Nipples ....

Options
178101213

Comments

  • HPFULL
    HPFULL Member Posts: 247
    edited November 2018

    I some how missed all these kind words coachvicky, Lori70, and bella2013. I must not have added this my favorites. Thank you so much for your kind words and sharing your experience. Bella that Is so awesome that you got your nipples. Hugs to you

  • Dovely
    Dovely Member Posts: 91
    edited November 2018

    I was wondering if anyone that had a nipple sparing mastectomy had speckled nipples afterwards: a mixture of light pink and darker skin after major scabs fell off? Will that fade? Also, mine have no projection at all right now, they are flat. Not a huge deal to me (more bra options) but I was wondering if that changes.

  • TaRenee
    TaRenee Member Posts: 464
    edited December 2018

    I am 2 was out from my tattooing and they look amazing. Went to my PS today for my very last appt. (until 2028ish 🙌🏼) He said I look amazing and he’s sorry but happy to see me go. It’s rather bittersweet. This is hopefully the end of the surgical journey. But I will actually miss him.

  • HPFULL
    HPFULL Member Posts: 247
    edited December 2018

    That is so great that you are done until 2028ish TaRenee. Congrats

  • coachvicky
    coachvicky Member Posts: 1,057
    edited December 2018

    TaRenee ... Great news. I am happy for you. I miss my PS also as well as his staff. I believe, like you, these people become so much a part of our lives and recovery.

    Coach Vicky

  • HPFULL
    HPFULL Member Posts: 247
    edited December 2018

    I had my LICAP flap procedure yesterday. I was told before surgery that they would probably be able to do nippple reconstruction. It didn’t end up happening as I guess there wasn’t enough blood flow. Does anyone know if they can do something like this at a later date? I see the PS Monday so I am sure he will tell me but I was a bit dis

  • Imkopy2
    Imkopy2 Member Posts: 265
    edited December 2018

    HPFULL- yes nip recon can be done later after you have healed, however if a person has thin skin or trouble healing then they may not. Your surgeon will be able to give you specifics for your case.

  • star2017
    star2017 Member Posts: 827
    edited December 2018

    my ps said nipple recon could be done in an office visit



  • coachvicky
    coachvicky Member Posts: 1,057
    edited December 2018

    I had my exchange surgery (expanders to implants) 20 January 2017 and nipple recon the following October with 3D tattoos in March 2018.

    The nipple recon was a surgery.

    Coach VIcky

  • CBK
    CBK Member Posts: 611
    edited December 2018

    I’m scheduled for nipple reconstruction with PS indicating she will be using tissue from my abdomen. This sounds like an “older” approach as a read through some information on the procedure.

    Any input from those who had reconstruction this way? I’m also having revisions along with nipple reconstruction so I’m thinking this may not be the simplest surgery. Surgeon needs to fix right side capsular contracture from hematoma formation. Tweak dog ear left side and liposuction small donor site scar from LD flap.

    After reading through threads I wonder why she can’t just form nipples from current “breast mounds”? Any input?

    Thanks all!!

  • star2017
    star2017 Member Posts: 827
    edited December 2018

    cbk, did your skin stretch easily? Did you have radiation? For me bc of the radiation the skin is fairly tight, so the ps said she wouldn't use the skin of the breast mound. In my case they're planning to graft from the remaining nipple.



  • CBK
    CBK Member Posts: 611
    edited December 2018

    star2017

    Radiation is one thing I didn’t have. But I did have LD flap on right side because my skin was thin and circulation was just not allowing me to exchange to implant that would have been a big enough size.

    But skin and circulation look good now. Strange she’s taking skin from abdomen too, I need to ask more questions now that I’m investigating options.

    I hope you are healing well from you recent surgery! I’m not having revision/nipple surgery until April! How about you? I think I feel good about my six month wait, lots for me to settle into!!

  • star2017
    star2017 Member Posts: 827
    edited December 2018

    I’m waiting too and enjoying the break. Need to decide if I want to bother with fat grafting.



  • SuQu31
    SuQu31 Member Posts: 160
    edited April 2019

    I am now to the exchange and nipple reconstruction part of my process. I'm interested in hearing the pros and cons about nipple reconstruction versus 3d nipple tattoos versus both versus neither. I had LD flap reconstruction, so the nipple placement already is there (nice round circles) and reconstruction will happen along with the exchange. I'm also interested in the recovery period since this may be done during the summer months and I would like to be able to enjoy lake, beach and pool time, if possible. I've had a couple of people point out that women spend a lot of time covering up their nipples, so they did not really see the reasoning for nipple reconstruction, but I think I want to do something to make my breasts look more realistic. I am in the process of reading through this thread now, but any advice or experiences you wonderful women can provide will be much appreciated. What a wonderful community this is!

  • CBK
    CBK Member Posts: 611
    edited April 2019

    I’m having my nipples done this Friday. Bandages stay on for minimum 5 days post-surgery and you can’t get that area wet during that time. Depending how the aureole takes on surgery it may not be necessary for me to have additional tattoo work.

    Skin will be taken from my existing breast and molded into my new nipples. I have quite a few other revisions I’m doing at the same time; fixing capsular contracture on one side, slightly sizing down both implants and liposuction on donor sight of lat flap. Yikes.

    I’m very interested in others input as well especially those that had surgery to reconstruct!




  • SuQu31
    SuQu31 Member Posts: 160
    edited April 2019

    CBK, thank you for the information. Please keep us updated on how it goes, and I hope others will chime in with their experiences.I'm hoping all goes well for you.

  • Leslienva
    Leslienva Member Posts: 489
    edited April 2019

    CBK, I had nipple reconstruction and it went really well. Don't be worried if they protrude a lot at first--they will go down! I also had some fat grafting from my stomach and that was the most painful part. I had to wear pants and skirts with elastic waists for several weeks because it hurt to wear anything that zipped. Still, I was really happy with the reconstructed nips. I had them tattooed about a year later, and they're definitely the best part of the reconstruction.

  • CBK
    CBK Member Posts: 611
    edited April 2019

    Leslieva

    Glad you popped in here! And you had such a positive nipple reconstruction experience; I think some of my friends and my PCP think I’m nuts for doing this surgery, but it was something I needed to do!

    I had a lot of revisions; downsized implants with capsulectomy and pocketwork, lipoectomy on my back for a scar at lat flap donor site and the nipple reconstruction!! All at once, so it was super intense as I was under over 4 hours. Just ditched the toradol yesterday!!

    I took off all dressings except my steri strips and my nipple ones; they have to stay on until Thursday. I’m so anxious to see them. I’m really happy with the other work but holding my breath for the unveiling of my nipples!

    I am getting some “zingers” like after my BMX with tissue expander placement. I wonder if that is the pocketwork or the placement of nipples ?

    Thank you sharing your experience!!


  • Shoregirl
    Shoregirl Member Posts: 375
    edited April 2019

    CBK you sound like me with all those revisions!! Its been a long road. BMX and TEs Jan 2017. Implant exchange April 2017. I have had 3 revisions so far, with 2 different surgeons. Scheduled this Thurs with PS #4 to do some fg on one side, then in 3 months he will revise the other side that was completely botched by previous PS and do more fg. Once that is all healed, I am having him give me the cherries on top...Nipples!!! So I probably will be looking at next spring for tats. This thread doesn't get much action, but I have it in my favorites as I am def going to proceed with nip recon. I would love it if you give updates as you heal. Best wishes for a great outcome!!

  • CBK
    CBK Member Posts: 611
    edited April 2019

    Hey there Shoregirl

    I honestly don’t blame my PS for any of this insanity. I had really strange things that happened all during my reconstruction; thank the universe none were a total disaster- although taxing on the psyche and the nerves!

    My right side was never right , my BS actually admitted she took too much tissue during BMX and PS had little to work with. That combined with my stubbornness to be the same size post BMX landed me in a heap of trouble and multiple surgeries!

    It’s just been one thing after another ... but I hoping we got this now! I love my reconstruction surgeon I think she is both brilliant and compassionate!

    I will definitely keep you posted for the unveiling on Thursday! Are your implants pre-pec?

    No talk of fat grafting for me, but probably because I’m sub pec and upper poles have always looked good.

    Come on nipples.... don’t let me down!

  • Shoregirl
    Shoregirl Member Posts: 375
    edited April 2019

    Hi CBK...one more day!! I am glad you have a surgeon you can trust and she is compassionate. That goes a long way and you would think PS dealing with breast cancer survivors would always be so, but unfortunately I have not found that to be the case. Did you have all that work..downsizing, capsulectomy and pocket work last Friday along with the nipples? I am surprised the nipples could be done at the same time as those revisions!!

    My implants are pre-pec. The first PS recommended those instead of sub pec because he said it is a much easier recovery and no animation deformity. But I kind of feel like I would not have had all these complications and revisions had they been placed sub pec!! The sad part is, the results were beautiful after the 1st exchange. The problem was, the pockets were too loose and the implants were ultra high profile. They kept flipping over backwards.....flat part facing out. Not cute!! I would have let him revise but he wanted to go BIGGER which was out of the question for me. They were already bigger than I wanted and heavy! Also he does not do fg or nipples. Tried to convince me time and time again to just get 3D tats. Said nip recon just flattens out anyway, its another procedure blah blah blah. But I have chatted with women here that are very happy with their recon. I think he just didn't have experience with it.

    So I moved on to PS2. She was compassionate and also did beautiful work but didn't add alloderm to one side and it resulted in that implant falling 2" below the other. Then she stopped par before I could get in for her to fix it. I found PS3 and what a fiasco that was!! He left me with a completely deformed left side. The lateral and IMF areas are completely flat due to extra tight deep internal sutures. He had me come back to fix it under local anesthesia and when he closed he did the exact same thing. So I endured the 2nd revision with him to fix his screw up for nothing. I was devastated. My beautiful reconstruction now looks like a 10 year old did it! He actually wanted me to come back for a 3rd time and let him fix it again under local AND let him do fg under local!! Umm.....NO!!!

    I am hoping PS4 is the last PS I have to go through. We are on the same page, I just have to hope and pray he can fix this mess. At the rate things are going I am probably looking at Oct for nipples. Do you know how long after nipple recon you have to wait for tats?

  • SuQu31
    SuQu31 Member Posts: 160
    edited April 2019

    CBK, thank you for keeping us posted. I hope you are pleased with the results. I look forward to hearing what you think about your new nipples - I am trying to decide if I want the reconstruction or just 3d tattoos. I like the idea of not having to cover my nipples anymore, but the truth is, I wear a bra every day anyway, just like I've done since I was old enough to need one. I am ready to schedule exchange surgery once I decide what to do about nipple reconstruction. Leslienva, thanks for giving me optimism that the nipples will look good, and also for letting us know about the pain from fat grafting - my PS wants to do a little bit to soften my "top shelf."

  • CBK
    CBK Member Posts: 611
    edited April 2019

    Shoregirl- My PS is everything you could hope for in a Dr. travels overseas once a year with her own group to Africa and other underserved areas to donate her surgery services; burn victims, cleft palates etc. Honestly she is one of the reasons I made it thru these last two years; always provided a sounding board for the insanity I felt I was living through!

    Yes all of those revisions were performed in one surgery plus the lipoectomy on my back. I developed a hematoma after exchange surgery on my lat flap side which turned into capsular contracture; since I knew I needed other revisions and nipples we left it to do it all at once. I downsized my implants very slightly 50cc on each.

    I know pre vs sub pec.....so much to consider. My PS is not a fan of fat grafting in the least either so if you are comfortable she pushes for sub pec. But I could have went either way.

    You had a very rough go of it. I don’t understand why surgeon could not make implants fit in pocket of the size you desired? Well hopefully all this can be remedied in time.

    My PS says depending how this surgery takes I may not need tattooing. It’s a waiting game to know. She showed me some of her reconstructions where the aureole didn’t need to be tattooed!

    SuQu31- I never had nipples that caused me problems in cold situations. Haha. My friends were all like why nipples they are such a pain? Never a pain to me! I’ll let you know how they look tomorrow after bandages come off. My PS does the nipple reconstruction when not combined with other revisions sometimes under a local; depending on the patients ability to handle it. But it sounds like you are having exchange and possible nipple reconstruction at the same time. Wow you had lat-flap with original BMX? How are you feeling with it?


  • SuQu31
    SuQu31 Member Posts: 160
    edited April 2019

    CBK, I can't wait to hear how you like your new nipples (Wow, the things I say now that I never would have said before! hahaha). I did have lat-flap as my original reconstruction on both sides with tissue expanders. That is what my PS recommended, and I can't remember all the reasons why, but they seemed like good reasons, so I went with his recommendation. I did not find these boards until after my reconstruction, and the horror stories caused me much concern as I healed. However, I have had no problems so far. I had a small problem with range of motion on my cancer side, but that was because of the location of my re-excision for a close margin - taking that extra skin and tissue made it pretty tight for a while, but I had a few sessions of physical therapy and no problems now. My PS did circles instead of "footballs" for the lat flaps, so the nipple locations are already in place, and he will do the exchange and nipples at the same time.

  • CBK
    CBK Member Posts: 611
    edited April 2019

    suqu31

    Hahaha! I don’t go until later this afternoon 😬. So nervous. Can’t see a thing behind the bandages I think they are actually stitched on. The bandages are these little yellow mounds that are covering my hopefully new nipples.

    Yeah tell me about it with the lat flap, I had mine because my skin on right side would not support the size implant I wanted. It was the easiest surgery I had yet. I had no down time, I didn’t even take pain meds post lat flap. I went to PT after my first final exchange and my PT guy was brilliant. He had experience with ladies with lat flaps... so happy with him. He got me back into weight training. Which I can’t do now but I’m going to ask today to be sent back to PT after this surgery to recover better. I fear all that strength I built up I’m going to lose being stagnant here for so long.

    Ok .....let’s see what the unveiling brings!! Be in touch later!!!

  • CBK
    CBK Member Posts: 611
    edited April 2019

    Yay!!!!!! Nipples and aureole took well! The swelling is prominent so it will take weeks to months to go down. Like my nipple right now is 50 percent bigger than it will be when it settles in.

    I just have to keep putting on antibiotic creme with light gauze for the next few weeks until I see surgeon again.

    I have to keep breast strap on to discourage the foobs from hiking up and let them settle into the pocket.

    With all those revisions they removed all steri strips on foobs today and just left steri strips on my back on donor site of lat flap scar where I had lipoectomy.

    Bonus: I get to shower after 6 days!!! 😆 I’m really happy!!


  • Leslienva
    Leslienva Member Posts: 489
    edited April 2019

    CBK, glad the nip recon went well! Don't worry if they protrude too much at first--they will go down! Mine are just enough that if I ever did go without a bra in public, the nips wouldn't be really noticeable.

    I think you're supposed to wait at least six months until you get the tattoos. My tattoo artist wanted to make sure they were completely healed. I think I waited nearly a year but that was mainly fitting it in. My tattoo artist was about two hours away and had a waiting list. I could feel pressure during the tattooing but no pain. It only took about 15 minutes!

  • CBK
    CBK Member Posts: 611
    edited April 2019

    I'm not certain I need any tattoos. My PS showed me photos of some of her reconstruction that didn't need to tattoo.

    But either way I'm ok.....as long as they don't flatten out, seems like I hear of that often. But I didn't even ask PS because we were discussing all the other revisions she did.

    She did such a beautiful job. Now I understand why we go through so much to get here! It just makes all the difference psychologically to some !

    I remember a long time ago my PS telling me her nurse does tattooing, I can’t imagine anyone else touching these girls after what I’ve been through!

    Does the tattooing last or need to be touched up periodically? . I mean technically these foobs aren’t seeing any sunshine!!

    Thank you Leslienva,Im just over the moon!

  • Shoregirl
    Shoregirl Member Posts: 375
    edited April 2019

    CBK I am so happy for you!! Now I understand how you were able to downsize and get nips at same time....you only went down 50cc. My 1st downsize was only 30cc and didn't affect my bra size. But with another 95cc downsized in Dec, if I had nips they would not be centered that was why I was asking.

    I see you are in NJ. Not too far from Vinnie in MD Vinnie Myers in MD. He is supposed to be the best. There is even a thread on here just about ladies going to Vinnie! If you do want tats, I would recommend him vs your ps nurse. My 1st PS tried to convince me to have his PA do tats on me but he told me they do fade and I would need touch ups. I have also heard from some ladies that the medical grade tats do in fact fade and one gal even said ended up looking like the Target emblem!! There is another artist in Massachusetts that specializes in nip tattoos, here is his website Tat Artist Mark Corliss.

    My ps told me he can make nipples by twisting up my breast skin or he can use the scar from my dogear incision that needs to be revised. Thats kind of interesting. I would think the scar tissue might not flatten out as much?

  • CBK
    CBK Member Posts: 611
    edited April 2019

    it’s so amazing to look down and see those nipples. I’m welling up! I don’t think so much that’s it is specifically the nipples or just seeing the light at the end of the tunnel 🌞

    Yes my downsize was small but she had to totally redo the pocket work on both sides; added a new ACD sling. I had a lot of scar tissue on capsulectomy side, she said it was pretty intense! Even the anesthesiologist remarked in recovery “she worked very hard on you, it’s going to be beautiful “ I feel so blessed finally !!

    I know it was only 50cc but they look so much different !

    My PS used my scar tissue and dog ears for nipples and aureole ; I’m hoping I don’t need tattoos and I certainly don’t want to have any bullseye 🎯 aureole. Omg Shoregirl the things we all have had to endure to get here.

    When is your next surgery??

Categories