Insomnia At Night, Anxiety In The Day
I am newly diagnosed and that may be part of the problem. I cannot shut my mind off to sleep, even with the help of Imovane. I keep getting up and down out of bed, pacing. Poor suffering hubby. Ativan keeps me mostly functional during the day. Before the Ativan, I needed to be pulled off the ceiling. Perhaps once the routine of treatments etc kicks in I'll settle. Right now I feel like I am walking the plank. What did I miss? I did mammos, I did BSE --- how did MBC happen? Do I have a few years at least of QOL?
Feedback from newbies and suggestions from those who have been on the journey longer would be appreciated. How do I help my darling husband? After 46 years of a contented, happy marriage he's falling apart. But he is totally there for me but at a loss of how to help..
I am grateful for this site.
Comments
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elderberry (love your name!) so good that you have reached out.
I went through the same issues. My anxiety and insomnia were sky high. I was using Valium to help me - which worked wonders while navigating those early newly diagnosed months.
I’m sorry you are going through this, and your husband is along for the ride. As difficult as it may be to do so, try to just allow you to be worried about yourself right now and try if you can not to worry too much about your husband. He could probably benefit from some support as in therapy or group counseling or support groups for caregivers. His emotional responses to your diagnosis shouldn’t be your responsibility right now. Give yourself permission to be as selfish as possible around this process until you get your bearings.
Are you seeing any type of therapist or counseling to help with the mental aspect of all of this? One thing I did that has helped me immensely and continues to help me is I found a kickass psychologist and started seeing her weekly, sometimes twice a week. I tried out a few different therapists before I finally found the right match for me.
I also fought it for a long time, but I started taking an antidepressant because I was so anxious and depressed and couldn’t get my mind to stop. I fought it and fought it and now I can’t believe I didn’t allow myself to start one immediately. I take Lexapro and I am incredibly happy with how much it has helped me and my mental outlook. It’s not 100% but at least my mind can shut off finally. The meds can/will cause depression anxiety and insomnia. The antidepressant has also significantly decreased my hot flashes - bonus!!!
Other things I did: cried my eyes out, started exercising much more, got acupuncture and massages regularly (really helps with stress and anxiety and side effects!), and made sure to openly communicate my needs to my loved ones.
You will get through this - you have many years ahead!! Right now it’s finding your footing and figuring out your plan and taking these steps and getting the cancer under control - which you will be able to do. There are so many of us living somewhat normal lives with MBC.
Hang in there and hopefully some or all of these things come in handy. Big hugs!!
Philly
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Elderberry, changedname gives great advice, all of which i agree with. Take one thing at a time, which is your condition, and let your hubby take care of himself for now. Please contact your primary doctor or whoever is prescribing your Ativan, ect., and let them know of your anxiety and insomnia. Be very open and honest about it. You may even benefit from seeing a psychiatrist, since they specialize in these type meds and can help you better to find the right ones to fit your situation. Maybe your primary could refer you to one.
Also, try distraction. Treat yourself to a really good movie, or allow yourself to binge watch a terrific show on Netflix, go shopping for some retail therapy, browse the stores, buy a new pair of shoes or a pretty blanket or something to lift your spirits. Go to the grocery store and buy something really delicious to eat that you normally wouldn't spend the money on.
Get out in nature, too. Take a walk around the block or a drive to a beautiful scenic park or lake with your hubby. Or take a drive by yourself, cranking up the radio when your favorite songs come on and sing along at the top of your lungs. Or just listen to music at home and dance around and sing,
I do have to say,tho, it sounds like the meds need adjusting before you can really move forward with having more normal days and nights. I was like that, I had such high anxiety and the different antidepressants I tried increased my anxiety! They also made me to where I couldn't even get off the sofa. The nurse practitioner said they made me “flat". I finally tuned in to the fact that I had anxiety not depression, explained that to the doctor and was given the medicine Buspar which helped me get back on track.
Also, PLEASE KNOW that metastatic breast cancer is a crap shoot, meaning you did nothing wrong and you are not “at fault" because you received this diagnosis! No one really knows why some women progress to this stage. Practice extreme self care and let yourself off the hook! Don't let anyone, anyone, make you feel like somehow you brought this on yourself. You didn't miss something or make some error. It happened but you are not to blame. Please tell yourself that.
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Elderberry, Two wise women have given you excellent advice here. I have very little to add except what my breast surgeon told me during my first visit with her after my stage IV diagnosis. She told me to rid my mind of any sense of guilt I was feeling. She said that I had absolutely nothing to feel guilty about, that there was nothing that I did or neglected to do to cause the cancer. It was as if she could see into my mind because I was thinking of all kinds of ways to blame myself. It has been almost 4 years since I was diagnosed, and I have read about and talked to many others who are stage 4. I now realize that my breast surgeon was right. As Divine said, mbc is a crap shoot. We do not have the power to give ourselves the disease. It just happened! I hope that you have a treatment plan in place soon. Once you do, things will get a bit clearer to you. Please ask any questions that you have. There are many supportive people here ready to help.
Hugs and prayers from, Lynne
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Elderberry,
This is a very hard time. Your feelings are so normal and so understandable.
I see that you were diagnosed with liver mets. Me, too, almost seven years ago. The liver mets scared me, and I thought my prognosis was short because of them. I've had a lot of different treatments, and several failed, but some have worked well. And I'm still here with a reasonably good quality of life. There is hope!!! Herceptin is a good medicine And there are more, and more on the way.
Congratulations on your long and happy marriage! There is an excellent chance you will have more good years together. We had just celebrated our 45th anniversary the month I was diagnosed. Didn't expect to be here for our 50th, but I was. 52 coming up soon! (And they've been good and happy years.)
Do take care of yourself. You didn't cause this. It feels like life has exploded, but some normalcy will return.
All good wishes!
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SchnauzerMom, 50sgirl (sharing liver mets) and to all of you other stong, wonderful MBC women: I decided I would not check the forum board last night before going to bed but - a creature of weak impulses - did. So glad I did. You all were like a lamp in my darkness. I slept quite comfortably. SLEPT!!!
I am fortunate to live in Vancouver. There are so many parks, ocean walks, mountains and a benign climate (aka rain and more rain) to be able to enjoy all of that most of the year . I have three great sisters, one in town, two in the interior of the province (about 300 miles away) Girlfriends I have known for over 50 years. So I know there are arms out there to hold me up.
BUT - you are the ones who can truly understand.
IChangedMyName: yes - I will explore seeing a professional. Once my Tumour's Social Secretary has other calendar dates locked in
I cannot fully express how much your words encouraged me.
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Elderberry, I'm right there with you. Newly dx last month with bone mets, lung mets and waiting results of abdominal CT I'm having next week. Radiation this week for back pain. I'll see the oncologist for full systemic treatment plan next week. My diagnosis comes 24 years after my original diagnosis. For the first few weeks I wasn't eating or sleeping much at all. Things are a little better now, but oh my goodness, this brain will not stop!
DivineMrsM, thanks for the suggestion that anxiety and depression don't always go hand in hand. I'm going to talk with my doctor about this too. I've had really awful reactions to AD's and gave up. I've been using a little more xanax than I'm comfortable with and although the oncologist said she wasn't worried about the way I'm using it, it bothers me a little and I think something like Buspar might be better for a long-term use.
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Moomala,
Sorry to hear of your diagnosis. What a shock after so long! I had a similar situation with initial diagnosis in 1987, recurrence in 1989, then metastases in 2012. My oncologist said, "let's hope it's an indolent cancer." Same cancer--those sneaky cells! Hope the radiation helps with your pain quickly, and that you can get a good treatment plan started.
Elderberry,
Sleep well! Thinking of you.
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Schnauzermom: I had to go back and re-read your post. 7 years after liver met DX. I am still full of worry and despair. I have no faith in our local cancer agency in Vancouver even though it is considered "First Class" I don't have total faith in my MO - even though I saw her just once. I am on a waiting list for chemo for f**k sake. No idea when I'll get in. Lordy - I am Stage IV. I'm afraid I'll be dead by the time I get my chair. I got a referral from my GP sent out today for a extremely well thought of onconogist attached to Lion's Gate Hospital in North Vancouver. HIs office said if it is marked "Urgent" he'll be able to see me in about than two weeks. Seems getting a chemo spot will easier as well. Should I get a call from BC Cancer Angency that I have a slot sooner, I'll take it. But I am still changing oncologists.
Trying to keep the faith.
Hope you are doing well
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I have to say I thought Vancouver BC was supposed to be quite progressive and modern? Maybe I am wrong about that in terms of medicine? I am sitting here reading that you are on a chemo wait list and feeling shock for you! That sounds incredibly stressful and I can completely understand even on a deeper level why you are not sleeping and having anxiety. I have heard several Canadians on here complain about the health care system in Canada - which has always been a surprise to me (I was fooled by Michael Moore’s film that showed Canada to have an amazing health care system if I remember correctly!).
I am glad you are going to see a 2nd MO. It is quite difficult to put one faith and life into another hands and decision-making brain. They are definitely “playing god” in many ways, as are heart surgeons and other medical providers. Our only hope is that the ego stays out of the way!!!
Please let us know how you are doing.
Love,
Philly
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IChangedMyName: Yes -- I am happy to have universal health, yes our taxes are higher but ALL medical care is covered. It helps to have extended health for prescriptions drugs but you can get help with those as well. But the problem is - BC Cancer Agency gets people from all over the province, lots of very small towns and only a few major cities, most of them crowded in the Greater Vancouver area. So facilites get stretched.
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IChangedMyName: Footnote: cancer prescriptions are also covered - including our version of Neulasta.
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