Tamoxifen

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Gilli76
Gilli76 Member Posts: 2
edited April 2019 in Middle Age 40-60(ish) Years Old With Breast Cancer

Hi friends! I’m just curious to see how tamoxifen is making you feel. My last radiation treatment is Tuesday and I start my tamoxifen Wednesday. I’m more nervous for tamoxifen than I was radiation and surgery. I know it reduces my chances of breast cancer recurring but I don’t want to feel awful for the next 10 years. I have 2 children at home. My oldest daughter is in college and will be moving out in the next 2 years or so. My son is 5. He just started Kindergarten. I wish the side effects were “reduces wrinkles, lose 10 pounds and unexplained bursts of energy” 😊 Thank you! Love, prayers and strength to all of you.

❤️ TLG

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  • Meow13
    Meow13 Member Posts: 4,859
    edited October 2018

    Make sure your doctor keeps an eye on uterus. You may have menopausal symptoms. May have joint pain as well. I never took tamoxifen but did AI treatment. It feels like you are aging. My SIL unfortunately was one of those very rare cases that developed uterine cancer from tamoxifen. I blame her doctor she complained of feeling something which turned out to be tumors. By the time the doctor investigated it was too late to save her. So I can't say this enough make sure your doctor is monitoring you. Don't be afraid it is extremely rare.

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  • edwards750
    edwards750 Member Posts: 3,761
    edited October 2018

    OMG Meow that is so tragic. I’m off Tamoxifen but I know ladies who are still taking it. I’ll pass this on to them.

    Diane

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  • KCMC
    KCMC Member Posts: 208
    edited October 2018

    Hi, I started taking Tamoxifen in February of this year. Make sure you get a base line sonogram of your uterus to check the thickness of your uterine lining. After that you need to have a follow up sonogram every year to keep an eye on any changes. Tamoxifen can also cause blood clots, with my oncologists approval I have been taking a baby aspirin a day. I have no joint pain, but I do have hot flashes, a couple a day and a lot of vaginal discharge. I wear panty liners for this otherwise my underwear would be stained. There has been vaginal changes, so i moisturize the area with coconut oil or my Gynecologist told me even olive oil would be fine. Good luck, I hope you have limited side effects.

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  • Gilli76
    Gilli76 Member Posts: 2
    edited October 2018

    Thank you for your replies. Meow I’m so very sorry to hear of your loss. That is heartbreaking.

    KCMC, An aspirin a day sounds like a great idea. I will ask my oncologist. Thank you so much.

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  • Allenan
    Allenan Member Posts: 111
    edited April 2019

    Hi

    I have been on. T for 6.5 years now. Really tolerated it well. However i do feel my joints have aged 10 years. I would get a light period once or twice a year and had TV ultrasound each year. Thickness have been 7mm to 9mm for the last 5 years. Had biopsy in 2015. Benign.

    Now i am having a full blown period at age 54 after going almost 1.5 years with just light period in Nov 2018 Cocerned bc GYN said i missed last year's TV ultrasound in Sept 2018. Had death in family so i guess i was not paying attention. I will have to get a Biopsy asap. YIKES

    Btw...my Onc says i need to stay on tamoxifen for 10 years. That is the new guideline.


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