Confusion about reoccurrence

Hey all, so I know I should’ve asked my doctor to elaborate more on this at my last appointment but I was kinda shocked/scared. I just completed treatment on March 19th and saw my onc for follow up and he mentioned that if my cancer was to ever come back that he could only control it and not cure it. Why is that? Is it because I’m considered high risk? I read so many stories where people beat cancer more than once and was just wondering how my situation differs. Any insight would be greatly appreciated.

Comments

  • Jojobird
    Jojobird Member Posts: 203
    edited April 2019

    I asked my doctor this same question, and her response, gently, was along the lines of “We will work towards prolonging life as long as possible. While the possibility of a cure is still possible, with a recurrence, there’s a greater likelihood of metastases and/or chronic, lethal illness.”

    BUT: Everyone is different. People can and do live long, active lives with stage iv disease. You are not a timetable or statistic.

    I hope this helps.



  • OCDAmy
    OCDAmy Member Posts: 873
    edited April 2019

    Generally metastatic breast cancer is treatable but not curable. A local recurrence is curable

  • LaughingGull
    LaughingGull Member Posts: 560
    edited April 2019

    If your cancer recurs, it may appear in the same area in which you had it the first time (in your case, left breast or axilla), or in a distant organ (bones, liver, lungs, brain); a distant recurrence would make you Stage IV. When you are Stage IV, the treatment would be palliative, not curative. For example, you would not get surgery to remove the tumour.

    You are early stage, so your prognosis should still be good. Did she tell you are high risk? If you had chemo after surgery there is no way to tell how you reacted to chemo.

    The end of treatment is a very fraught and depressing time. Take care of yourself.

  • illimae
    illimae Member Posts: 5,710
    edited April 2019

    The stats are that approximately 30% of lower stage BC patients do eventually become metastatic. Currently, there is no cure for cancer, however, many recover move on and enjoy many years cancer free until death from something else.

    I don’t think it’s a matter of high risk, just the nature of the beast. A lot would depend on where it came back and the state of your health at that time. If ever diagnosed stage IV, the best case scenario is minimal spread and continued treatment for longer term survival. It’s a scary state having cancer at any stage but some stage IV patients do well, can have surgery, enjoy life (but differently) and may live for many more years. Medically, more is being learned everyday and I remain hopeful.

  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited April 2019

    Broadly speaking: A local recurrence (i.e. within the breast) can still be "cured," but it does mean you are at statistically higher risk for eventual distant recurrence. A distant or metastatic recurrence (i.e. to the bones, for example) cannot be "cured" at this time, but it can be managed.

    It sounds like your doctor was referring to a distant recurrence type scenario. Also, it's not just your cancer - we are all in the same boat until better treatments come along. Take care, and congrats on finishing active treatment. :-)

  • Elizabeth9
    Elizabeth9 Member Posts: 49
    edited April 2019

    I asked my doctor the same thing. Her answer was gentle, but disturbing. I think about it all the time. I was asking about regular scans going forward on various common metastatic locations...liver, lungs etc. She said, " If we discover mets, whether we discover it through a scan, or a year later once symptoms appear, the outcome and life expectancy is the same. Your quality of life is better if we wait for symptoms, because you won't have all that extra treatment / anxiety / intrusive care prior to symptoms." I am still WTF-ing in my head about this.

  • LaughingGull
    LaughingGull Member Posts: 560
    edited April 2019

    Yes Elizabeth9, it’s very hard to wrap your head around that. But that is the science-based consensus and apparently the data is very clear -haven’t read it though but got this repeated by several oncologists. Once you are Stage IV, there is no such thing as a bit vs a lot and ultimately doesn’t make a difference.

    Very hard pill to swallow

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2019

    It's frustrating. The data on it is based on 2 studies in the 1990s. It irritates me because I feel like we'll never know if the same holds true with current advancements. I just accept it though, because I know that scans themselves can contribute to cancer, and my body does not need any help making cancer. It seems to do a good enough job of that on its own. It took time, but for now, I assume I am cancer free until proven otherwise.

  • LaughingGull
    LaughingGull Member Posts: 560
    edited April 2019

    To me, something that doesn't make sense is...if that is true, why do we do systemic treatment at all? I

    f less or more distant disease is just as impossible to cure, why do we even bother with chemo for early stage breast cancers? But the consensus is also that early stage cancer with a few cells that spread to distant organs can be curable by chemo; however, it becomes incurable when big enough to be detected by scans or symptoms? That sounds like an arbitrary distinction to me.

  • KBeee
    KBeee Member Posts: 5,109
    edited April 2019

    My guess is that if it is just a few cells, then they feel it is curable, but once it's set up shop into a detectable tumor it is not....just guessing though. Good question to ask MO at next visit. I'd be interested in the response.

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