Significant pain due to scar tissue/fascial restriction

SAOIsenberg
SAOIsenberg Member Posts: 429
edited March 2019 in Pain

Hi all - looking to see if anyone's experienced this and what you've done.

I had a bilateral MX in '11. It was nipple sparing w/immediate reconstruction w/subpec saline implants. I came through great, got back to normal activities, including being super active, lifting weights, cycling, etc. Over the years, however, I have had significant issues w/recurring bilateral shoulder dysfunction which in the last several months we've pinned down to implant placement. A lot of PT has helped with that but I've still been completely sidelined since Oct. '18 (no weights, no cycling, can barely walk for fitness) w/severe trunk and low back pain which the breast PT I've been seeing says is caused by an abundance of scar tissue and cording and fascial restriction due to the surgery - in particular on my right side. She has made huge progress in releasing this (it's really amazing that someone can massage your breast and the surrounding area and your low back and hip flexors can release - but I guess that's the magic of fascia, right?), but we tried some hip strengthening exercises last Tues. that set me into horrible spasm.

I think I need some pain management help at this point - when I am in spasm, I feel beside myself. I have trouble focusing during the day and can barely sleep at night - I've been taking Extra Strength Tylenol and Advil to try to help manage the pain, but I think that something stronger, especially at night, is needed. As we all know, not sleeping makes *everything* so much worse.

Wondering if anyone here has experienced this kind of muscular/fascial/cording pain and how she dealt with it? How long did it take to resolve? Any tips for dealing with this (including alternative therapies)? I'm feeling super discouraged as this is having a serious impact on my quality of life and it's just stretching on and on . . . .

Comments

  • Gaia74
    Gaia74 Member Posts: 2
    edited February 2019

    Hi there, I came looking for support for my situation, which I can't tell if originates from pain and trauma or originates from fear and trauma or maybe just from scar tissue... I had a BMX in Jan 18 with immediate reconstruction that failed- yes thats right, the incisions both came open at home in the woods while the implants bore down on the incisions. Needless to say, they came out. I'm flat now, with nipples as I had a nipple sparing surgery. And I also had significant trauma to the pecs, I would imagine, having the implants in and out a few times. I'm lucky in that I don't have significant pain on my chest, no burning hot sensations, just incredible tightness and increasing and very substantial shoulder pain that seems very widespread on my back. Of course this also runs straight up my neck and now induces multiple muscle spasms, finally making my head feel like I have meningitis and vertigo. I see a PT regularly as well as do myofascial release with a separate practioner. Despite stretching, strengthening, yoga, walking, skiing, massage, MFR and PT I cannot seem to break the pain or the tension. Ive got cording and webbing as well as lymphedema.

    I've got two young children and I am a mess. Its beyond difficult to manage the pain on my own, it requires all of my concentration and I have no energy left for joy or lightness. Nearly every morning after trying to sleep all night (Not successfully due to pain) I cry and cry. It feels like depression, but I get the sense if I could get out from under the pain syndrome/cycle I'd have relief. I do not know how to manage this snowballing crisis of pain and emotions, like you I'm frustrated and unsure of what might help. CBD topically does seem to have some effect, am thinking of trying to get some medical marijuana as CDB internally does nada.

    Have you tried acupuncture?


  • MexicoHeather
    MexicoHeather Member Posts: 365
    edited February 2019

    Are you taking a muscle relaxant at night? Work on the sleep part first. because that's the most important way to heal. Also I put Biofreeze on the shoulder and aromatherapy massage lotion on scar. I finished 2 rounds of PT, and as long as I continue to do it, I can be okay.


  • ksusan
    ksusan Member Posts: 4,505
    edited February 2019

    Have you seen a PT? That was what I needed, for significantly less trouble than you're describing.

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited February 2019

    Gaia74 God bless you. I am sorry you are experiencing such extreme challenges. I had my BMX in June and still struggle with varying levels of discomfort and tightness. And it always seems to wind up at night. My current challenge is discomfort in the center wall of my chest. Upon dialogue with my PS, found out that my surgery wound up not being a true prepec placement. She cut some of the muscle and put the leading edge of the implant underneath so there would be a prettier transition as I was so thin. So when I lay down at night the foobs try and drop a little to the sides, pulling on that musculature and discomfort! So I have taking to wrapping myself with an ace bandage before bedtime to keep those foobs in place and it helps somewhat. And I sleep propped a little upright.

    I continue to have massage which helps release my truncal area. And I have also begun acupuncture which helps with the tightness and my hot flashes. My massage therapist also suggested I try a fascia massage tool to use on my own in between treatments and that is helping. Sorry I wish I had some suggestions for you to try. But I do agree with you that it winds up being cyclical. You have your worst symptoms at night, so you begin to dread the odyssey of trying to sleep through the night, which in turn makes everything worse because you tense up. I hope the CBD oil can begin to give you some relief.

  • SAOIsenberg
    SAOIsenberg Member Posts: 429
    edited February 2019

    Oh Gaia74, your situation sounds so hard, I'm so sorry you're dealing with this. And with little kids, it's all that much worse. I haven't tried acupuncture for this yet, that might be another good step as I'm really not into painkillers if I can avoid them. And I know that the mental part of this feeds the physical - I'm sure you're feeling somewhat depressed & hopeless, this has been a long journey for you with so many roadblocks! Is there someone you can talk to about it all?

  • SAOIsenberg
    SAOIsenberg Member Posts: 429
    edited February 2019

    MexicoHeather - ha! Funny you mentioned this yesterday. After I posted this on Saturday, I emailed my doctor and asked if he'd prescribe muscle relaxants, he did w/no problem and I started in on them. They make me loopy and tired, but it was the weekend and my husband was around and I wanted to see if I could break the cycle and/or at least get some sleep. They have been helping a lot. I'm significantly better today after taking them 2x Saturday and 2x yesterday (one a.m., one before bed yesterday). I am still spasming a bit but as you said, at least getting sleep helps. Not a long-term fix but it's comforting to know I have a tool to get some rest when things get really bad. I've never used biofreeze, might pick some up to try - thanks for that suggestion too!

  • 2002chickadee
    2002chickadee Member Posts: 129
    edited March 2019

    Hi all,

    I had headaches so bad last December they sent me for a brain MRI (no mets, phew, but sure doesn't help the stress!), and it was not my MO but my blessed primary care doctor who suggested a two-week course of Baclofen, a muscle relaxer. The headaches eased immediately. They made me exhausted day and night but it was worth it, especially as I really needed the nighttime sleep to maintain my sanity (also have two little kids and work fulltime, I hear you!). Now I am in PT and trying to get my body out of the cycle of pain and into using my muscles correctly again, it's some combo of neck-traps-rotator cuff-shoulder-chest, etc. etc. basically the whole upper right quadrant of my body! Pain migrates around and makes me nuts with trying to figure it out sometimes.

    I'm intrigued to hear that SAOIsenberg found that your shoulder dysfunction (what I've heard I have from some of these folks trying to help me sort it out) impacted your low back. My back has been killing me these past few weeks, and while I'm pretty sure it's muscular of course your mind goes to bad places with that! Can you share more about what you did to release your back?

    I went to an acupunture session today, it definitely released a lot of neck stiffness, but I wasn't in full spasm either.

    I've also found the fascia in my abdomen tightening up recently so I've been stretching that at home. Our bodies sure are one connected ball of wax.

    Gaia74 I hope some of these tips can help you find relief! Not sleeping is so, so hard, and pain that doesn't stop is also so, so hard. Sending hugs.

  • 2002chickadee
    2002chickadee Member Posts: 129
    edited March 2019

    Oh! Gaia74, one other thought for you. When I was due to go to radiation in November my shoulder pain was so bad I didn't think I could put my arms in position every day. I saw a pain doctor at the cancer center who gave me an injection to block the nerves. I went again after radiation was done to get a second injection to address pain in my chest/underarm/back (probably from radiation, who knows). Both of those injections worked like a charm, lasted a few months. I wonder if you might want to ask about that? And there aren't systemtic side effects like with a muscle relaxer. I haven't repeated because I want to feel the pain right now so I can work on recovering normal strength and motion, but it helped me through a few months that might have felt impossible otherwise.

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