New symptoms?

Wallen - thank you for your suggestion. As I said before, these weird muscle twitching & spasms started out mild along with discovering I had breast cancer in June. Then after starting the Anastrozole hormone & radiation, it got more intense. Then by January I seen an eye doctor who couldn't see anything & referred me to a neurologist who also ruled out nothing. But the systems at that time would come & go throughout the day, every day but was still milder. I just wanted to kick this thing in the butt earlier instead of waiting till it got really bad & maybe gone to far that they couldn't cure it. But now, it's gotten pretty intense & comes & goes throughout the day. There was one lady on BC.org that posted the exact same thing that's happening to me that was happening to her. They assumed it was Bells Palsy but that was way back in 2007? She hasn't posted since. I will be going back to my OC next month & will discuss this again with her & see if they will do some imaging test.

Cancer-related health problems. Problems called "paraneoplastic disorders" can cause nerve problems. They happen when your immune system reacts to nerve cells instead of cancer cells. This is more common in people with breast cancer.

Researchers believe paraneoplastic syndromes are caused by cancer-fighting abilities of the immune system, particularly antibodies and certain white blood cells, known as T cells. Instead of attacking only the cancer cells, these immune system agents also attack the normal cells of the nervous system and cause neurological disorders.

Of course I didn't find all this out till after I seen the neurologist. But you would think that she would of suspected this, instead of making me think it's stress related.

Wallan - yes, I've tried getting back in sooner but the only opening was with a PA that was foreign & never heard of him before. I'll just wait to see the cancer specialist (oncologist) next month.

It's like most of us now a days, have to do our own homework for our ailments & suggest what our symptoms could possibly be. Hopefully I can convince her that I want it diagnosed & treated sooner than later.

If it's Bells Palsy, I wonder how long it can take to go away? I heard people who get a trauma to their systems like cancer, Lymes, etc., can trigger Bells Palsy.

If it's Hemifacial spasms, there is no cure & doesn't go away. There are Botox injections or brain surgery with risk but not 100% curable. It's extremely rare (2 out of 100,000.00 people) get it. They don't know why it happens except that it could possibly caused by a trauma to the brain or brain tumor.

Otherwise it's possible that its related to paraneoplastic disorders attacking my nervous system. If it's this issue, then it's extremely complicated to treat & no cure. I did read that it's known to come with certain types of cancers such as breast cancer. I just know my symptoms are related. They.had cut a huge mass from my left breast & took a lot of good tissue to make sure they got clean margins. So all those nerves they cut, really did a number on my nervous system. It's bad enough getting breast cancer, but then to get another shocking evil disease on top of it. So hard to stay positive & look forward to getting better.

I really was very attractive for most of my life & look much younger than I am. Had very thick long luscious hair & now thinning faster every day from the Anastrozole I'm forced to endure for 5 years so cancer doesn't come back. I'm also dismembered & lopsided for life which left me with a size B on the left & size C on the right. Also without my estrogen, I'm very sore, ackey, depressed, whinny & a bitch

Hi Kay Girl-

My crazy & mean oncologist seems to think she is now a neurologist. She claims she knows me well???? That is far from the truth!!! Without any testing she claims the HFS's are nothing but anxiety!!! I've never had anxiety issues but of course with the diagnose of breast cancer, would stress anyone out. After begging & telling her I know that I must have a brain tumor that is pressing on my facial nerves to cause constant & persistent twitching. She finally ordered an MRI on my head & there it was - a big 2.5cm Meningioma tumor on my meninges!!! She still claims it's not pressing on any facial nerves. I have to have another MRI with contrast around December to get a better picture of it & find out if the tumor is pressing on facial nerves or the blood vessels compressing that is usually the cause of HFS's. All I know is since breast cancer last year, and now a brain tumor along with HFS's this year, life has been absolute hell! I don't want to live like this & afraid to die!!