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Erkipper
Erkipper Member Posts: 31
edited April 2019 in HER2+ (Positive) Breast Cancer

Have a question for metastatic PR-/ER- HER2+ ladies. I was 6 days from being 3 years cancer free. Had a 2 seizures back on 12/3/18 and found several lesions in my brain. Have already had the gamma knife procedure. Hope to get another MRI scan next month. Had a CT and found my cancer has returned in some lymph nodes. My first round of chemo in 2015 I did the whole 9 including the year on Herceptin. This time time around Im doing another targeted drug called Kadcyla. Has anyone on this site had a experience similar to mine (reoccurence) or has used Kadcyla and how they are doing? As many as you know the biggest fear is a reoccurrence which I have have. After that my next biggest fear is death. Not only am I dealing with this which floods my mind every day from the moment I open my eyes is Im on an anti-seizure medication that make me feel awful and depressed. Had my first full on panic attack 2 weeks ago. Im a mess. Im a 43 yrs old a wife and a mother to two girls 8 and 12 yr old. My husband and girls are my life. Im fighting, praying and trying to be positive but sometimes its so hard. Need some positive feedback.

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  • Jjewel
    Jjewel Member Posts: 93
    edited February 2019

    Erkipper, sorry to hear of your setback. It’s so scary but I wanted to tell you, you’re in my prayers. I also wanted to tell you, I’ve heard great things about Kadcyla from other threads. Also, I have a client who is a nurse and her husband is a Medical Oncologist. They are the ones that lead me to my MO. They are constantly referring to how many new treatments are available now and in the works. People in the Oncology field seem very optimistic about treating cancer as a chronic disease rather than a death sentence. I just read an article about cancer deaths on the decline again last year. Overall, there is still lots of hope for you and your precious family. It’s not easy, but cancer has stolen enough, try not to let it take your peace. I am trying my best to enjoy everyday as much as possible. Keep moving, that helps me, keep laughing and smiling and enjoying being alive today. Fear paralyzes me and steals that moment. I’m trying to not let it. Tomorrow may bring another treatment that turns it all around for us!. ❤️


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  • Erkipper
    Erkipper Member Posts: 31
    edited March 2019

    Thank you so much for your response. Sorry it has taken me so long to respond. I actually shared your post to me with Cancer Hearts on Facebook. It was so encouraging. I did not share any of your info just said a friend of mine sent to me. Alot has been going on since I posted that in January. I think I was at my lowest. Doing better now. They have me on anti depressants and a prescription to take Xanax as needed. Ive only used twice when I let me mind go. Still think of it everyday but Ive learned to live for the day that God has given me. I basically gave it to him. I have a long journey and will have good days and horrible days but I want to be here for my family. Still on anti seizure meds and haven't been able to drive for 3 months and Im going crazy not to come and go as I want. I have to depend on friends/family to get me to work and home, store, appointments, etc. I see my neurologist next week and hopefully he can take me off the anti seizure meds. Those side effectss are so bad. Again thank you for the encouraginf message, it meant alot. Take care of you!!

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    This is just an anecdote, but I have a friend who was diagnosed with an EFGR-expressing stage 4 lung cancer (NSCLC) in late 2014. She has been on an EFGR immunotherapy since Jan 2015, and she is NED today. In fact, they just dropped her back from 4x/year checkups to 3x/ year. There are some incredible results out there with these therapies. Wishing you the same!

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  • Jjewel
    Jjewel Member Posts: 93
    edited April 2019

    How are you doing Erkipper? Did you start the Kadcyla? There’s a thread of those on Kadcyla 2019. Most seem to be getting through it ok. I’m praying you are as well. Kadcyla seems to be another new weapon in the battle. 😊

    Jenny

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  • Erkipper
    Erkipper Member Posts: 31
    edited April 2019

    Hi Jjewel

    Im doing very well right now, thanks for checking on me. Hope you are too. I started the Kadcyla in January and I go for my 5 treatment tomorrow. I usually feel lousy for about 3 days and then I pretty much get back up and keep going. Still takes alot out of me so I rest when I can but still able to work, have fun and spend time with the ones I love. I will need to checkout that thread, thanks for sharing. I will continue to pray for all of us and thanks for praying for me. I so appreciate it!!

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