3rd Dx in 15 yrs

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mom2e
mom2e Member Posts: 10
edited April 2019 in Just Diagnosed With a Recurrence or Metastasis

WTF. Biopsy 4/4 showed invasive cancer in skin and mastectomy scar. Same side (left) as last 2 Dx (2004 and 2010). Also ER+, PR+ and HER- again.

CT scan and bone scan sched for tomw. Praying that it’s only in that tiny (6mm) lump I found 2 weeks ago.

Mostly feeling anxious and angry. Not telling my kids (12 and 15) til I know what treatment looks like.

Sending love to all who are in this swamp.


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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2019

    Oh mom2e, we're so very sorry to hear this news. You've certainly been through it!

    We're all here for you as you navigate this diagnosis once again -- keep us posted on your treatment plan and how we can help support you.

    --The Mods

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  • KBeee
    KBeee Member Posts: 5,109
    edited April 2019

    ((((HUGS)))) Sorry you are dealing with this beast again. Hoping all scans come back clear. Do keep us posted.

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited April 2019

    Sending you positive, caring thoughts.

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  • Meow13
    Meow13 Member Posts: 4,859
    edited April 2019

    Sending positive thoughts your way.

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  • mom2e
    mom2e Member Posts: 10
    edited April 2019

    Bone and CT scans today. Then a treatment plan. MO mentioned possible radiation treatment, which I had on the same side (left) in 2004. Have had skin sparing BMX since then. Has anyone had rads on the same side more than once? I’m concerned about damage to ribs, etc.

    Thanks,

    Jodi

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  • mom2e
    mom2e Member Posts: 10
    edited April 2019

    Bone scan was clean!!!  Waiting for CT results.  Concerned about very high lymphocytes, too.  Always something new to worry about.  Ugh.  Still haven't told my kids yet.  Hoping for treatment plan ASAP.

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  • buttonsmachine
    buttonsmachine Member Posts: 930
    edited April 2019

    mom2e, I'm sorry you're dealing with this again! I just wanted to respond because I did have rads on the same side twice, about a year apart. Going through it the second time was comparable to how it was the first time - I did pretty well during radiation both times.

    I'm about a year out from my second course of rads now, and I haven't had any major problems come up yet. I do have some mild rib pain, which may or may not be due to radiation. I also started developing some very mild lymphedema recently, which also may or may not be due to radiation. Either way, I don't regret doing radiation a second time, and I'm just glad the skin metastasis is gone!

    Do find a radiation oncologist you really like and trust. I'm hoping the best for you as you come up with a treatment plan.

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  • mom2e
    mom2e Member Posts: 10
    edited April 2019

    Thanks, buttonsmachine. I had severe burns from rads in 2004, and intermittent severe pain that lasted for years (ribs on that side are still tender), so I’m worried about another round. On the other hand, I’d walk on hot coals to get rid of this crap.

    CT scan results were generally good, but I need a renal u/s and lymph node biopsy on the OTHER side (wth?). Also checking high lymphocytes - had flow cytometry blood test today. Ugh.

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