    I have follow up this friday with my onco surgeon and he will have my Path report hopefully.

    I had a follow up with my PS today and apparently the tissue on my R breast is not healing ? its not infected but a slightly larger than a quarter sized area is red and she said it wasn't closing all the way, so now Im scared it will open and I'll have to undergo surgery to cut out more tissue and try to get that to heal.. Any suggestions on how to get this spot to heal and start making it grow together would be appreciated.! I think I was doing to much and pulled it, I could feel a sharp needle like pain yesterday in that area.

    *sigh* sorry or being long winded, Im just scared. Thanks for reading!

  • notarobot
    notarobot Member Posts: 58
    edited June 2019

    Hello all, I'm a first time poster, but I've been reading the boards for several months now.

    I have already gone thru my second surgery ,DMX with TE placement , don;t know if I will be needing Chemo or Rads or both yet

    I have follow up this friday with my onco surgeon and he will have my Path report hopefully.

    I had a follow up with my PS today and apparently the tissue on my R breast is not healing ? its not infected but a slightly larger than a quarter sized area is red and she said it wasn't closing all the way, so now Im scared it will open and I'll have to undergo surgery to cut out more tissue and try to get that to heal.. Any suggestions on how to get this spot to heal and start making it grow together would be appreciated.! I think I was doing to much and pulled it, I could feel a sharp needle like pain yesterday in that area.

    *sigh* sorry or being long winded, Im just scared. Thanks for reading!

  • HikingLady
    HikingLady Member Posts: 650
    edited June 2019

    notarobot Healing can take awhile. Everyone's different. My husband is an RN---he says that the surgeon should assess to be sure that it's properly dressed, and that if there's any oozing, drainage or signs of infection, you do need to be seen immediately. Healing happens from inside out, so if you have it covered, moist, and appropriately dressed (for your surgeon's protocols), and if there's no infection, just give it more time but stay in close touch with your surgeon. Go in and be seen if you have anything that worries you. Surgeon should be giving you a timeline about when to have her look at it again. Yes, doing too much can move the tissue apart, so follow all instructions, and hang in there. Keep us posted.

  • HikingLady
    HikingLady Member Posts: 650
    edited June 2019

    notarobot if you want to put your DX and TX in your signature under your post, you go to My Profile, set that information in, and then go to Settings to choose which information you want to set as Public or Private.

  • Krose53
    Krose53 Member Posts: 148
    edited June 2019

    I had a BMX in December of 2017. I had my TE's out in October 2018 and replaced with silicone implants. Last month I saw Vinnie Meyers for3D nipple tattoos. He said my L side was almost an inch lower than my right. He said it would continue to drop. He recommended reconstruction to fix it.

    I saw my PS. He said it is lower and that he could lift it. He wanted me to consider if it was worth another surgery and general anesthesia to me. He said it would not continue to drop. I'm torn. Anyone w a similar situation or any advice? I'd really appreciate it. Thanks!

  • notarobot
    notarobot Member Posts: 58
    edited June 2019

    thank you Hiking lady!! I hadn't changed the settings to public, I was wondering why it wasn't showing up,

    noob, lol My PS said give it a week, gave me a bunch of bandages and some ointment, Im just nervous

    I really need to get back to work, and definitely can't with an unhealed wound in my work environment.

    I appreciate you replying so quickly. my DD said that putting some gently warm compresses on it over the bandaged area,,IE a small microwavable

    heating pad, twice a day or 20 minutes would help open up the vessels some to get more blood flow to the area.She was an ICU critical care nurse,now a nursing teacher, so it makes sense to me.I'll give it a shot. I know Ive got to be patient, but Im anxious to start making a living again lol Never thought I'd be itching to go to work! haha.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2019

    Krose - I had rads on my right side when I had a recurrence after my implants had been in two+ years. Because radiation tightens & shortens muscles, that right side is much more perky than the left. The left has drooped considerably. Two years ago the PS said he could fix it to match, but like you - I wasn't sure I wanted another surgery & general anesthesia. Seems to me my left continues to droop. I plan to see him later this year for more guidance, but am concerned about lymphadema, since my right side is already effected. It's not a win-win situation is it.

  • HikingLady
    HikingLady Member Posts: 650
    edited June 2019

    Chiming in on the "should I fix the mismatched foobs" conversation. My right side is smaller because of previous radiation, so the skin didn't stretch as well. My PS said all along that they just wouldn't be exactly the same. In my case, the right bra makes them look Just Fine in clothes. I wear a swimsuit that doesn't have a low cut in front. I can live with my 'sisters, not twins,' and I won't choose more surgery.

    I would ask these same questions discussed above: about healing and complication risks, and how good will the improvement be, etc. Hard choices, for sure...

    Unfortunately, yes, as MinusTwo points out, lymphedema is a risk after all breast surgeries. My PS actually mentioned that risk VERY fleetingly before my surgeries. My friend who's retired from being a physical therapist who specialized in the treatment of lymphedema after breast surgery has been my main source of information about that. I don't have lymphedema, thank heavens, but it's something we do all have to be aware of.

    In fact, since I'm on this topic, my PT friend recommends that I wear a compression sleeve on the cancer side (I had more surgery on that side because of axillary node excisions) for flying, for 1-2 years after any breast or axillary node surgeries. She says: put it on 1-2 hours before flight, take off 1-2 hours after flying; this is because of air pressure differences, which can affect the lymphatic system. I do this prophylactically. And, I wear heavy gloves if I prune roses, etc.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited June 2019

    Hiking lady - my problem is breast & truncal LE, so I have to wear a compression bra or vest 24/7. Unfortunately those garments do not 'lift' or conceal the difference in my droopy left side, which is why I'm still considering more surgery.

    The sleeve advice is good. I always wear sleeves to fly - AND gloves or gauntlets so the pressure doesn't just move to the hands. For those who want more detail, there are 3 or 4 very comprehensive threads about lymphadema on the BCO site, in addition to the link below which was created with fantastic input by BCO members.

    https://stepup-speakout.org/


  • HikingLady
    HikingLady Member Posts: 650
    edited June 2019

    MinusTwo Aw, I'm so sorry about your LE that you're dealing with. Thanks for the glove idea and the link.

  • crossh
    crossh Member Posts: 44
    edited June 2019

    Hi krose53,

    I also had BMX more recently, November 2018. My right side did not drop as much as left due to scar tissue from three prior attempts to get clean margins. I went in for a fix Six weeks ago and it worked. He also added a small amount of fat sucked from my lower belly. Definitely an improvement! Right side is now even. It was a 45 minute procedure under general anesthesia. No real pain to speak of, took some Tylenol that night and was back at work the next day. I work from home on a computer, so that helps.

  • star2017
    star2017 Member Posts: 827
    edited June 2019

    my cancer side was radiated and also doesn’t have a nipple. On that side I have obvious cleavage, partly bc the skin is much tighter and the implant seems to sit higher, and a little closer to the center. The other (prophylactic side) has a slightly smaller implant and does not have that upper fullness; it also looks more natural, I think, but maybe bc it has a nipple. My ps suggested fat grafting to even the fullness but for now I’ve decides it’s not worth the additional surgery. The unevenness is not obvious to anyone except me.


    I am planning to do nipple recon (go back and forth bw 3D tattoo and nipple recon, but for now I’m thinking to do the full reconstruction.

  • notarobot
    notarobot Member Posts: 58
    edited June 2019

    Good Morning All!

    Well I didn't sleep well at all last night, it felt like my right TE was going to poke a hole in the center of my chest inwards,it was my first night sleeping w/o my hospital issue mastectomy bra. PS said I could go w/o it the other day as long as the right incision was covered. no change as of wed. to the spot that wont heal on the right. My armpits and chest area near my armpits feel as tho I have rug burn. My SNB was performed back in april and had healed since before my mastectomy on may 30th. so I dont know why that hurts like that.

    Anyways, I go see my onco surgeon today to see what was in my path report.He told me he would call if he got the report back and he never did..I'm nervous about that, my brain/imagination tells me he didnt want to tell me over the phone bad news.I Don't know if I have to do chemo or rads or both. I hope its all within the margins. my initial diagnosis was said to be a tumor of 2.4 cm , that changed during the lumpectomy when he started to cut, then cut again, then he stitched me up because he didnt want to keep cutting away without telling me it was bigger. that path showed cancer cells dotted throughout the breast tissue and a tumor at least 4 cm.I'm hoping and praying for clean margins. even if I have to do the chemo or rads, just to be safe.

    ok enough rambling for now, wish me luck! Have a great day!

  • notarobot
    notarobot Member Posts: 58
    edited June 2019

    well, my follow up with my onco surgeon was today..I might feel like I got hit by a mack truck, physically, but mentally... OMGGGGG I'm a 5 ft 2 105 lb cheerleader doing cartwheels across the parking lot ( my drains are gonna hate me for that)

    I have been down sized on my stages, everything was well within the margins, this time,the tumor is GONE and the "little cancer cells" thruout my left breast tissue were merely "calcified sclerosive lesions" non cancerous.

    my surgeon said NO RADS, might need a chemo or 4 to make sure if my chemo dr. thinks its necessary due to oncotype ,family history ect.

    but im on to healing this chest mess, and trying to get my foobs,whether it be by implant or diep flap , I got time to breathe and think about it.

    im not one to share much, but I've read alot of your stories,and I couldnt wait to figure out how to get back to my original post so I could tell you , I guess I just felt safe. thanks for that ladies.



  • star2017
    star2017 Member Posts: 827
    edited June 2019

    wonderful news, notarobot!



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