New Diagnosis - Waiting for Flavor

Hi Lori,

We just wanted to let you know we're so sorry to hear of this new diagnosis. We'll be sending all our best thoughts for best scenario possible, early findings, and a solid treatment plan put in place ASAP.

Please keep us posted on what you find out, and remember we're all here to support you no matter what!

--The Mods

Lori

I'm in the a some what situation. But it wasnt a tumor marker test it was me just making a comment about pain in my back. After CT scans I was told mass on my lung size of a grape. I had a biopsy and I was just told its not lung cancer its breast cancer so Mets. I still find that odd. Isnt cancer in the lung ,lung cancer? My oncologist called me yesterday to tell me the pathologist confirmed mets. The lung specialist just ordered a PET scan and MRI. I'm not sure why if they know it mets and the CT scan results show only in my lung. My doctor is going to start me on Ibrance just waiting for insurance to send to form for coverage. I am so crushed that Im going through this. I know there is alot of treatments. But I have no idea what the future holds. I havent told my boys that will be so hard for me. I want my normal boring life back. Good luck Lori I know how you ae feeling.

pip

Pippy, Lung cancer is treated with different medications than breast cancer that has metastasized to the lungs. The CT scan may just have been chest and abdomen, so they may want the PET scan to see other areas. I think the PET scan is a little more sensitive. I am so sorry you are dealing with this. Hoping the Ibrance works very well for you.

LoriBach, Hoping your bronchoscope goes well and that you have a plan in place soon.

Thinking of both of you.

I had a tumor marker test in October and saw my onco then, all fine. Two weeks ago, I went for my annual intimate moment with my gyno, who noted a lymph node just above my clavicle (BC side) was enlarged and ordered an ultrasound. Biopsy came after that and I got the bad news 3 days ago. My onco scheduled a CT for the 20th and another biopsy on the 26th. No symptoms, but I"m terrified. It's been 4 years since my first diagnosis -- Kbeee, we were in the same chemo group (March) in 2015.

Preliminary results on my CT -- barring the lymph node, I am otherwise stable. No mets.

I see my onco on Monday, but repeat biopsy isn't until Wednesday so the specific treatment plan won't be ready when I see onco. I do need to get my port back in, though, so might as well set that up.

Oh dear Lori, that is a tough turn of events. Hopefully immunotherapy will do the trick. I've also heard about mutations which might be a target - ALK comes to mind.

I never expected bone mets, always figured a contralateral lobular lesion was more likely so was vigilant about screening but that's not how things turned out.

Maybe you can use your experience here to set up some on line support for lung cancer patients!