High Ki-67 survivors!?

Hoping someone comes along soon !!

I am hoping Weesa will pop in as I know she has mentioned that she had a very high KI-67......she's over 15 years out. I hope this helps until others chime in;)

Jacqueline

Mine was 90%. TN. Tumor grew to solid 6 x 3 cm in less than 2 months. I am almost 3 years out now. Had partial mastectomy (with reconstruction). I was shocked too when I found out. I searched back then and found a few more with high KI 67, 2 with 90, one with 95 one with 100 %, if I remember correctly. They were two years ahead of me back then which I found reassuring! I hope everyone is still doing well!

BTW, my onc. nor surgeon ever commented on it.  Wishing you best of luck!! I know it is so scary in the beginning. 

Yes, I'm popping in. My ki-67 was very high, but I can't recall the exact figure. I think it was in the mid 80's percentile. Several years ago, fortified with a couple margaritas, I opened up the dreaded bottom drawer of my desk and scooped out hundreds of toxic yellowed pages of old lab tests, oncology notes, ad nauseum, and threw them all out en masse without looking at them. Into a black Hefty bag! To the town dump! It was just something I had to do. Temporarily painful, like cleaning out the back of the fridge, and it felt liberating and cleansing afterwards. So... I can't go back and get the exact number, not that it really matters.

I recall my Onc being amazed at my Ki-67 and telling me that meant my cancer was very aggressive. However, my mitotic rate was a 1 (one) which makes me wonder. Shouldn't a high Ki-67 be accompanied by a high mitotic rate?

I think my ki-67 was a main reason my Onc told my husband privately that he was hoping I'd get a good three years from the treatment. Didn't know this until recently.

Couple of things to think about if yours is high: The ki-67 score is often subject to lab errors. Also, nobody has really gotten a consensus about what in tarnation it means. At least that was the case back when I was diagnosed.

I don't truly know why I've made it. My husband thinks it is so I can keep being irritating. At any rate, I wasn't a good cancer patient. I never tried prophylactically to avert a recurrence because I was always convinced it would happen any minute. So I lived life to my own version of the hilt.

Jeesh! Isn't this just one friggin scary journey?

Love to all my heroes here, Weesa

My ki67 was never tested or atleast not in any reports. I asked my oncologist he said no we don't consider ki67. Doesn't find it useful. You would think all oncologists would be in agreement on its value.

Kjchico,

If you decide no chemo, look at AI drugs for er positive pr negative may be a good choice.

https://www.cancernetwork.com/articles/anastrozole...

ki67, 75. 4 years ned. My mo doesn't do tumor markers.

Hi Everyone,

I just received some horrible news. After having a lumpectomy I have Stage IIIa IDC (tumour 11mm), Grade 3, and 4 out of 4 sentinal nodes were positive; 3 had macrometastases (largest was 10mm) and one had micrometastases. Even though the tumour was classified as IDC NOS, one of the lymph nodes had micropapillary features. Upon biopsy they thought my tumour had the micropapillary features but then, upon reexamination, it was the tumour did not have these features but one node did and it is know to be very aggressive. I now have to go for a bone scan and CT-scan. If those are negative then I will have full axillary node dissection on the right side.

Needless to say, I am terrified. I cannot stop thinking about my boys. I am soooo scared of this diagnosis and now will have to wait and see if the bone scans come back negative. I have never been so scared in my life. I don't even know what to do.

Any help or advice would be helpful. Having a very dark day. I have no other words.

Forgot to mention that I am ER/PR+ and HER-.

Sportymom

Thanks Wink22

Hi Sportymom: I am Stage 3C. I had an 8cm tumor and 14/31 lymphnodes positive. They knew before my surgery that I was lymphnode positive so they did a petscan prior to surgery. Just to reassure your that I had no evidence of cancer anywhere else. I have had 4/4 AC and will have 3/12 taxol this week. If all goes well when I finish chemo I will have radiation. I have lived well through chemo and I am doing well. Take heart and do as your doctors suggest and you will be okay. Sending hugs and prayers to you.

Sportymom: Of course I have hope. I am a little ahead of you in treatment. I had my diagnosis March 1 and a single mastectomy on April 1. Started Chemotherapy in May (4/4) AC and (3/12) taxol so far. Radiation following. It is a long hard road to look ahead at but I am moving through it one day at a time. My doctor says with treatment I have a 40% chance of it returning but a 60% chance of it not.. So I throw the 40% away and cling to the 60%.. I must admit that after diagnosis I spent days in bed finding every poor prognosis possible for me. One day I realized that whether I have 2 years or 20 years I DONT want to spend them wallowing in pity. I realized that 1/2 of this battle[ or whatever you call it is mental ) and I want to do the very best I can. Whatever happens, I want to leave my friends and family with the best memories of me possible. I want them to remember me as a strong, capable person who did the best I could every single day of my life. I have lived well through chemo,,,I have had lunch with friends, walked miles each day. spent time with my family and carried on more or less normally. Who knows... I could live and love 5,10.or 20 years. Or maybe 2... I want them to be as great as possible.. My dad was diagnosed a number of years ago with ALS. No treatment and we watched him fade over 15 months and nothing anyone could do. Count your blessings and live your best life. That is all any of us can do anyway.. For heavens sake, quit wallowing and worrying and get your fighting gloves on...win or lose, the mental part of this is either crippling or fightable and your body does not need the stress and inflammation of you being upset... Be happy. Right now you have every chance for success until they tell you different and even then you know your body.. Gloves up, beat the snot out of this nasty disease and move on. You are going to be okay.

I totally understand where you are my dear... It takes time and you are going to do great... Once you have a treatment plan it gets easier,,it really does. And we are all here for you.. Hugs.

Thanks Ladies