I feel guilty complaining

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Via
Via Member Posts: 55

Do to the fact that my cancer came back not aggressive and we found it so early. I don't need any chemo or radiation. I only need hormone therapy and I don't feel I can open up to anyone on what am going trough. Its hard to complain about the surgery and the recovery that has been so painful to other. It seems my journey is a walk in the park because I won’t be having chemo or radiation. But, personally it has not been easy. My husband wants me to go to a group to talk to people other with cancer because I've been crying and I have felt no one understands what I'm going through.

But, how can I go to a group and complain or open up when I'm sure some others have to go through horrible treatment and I have none and here I am complaining. It does not seem right. But, I feel that this journey is hard even if I don't need treatment and the reconstruction of the breast is so painful and a life changing experience. I do feel alone in this journey. Not sure if someone else is in this lonely boat with me. That feel guilty of getting such good news I don’t need treatment. Anyone?


Via


Comments

  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2019

    No reason at all to feel guilty that you dodged treatment. You still have this insidious disease and that’s enough to make anyone anxious and depressed. You are fortunate to not have to have treatments. That’s good news.

    I agree with your husband join a group. I did and it’s made a world of difference being able to share. You are all there for the same reason in various stages and treatments and kinds of breast cancer so you have a bond no matter what you are dealing with in the process. There are several ladies in my group who have horrific issues to deal with their BC like lymphadema and one even is Stage IV now. We are all sympathetic and understanding of each other. No one thinks of you as being a whiner over nothing because it is something whether you are suffering as much as they are or not.

    I am blessed too that I will be 8 years out in August God willing.

    There is no group that can offer what these ladies can and have because no one understands better than they do.

    Good luck. I promise you feel better if you can latch on to a group and compare notes.

    Diane

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    Via, ironically I bet you would receive the MOST support from other cancer patients! We know how terrifying-- and bizarre!-- it is to be diagnosed with BC, and none of us would wish a harder course of treatment on *anyone*. The emotions are the same regardless of the severity of the treatment. I think your H is right. It is good that you realize you are lucky to have a less horrific course of treatment, but this does not nullify the pain of being on any long term treatment, nor the fear of recurrence of a disease that is scary. Personally I would absolutely hate to be on a hormone treatment (and I had chemo, surgery, and rads!). So I empathize with you! So don't be afraid to join a group!

    xox SB

  • mrsEO
    mrsEO Member Posts: 10
    edited March 2019

    Via, you are not alone! Guilt is something I have struggled with as well since my diagnosis - I went through surgery and radiation but no chemo due to the early stage diagnosis and low oncotype score...I felt like I had no room to be upset about my diagnosis and prognosis because so many women had it much worse then I did. I'll be honest, I still struggle with it. But after talking through it with some of my care team, I realized that ANY diagnosis and treatment of BC is serious and scary and upsetting and painful, even if your prognosis is very favorable. It is so important to let yourself feel the emotions you are feeling and to share them with someone...it really does help! I've found so much encouragement and support just from this community. Keep us posted on how you are doing!


  • Runrcrb
    Runrcrb Member Posts: 577
    edited March 2019

    it’s all scary and emotionally charged. If you don’t find what you need in a support group, seek individual counseling. You need a supportive sounding board


  • CaliKelly
    CaliKelly Member Posts: 474
    edited March 2019

    seriously!,be happy, I'm happy for you! I had plenty of nasty treatments, and I'm so, so happy when I hear from people who didn't have to have all the menu! My non cancer friends always apologize when they complain about some pain, or minor health issues. If someone is going through trauma of their own, they shouldn't feel guilty cause it's not as bad as someone else's. And you have every right to complain and feel sad, you have cancer! It sucks, no matter what treatments you have or dont have. Your pain doesn't lessen my pain and my pain doesn't lessen yours! I say, Bitch Away!! Cancer Sucks! Be sad for awhile, then be happy. I'm happy you dont have to have chemo or radiation, I wish nobody had to!

  • gb2115
    gb2115 Member Posts: 1,894
    edited March 2019

    I agree, you have every right to complain, even if you didn't have chemo or radiation, you still had cancer. And cancer sucks. Hormone therapy is not easy. I didn't have chemo, but I had radiation which sucked. And hormone therapy sucks too, and I think it's more depressing than radiation because there's really not much of an end in sight. At least radiation ended, you know?!


  • kber
    kber Member Posts: 394
    edited March 2019

    Oh Via honey - sending virtual hugs to you!!

    This is such an emotional roller coaster and you have the right to your feelings!  Don't let anyone tell you otherwise!  Cancer always sucks, no matter what.  Be kind to yourself and if it helps, talk to someone.  I agree with the posters above that the support groups would welcome you with open arms.  You'll find some who went through the whole menu, and some who had treatment like yours.  If that's too big of a step or not your thing, maybe one on one is the better way to go.

    But please don't ever beat yourself up for surviving!  You faced down a monster and came out the other side.  It's inspirational and encouraging!

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2019

    Via, I know exactly how you feel. I've never needed chemo yet (although one cancer was borderline), so in the real world, I don't talk about it at all after treatment was done, except EVERY once in a while to my husband. I even feel like I need to apologize for mentioning it in the first place to friends and family on FB while I was undergoing surgeries and radiation, like, "Whoops, sorry to scare you, it wasn't REAL cancer."

  • beach2beach
    beach2beach Member Posts: 996
    edited March 2019

    I felt the same. I dodged chemo and rads. Had a double mastectomy and walked out of hospital next day on my own and was raising my arms in a few days over my head. Yeah, I felt I had no right to even say I had cancer, because I didn't look like it unless I'd pull up my shirt. I remember saying that to my gyno and he said, it's not less significant that I had cancer and no other treatment than someone that had to. He said you didn't chose the type of cancer you got. Cancer is cancer.

    Of course I still feel that way a bit, but cancer sucks for us all. Some more physically than others and i give them all the kudos in the world. My sister is one. She was diagnosed years ago with IBC which is a Stage 3 out the gate had chemo before, surgery, rads. She was the first person I called when If ound out I had BC. When I found out after surgery and Oncotype that I didnt need chemo...and no rads because my nodes were clean..I felt almost like how could I complain to her when she went through so much worse. She was there for me, and told me the same like my Dr. said. Cancer is cancer. Do what feels right for you, go to a group, go private to a therapist, whatever you need to do.

    Maybe we need to start a group for those of us lol.

  • Via
    Via Member Posts: 55
    edited March 2019

    am like you my sister also had it. But, her was aggressive and well she lost the battle. But, I know she would be happy I didn’t have to fallow her foot step when it came to the treatment.


    We should start a group on Facebook for sure!!! Call Cancer but not so bad Cancer!

  • Via
    Via Member Posts: 55
    edited March 2019

    thank you for the hug! Your message helped me

  • Denise-G
    Denise-G Member Posts: 1,777
    edited March 2019

    You know, I think that is a great idea to start a FB group for women who did not need extensive treatment. Cancer is cancer and it hurts and is emotionally draining and scary. And recurrence fears are always real no matter what! I have heard from a lot of women through the years who have suffered with the guilt you all have talked about here. Some where to get even more support would be a great benefit to so many.



  • hapa
    hapa Member Posts: 920
    edited March 2019

    Join a group for survivors. I think the psychological SEs of cancer are way worse than any treatment related ones. I would not deny you my sympathy just because I went through more treatment than you, especially now since treatment is over. I sometimes think that I'd trade places with people with lower grade cancers who got to keep their boobs and lymph nodes, but I certainly don't think they don't deserve as much support as I do. It's not the treatment that I need support for, it's the risk of recurrence hanging over my head, and not being able to ignore my own mortality anymore that I need support for.

  • rachelcarter35
    rachelcarter35 Member Posts: 368
    edited March 2019

    Cancer sucks no matter the stage or grade and deserves its due raging and frustration. I personally feel changed for life. Some of it is a new underlying fear that I don't think ever goes away. But also I never knew how much I want to be alive and that part is cool.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited March 2019

    I've never felt the need for a support group, just an occasional vent. Besides, I'd have to pick a cancer and I wouldn't know which one! I have looked for multiple primary cancer forums but they don't exist under that name or any name I can think of. I'd really like to connect with other medical weirdos.

  • Via
    Via Member Posts: 55
    edited March 2019

    I started one on FB is call “Cancer but NOT so bad cancer if you are interested in looking for it ;)

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2019

    Believe it or not, some people think I should go around feeling only gratitude because I've had a good response to treatment for metastatic breast cancer. You know, that kind of blind mentality “be glad you're alive!" Please. I feel a whole mixture of emotions. I’m sure you do, too, even tho our situatiins are different.

    I read an article about a new book (written by a therapist) called “Maybe You Should Talk To Somebody". (I plan to read the book). — “With startling wisdom and humor, Gottlieb invites us into her world as both clinician and patient, examining the truths and fictions we tell ourselves and others as we teeter on the tightrope between love and desire, meaning and mortality, guilt and redemption, terror and courage, hope and change.

    She discusses how people tend to minimize pain, and here is an except from her book:

    “On her belief that there's no hierarchy of pain:

    As a therapist in therapy, I feel like often we minimize our problems. You know, "It was a breakup, not a divorce." It's kind of like people who have a miscarriage but they didn't lose a child who was 8 years old. They're these silent losses. ... I don't think there's a hierarchy of pain. ... Pain is pain.

    So even when I was seeing this woman who was dying of cancer, for example, and [she] was in her 30s and newly married and all of a sudden she was dealing with this horrible life situation, and then I'd have to go to a session where someone says, "My husband never initiates sex" or "The babysitter's stealing from me." I used to worry that I would not take their problems as seriously. But what I realized is that usually the thing that they're having a problem with is indicative of a deeper pain. What does it mean to be rejected or unloved by your partner? What does it mean when someone betrays your trust?

    I think that often we minimize our problems. We think, "Well, yeah, I've been sad for two months, but it's not that big of a deal because I have all these other great things in my life. I have a roof over my head, and I have a family" and whatever you might have.

    But pain is pain."


  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited April 2019

    DivineMrsM, that sounds like a great book. One thing that's been taken from all of us is normal perspective, and we'll never get that back.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2019

    Another aspect of this is that, as women, the issues we deal with in general are often minimized, sometimes trivialized and not given priority, We're often taught to say things like “It's okay." “I'm alright." and we’re often expected to take care of others and not so much ourselves. I can remember at a support group I went to briefly that the women there told me it was time to be selfish and take care of me. Gradually, I’ve gotten better at it, listening to my own intuition and feelings.

    Via, a really good outlet is journaling. Every day, write three pages of whatever you're feeling. No one ever has to see what you write. It's a very therapeutic exercise, and especially when I go through really rough patches, writing helps. It helps us collect our thoughts, organize them and get in touch with all that we're feeling.


  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2019

    I guess I have a lot to say about this, (haha) But I feel like getting a cancer diagnosis, whatever the type or stage or method of treatment, but what it does is destroys our sense of well-being, Kind of like “we’re not in Kansas any more.” The landscape has changed, and we are changed by this occurance in our lives. We grow, change and adapt, but it takes time, understanding and patience.

  • Via
    Via Member Posts: 55
    edited April 2019

    what you wrote is beautiful and to the point! So true!

  • Via
    Via Member Posts: 55
    edited April 2019
  • grayskies
    grayskies Member Posts: 52
    edited October 2019

    I understand. I "only" have a tiny DCIS, so I shouldn't complain. I had the tiny bit removed via lumpectomy with clear margins. Yet I still have to do rads for some reason. I meet with the RO next week for the first time.

  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited October 2019

    Such good comments here!! I think regardless of our dx or tx, we are always waiting for the other shoe to fall and if others haven’t been in that situation they may not appreciate how this effects our emotions. It is hurtful when others appear to want us to “get over it”......you don’t get over it......you get through it and it’s a process w a range of emotions

  • IBJUSTFINE67
    IBJUSTFINE67 Member Posts: 32
    edited October 2019

    Agree with everything you said.

  • IBJUSTFINE67
    IBJUSTFINE67 Member Posts: 32
    edited October 2019

    Via...this is what I love about these boards...thoughts posted like this! First of all, so brave to say what you said. Second of all, I went through the same dilemma/hell in my mind. You are experiencing what my friend and I call, survivors guilt and I soooo agree with Divine in that it seems to be a thing also with us women minimizing things...also, it's you being compassionate. Maybe you would feel better being on a board for just stage 0 or stage 1? Anyway, I too felt guilty for how things turned out for me but it was quickly filled in with....oh my goodness!!! What hell I went through!! Journaling and talking to friends who never had breast cancer actually helps me the most. If you private message me, we can talk♡ i think we are on the same journey.

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