Tomorrow cannot come soon enough!

Options
Catob1969
Catob1969 Member Posts: 26

I know you all know what I am feeling but I wanted to write it out and vent a little.


I feel like I have been waiting forever to meet with the medical oncologist for Oncotype testing results when in reality, it has only been two weeks since the surgeon referred me to a medical oncologist and sent my sample for Oncotype testing.


So many decisions are riding on this appointment.


I met with the surgeon twice and had the usual batches of testing, from genetic testing for BRCA status(negative) to MRI and core biopsy.


When I went for my 2nd appointment with the surgeon, I was stunned when she told me it wasn't 1.3 cm, it was 3.8 CM! and she wanted me to consult with a medical oncologist to see if it can/should be shrunk before lumpectomy.


As a backstory, I also have an autoimmune disease, so I am petrified that some therapies, like immunotherapy, are not available to me. (not that I am a doctor, I just google too much, as we all do :) ). My rheumatologist took me off my biologic treatment to prep for surgery. Surgery is scheduled for 4/11/19 but could be canceled based on the medical oncologist appointment tomorrow.


The tumor is Estrogen and progesterone positive ( over 90%), HER2 - so I have my fingers crossed that I can take hormone therapy not chemo.-there I go again playing doctor :)


So, here I sit, until 9 AM tomorrow morning, rolling all the options over in my head again and again, and trying to plan for every eventuality. I know it is impossible.


I will think positive thoughts, keep my fingers crossed a little while longer, that chemo is not the plan just hormone therapy, and then a lumpectomy.


I never thought I would be HOPING for such things.


I am keeping you all in my thoughts, as we all struggle with the waiting,


Thank you for being here so I can vent!






Catherine









Comments

  • FrenchPorsche
    FrenchPorsche Member Posts: 75
    edited March 2019

    Hi Catherine (same name as me - lovely name obviously).

    I feel for you. Waiting is so hard. I am due to get results of my second biopsy tomorrow afternoon and just want to get on with things! I believe we might not even get to talking about treatment options then, so will have to wait even longer. It’s torture!

    Sending positive vibes for your appointment tomorrow. I hope you get the best news as can be under the circumstances.

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2019

    Catherine,

    We're so very sorry for the anguish you're experiencing in making your treatment decisions -- we know this is a very difficult time, between diagnosis and treatment, and we're all here for you!

    Just know you'll feel much better once you have a plan in place. Keep us posted on what you decide!

    --The Mods

  • Catob1969
    Catob1969 Member Posts: 26
    edited March 2019

    Thank you! I will keep you in my thoughts as well!

  • Beatmon
    Beatmon Member Posts: 1,562
    edited March 2019

    Catob, I hope you get your plan in place soon because it does relieve some anxiety and part of the fears goes away

  • April0315
    April0315 Member Posts: 223
    edited March 2019

    hoping you get some good news soon (it’s amazing what we think “good” news is at this point!). Hang in there

  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2019

    Oh Catherine we truly do feel your pain. No words can begin to describe how nerve wracking it is to wait on test results. I am the poster person for worrying so it’s especially difficult for me. My internist prescribe the generic version of Prozac and it does helptake the edge off.

    I waited 2 weeks for my test results too. Pure unadulterated hell. The results of my test would determine whether I needed chemo or not so I can definitely relate. My results came in the day before I was supposed to meet with my oncologist. She ordered the test. My score came back@11 so I dodged chemo. Whew! I did have radiation treatments but they weren’t bad at all.

    Hoping you get a similar result. Keep the faith and keep us posted.

    Diane

  • beach2beach
    beach2beach Member Posts: 996
    edited March 2019

    It was nerve wracking. Every time my cell would ring I'd jump,.torture. I actually missed the call and heard my dr's voicemail. Then I called her to make sure I heard her correctly . I hope all goes well for you.

  • Catob1969
    Catob1969 Member Posts: 26
    edited March 2019

    Thank you all. I have a very solid treatment plan that I am comfortable with. Your support and kind words helped get me there :)


    Catherine

Categories