How do you cope?

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cecyc
cecyc Member Posts: 59
edited April 2019 in Waiting for Test Results

Hi Ladies and Gentleman, 

I need some help.  How do you all cope with waiting for Biopsy results?  I feel like I have been in constant panic since January when I started going through tests an appointments.  I just had my Excisional biopsy last Thursday and while I felt pretty confident  because my Husband told me my BS called him right after to tell him that what he saw was tissue and he sent it out for testing the confidence faded right after that when I called to get more information and the office wouldn't say much to me.  I called this morning to switch my appointment and asked if they could please give me results over the phone and they said that the doctor does not like to do that but they will ask.  I feel like I am loosing my mind.  I can't stop thinking about it and I feel like I cannot allow myself to think it is benign even though my bi-rads was originally a 2. I know that a lot can hide behind dense tissue after reading all the stories here.  I have plenty of things to keep me busy but I just can't seem to concentrate.  Any advice would be greatly appreciated. 

Comments

  • Ingerp
    Ingerp Member Posts: 2,624
    edited April 2019

    Conventional wisdom is distraction. Binge watch something on Netflix, go out to a movie, watch some junkie tv. Time marches on and you will get your results.

  • kber
    kber Member Posts: 394
    edited April 2019

    Ugh - I hate the "no results over the phone" thing!  It creates unnecessary stress, in my opinion.  I don't have much advice, unfortunately, except that this part will soon be over and you can move ahead with whatever comes next.  Best of luck to you!

  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    Thanks ladies!  I feel that the way you get results should be a choice.  Personally I would rather get results over the phone on my own so that I can deal with it on my terms.  Then I can walk into an appointment and ask the questions I need to ask with a clear head.  

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited April 2019

    Do all the fun things you'd ordinarily do, plus some new ones. I went to an awesome concert the day after my biopsy. I remember the concert better than the biopsy almost a year later.

  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    It is so hard to enjoy things right now.  I hate this feeling.  Since I lost my brother to cancer I keep feeling that of course I also have cancer.  what would make me so different than him? I know that is not a good way to feel but I just cant help it. 

  • Natasha007
    Natasha007 Member Posts: 44
    edited April 2019

    cecyc,

    I'm not much help but wanted to say to please consider that you have not been diagnosed and you may not be. You absolutely have to allow yourself to have a little hope. The odds are definitely in your favor at this point.

    Please consider calling your breast center and asking to speak with the nurse navigator. Your center should have one. Mine was so helpful and she gave me general information (not about my specific case) and after speaking with her, Ihad hope that I desperately needed. She also told me to download the calm app (blue cursive) and go through that several times a day. That helped. I also downloaded candy crush and made a goal to get through 20 levels a day. I also agree about Netflix.

    My Bi-Rad was 4C and turned out benign. Please have hope. I'm praying for you.

  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    Thank you!! I am hoping that the odds are in favor at this point. I spoke to my BS a little while ago and he said he removed all the hard area that was there. He said it didn’t look too concerning to him but that obviously we had to wait for the path report. I hate that last part

  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    Cecyc,

    I am waiting too. I do have a definite appointment for the 10th of April, which is fine by me. I wouldn't want to be told over the phone, that is brave of you to ask. I will go alone to get my results but want to be able to ask questions then and there, over the phone would feel so cold and impersonal to me. I shall have some questions written down and shall take a note pad with me.

    I had the biops on Saturday 30th March - went straight to buy a packt of cigarettes ( having stopped I absolutely needed one then!) came home and went to bed with healthy sandwiches and ginger and turmeric tea and watched who-done-its until I went to sleep. The next day I was out and about but yesterday only did what I had to do and back in bed with junk tv - ditto today, so far. I am not thinking about it all of the time but of course it is always there - I am sure my lumps are not benign but am now resisting 'researching' anymore on line. We shall both know soon enough and 'it' will or will not have a specific name. Our medics will tell us what treatment they can offer, if we need it, we can then go away and do some specific research and decide what we want to do.

    Tomorrow I have arranged to go for a long walk with dogs and a friend but for most of the time, I know that I will just curl up. The waiting game is alway tough, isn't it? The waiting always ends though and meanwhile we just have to get through as best we can - anyway we can.

    The Artist's Way by Julia Cameron - or some such, is not a bad idea at times like this --- I think I might do it again tomorrow but I just feel wounded at the moment - and need to just curl up.

    Love be with you all xxx


  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    Thanks Whitelight,

    You are very insightful!  I used to approach these situations with so much courage before.  But after 2017 anxiety has just taken over.  I am a believer and know that my faith is strong enough to carry me over but I just cannot get myself to really trust that everything will be okay. I pray for good results for all of us and also pray for comfort for those who do not get good results.  

  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    My results are in and there isn't anyone available to give them to me! My surgeon is out at the hospital doing procedures all day. 

  • Salamandra
    Salamandra Member Posts: 1,444
    edited April 2019

    Hey cecyc,

    Sounds like grief and survivor's guilt to me. The waiting is terrible and will bring out anything else that's lurking in your psyche. Take care fo yourself and let yourself feel how you feel. No way out but through.

  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    Strength comes in many forms. I am using this waiting time to let 'it' sink in slowly - 'it' not being certain but possible and in my case probable. I am allowing myself a sort of freedom, a freedom to do what I feel like doing as opposed to what I should be doing but in that I am lucky, lucky that, apart from darling pups, I live alone and have no everyday responsiblities now that I have deferred my studies until this adventure/ordeal is over - I do think I might be a bit grumpy to live with at the moment so it is just as well I'm alone.

    For those of you who have loved ones at home it must be terribly hard in other ways than it is being alone with it.

  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    Let us know xxx

  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    i picked up my results from Pathology. Benign!!!!! That's all I see. There is more information on there but this is all I can concentrate. Thank God. Thank you all for your feedback and encouragement. Cancer took my brother away and has made me a total wreck filled with anxiety. I want my life back!! This is a good start! God bless you all for your kind heart and for taking the time to respond to me

  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    Cecyc,


    I am so pleased for you and sorry that cancer took your brother, of course that would have brought up so much emotion.


    xxx Good ho xxx

  • cecyc
    cecyc Member Posts: 59
    edited April 2019

    Hi Whitelist,

    Any updates?

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