just had lumpectomy with nodes removed

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tsomamie
tsomamie Member Posts: 2
edited April 2019 in IDC (Invasive Ductal Carcinoma)

Hello to everyone....I was dx with breast cancer on 1-7-2019...I have invasive ductal carcinoma. It was very small. o.7 mm. they caught it very early on right breast near nipple. My dr took about the size of a small peach and then took 4 nodes out with bio. All of the nodes was clear , no signs of cancer. my ER and PR was pos. her2 neg.

Lumpectomy 2-27-19..On to the cancer dr.which I just seen on 3-13-19. Everything is gone but new dr said my ki-67 marker was high. so waiting on another test..I am a 70 yr old woman. No one in family had breast, no outward appearance, me nor the sur could even feel a lump. I just had a mam. as a wellness check. my tumor was about the size of a pea. Now the cancer dr says it may be rad. and chemo. I am not taking chemo. just wondering anyone's thoughts

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  • kber
    kber Member Posts: 394
    edited March 2019

    Won't lie - chemo sucks!  

    I'm in a different boat - 47 years old, stage 2, 6 cm+ aggressive tumor in at least 2 lymph nodes, so I elected to bite the bullet and throw the kitchen sink at that sucker.

    But I certainly respect making another decision.  I think the most important thing is to know the facts and advocate for yourself strongly.  It's your body and your choice how you are going to treat yourself!  


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  • Ingerp
    Ingerp Member Posts: 2,624
    edited March 2019

    You're probably going to have an Oncotype test to determine if chemo would be of significant benefit to you. If it's recommended you might ask how it would affect your probability of recurrence. That helps a lot of women decide.

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  • Solobroker
    Solobroker Member Posts: 22
    edited March 2019

    Kber - I am in the exact same boat as you, same age, same chemo prescribed, similar size of mass. Started my first chemo 03/04 and going back this Monday for my next.  WIth one lymph node being positive and combined with size and growth and my age, MO prescribed chemo.

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2019

    Hi tsomamie, and welcome to Breastcancer.org,

    We're so sorry to hear of your diagnosis, but we're really glad you found us. As you can already see, our Community is a wonderful source of support, information, and advice from those sharing in your experience. We're all here for you as you navigate your treatment and beyond!

    As ingerp points out, it's likely you'll have a genomic assay test to determine if chemo will be beneficial for you to reduce recurrence risk. You can read about these types of tests in the main Breastcancer.org site's page on Oncotype DX testing (there are other types of genomic assay tests listed at the bottom of the page also!).

    We hope this helps explain a little more about how treatment decisions are made, and we wish you the best in making the right decision with your doctor for YOU!

    We look forward to hearing more from you soon and supporting you.

    --The Mods

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2019

    I’m looking at a second dance with cancer. I got the rotten news last week. Did the whole treatment recommended before. Surgery in 3 weeks. Will do chemo again if recommended. I’m also 70. It’s not a picnic in the park, definitely doable.

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  • tsomamie
    tsomamie Member Posts: 2
    edited March 2019

    Thanks everyone for support. I has been a roller coaster of emotions . I go see dr on Wed. I have decided I will take tamoxifen and rad if totally have to. You know this is my body and I should decide what treatments I will take..I am just not sure I trust this dr..and I feel you should have total say in these things. I had total trust in surgeon . My surgeon left the 4 markers in breast so they wouldn't have to make me go through anymore things. I told the cancer dr and he just rolled his eyes. Sorry for the rant and thanks for listening to me

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited March 2019

    Wow. I would not last very long with a doctor who rolled his eyes dismissively.

    You *can* change doctors for this part of treatment, or at least get a second opinion. In theory, your MO will be your doctor for a long time, so having confidence and trust in them is really important.

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  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited March 2019

    tsonamie, Absolutely agree with Salamandra! If possible, seeking a second opinion appears to be the next step for you; hoping you find a MO with whom you are more compatible! You have big decisions to make and having a compatible care team is extremely helpful.

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  • ireland5
    ireland5 Member Posts: 1
    edited April 2019

    what was your ocontype score. I have invasive ductal carcinoma too my tumor was .6 lymph nodes clea

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  • Beesie
    Beesie Member Posts: 12,240
    edited April 2019

    ireland, how old are you? What was the grade of your tumor? And is your tumor HER2-?

    Given the small size of your tumor, if you are older and have a HER2- tumor that is grade 1 or 2, even a high Oncotype score will not translate to a high recurrence risk.


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  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited April 2019

    tsonamie, I also recommend a second opinion. Although my first oncologist was very capable and highly thought of, I just didn't feel comfortable with her. Nothing I could put my foot on. So a second opinion was advised and I was referred to another oncologist. The minute he walked in the room I knew it was a fit. It was about his energy, who he was as a doctor with his patients. I've been with him for coming on 10 years and he has always been so respectful and kind and has the time to talk with me. And he has a terrific reputation. So get that second opinion and I hope you find an oncologist that you are comfortable with and who has respect for you. You will be with him for a long, long time. Good luck.

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