How much physical help will I need after double mastectomy?

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lightningblue
lightningblue Member Posts: 33

Realistically, how much help will I be needing after bilateral mastectomy? I'm specifically wondering whether I will need someone to help me with using the toilet -- will I? I know a lot of reaching/bending/twisting will not be possible, at least at first. I have a very long torso and short arms, so... I have to bend and reach a little. I imagine this won't be possible after surgery.

Any input is appreciated, sorry this question's a weird one!

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2019

    I had bmx. I didn’t need any help with toilet. Put everything you use frequently at counter height. Coffee, mugs, etc. Food items. Have a grabber in case. Reaching above your head will be difficult have med bottle lids loose. Plan on a few nights in the recliner. Getting out of bed can be “interesting “. Have a small pillow for under the seatbelt on ride home. Button or zip shirts for a few days at least. I had very little pain, Tylenol took care of that. If you have drains, a lanyard to hold them when you are allowed to shower.

  • alto
    alto Member Posts: 233
    edited March 2019

    I worried about this before my surgery as well. I did not have any problems.

    One thing that might put your mind at ease: your bowels will probably be on vacation for a few days after surgery, so you might find your arms more functional by the time they are back in business.

    Seconding moving toilet paper to an area where you won't have to reach or twist much to get it.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited March 2019

    regarding the bowel vacation, I highly recommend prunes. Take a bag to the hospital. I ate 2-4 every meal and it was much more helpful than any pill that was offered for bringing the bowels back to work.


  • Ladyofthelake
    Ladyofthelake Member Posts: 45
    edited March 2019

    Yes it took a while for my bowels to come back from vacation too, and I was taking care to eat a whole grain breakfast cereal everyday as well as the stool softeners. Should've added prunes too. You want to do everything to avoid having to go to step 2, laxatives. I earned myself a little hemorrhoid with all the cramping from the laxatives whe everything kicked back into action.

  • beep7bop
    beep7bop Member Posts: 130
    edited March 2019

    OK ladies I am having this done April 1' 2019. ? how long did your drain tubes stay in?

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2019

    At least a week, possibly longer, depending on fluid output. You have to keep record of how much daily output. Some here have noticed if they are back to their normal activity it seems to stimulate the fluid. My surgery is April 3, planning on being a slug. I had 4 the first time around and was a slug then

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2019

    It depends on your output, which you will measure and record the measurement each you empty the drain bulb. I had mine in for 10 days, but you will find that this varies from person to person. Most do not find the drains painful, just annoying and sometimes inconvenient. Best of luck

  • DesertPup
    DesertPup Member Posts: 53
    edited March 2019

    I worried a lot too and thought it would be so much more painful and debilitating than it was. Bathroom issues were fine and I had tons of pillows in my bed. A good mix of soft and firm and standard and king size. You sleep on your back for about 3 weeks so having the pillows to prop you up and help fake being sidewise is good. I had a big basket on my bedside table that held my pills, lip balms and fans for hot flashes. I also had a big tray on my bed that held the remote, water bottles, wipes, cell phone, etc. It wasn't awful getting in and out of bed just use your legs more and pushing with arms less. Having food delivered and just being able to sleep and watch tv was key. Sending you so much good energy!! It's scary I know but it's going to be okay. I'm about 8 weeks out and getting more normal every week. Oh and my drains were in about 2.5 weeks.

  • lightningblue
    lightningblue Member Posts: 33
    edited March 2019

    Thank you all so much for the information. This is so helpful!!

  • Natasha007
    Natasha007 Member Posts: 44
    edited March 2019

    beep, I’m praying for you. Hugs! April 1 is a great day to get this done and out. Praying

  • Irishlove
    Irishlove Member Posts: 82
    edited March 2019

    I am 18 days out single mastectomy. My drain was removed in 7 days. I'm very small boned and the drain was pushing against my ribs, making it uncomfortable, but not painful. The surgeon had me wrap with a large ace bandage due to seroma forming after the fact. Fact is I'm still wrapped at night, taking a break a couple hours each day. Since my breast was an A cup, the drainage seemed to drop off fairly quickly. As someone else mentioned, as I try to to my housework, etc., that's when the fluid built up, mostly around ribs. The surgeon said she does not aspirate it as the risk of infection is high. I looked for posts about wrapping and if it's truly beneficial this far out and did not find any info. Best wishes for a complete and quick recovery....

  • chef127
    chef127 Member Posts: 891
    edited March 2019

    Consider investing in a portable bidet. Not expensive, easy to install and you can use it forever.

  • CBK
    CBK Member Posts: 611
    edited March 2019

    lighteningblue

    You shouldn’t need help in the bathroom. Although I did have my husband stay close the first day I showered. I was allowed to shower 2 days after BMX and was actually encouraged to do so by my PS. I just felt weak at that juncture and a little scared to be alone if I passed out -which I didn’t!!

    I felt the biggest struggle was getting myself out of bed (my bed sets high ) So preferably you are in a low bed so you can kinda roll off or I put a step stool next to my high bed and got my feet on the floor and pushed up with the stool. You need to learn to use your core muscles more so not to be weight bearing on the upper body. Does that make sense? So when you have to get up off the loo you are mostly pushing off with the feet.

    My arms were able to reach overhead by the end of the first week. But Spookiesmom has some good ideas on keeping things counter height and pill bottles open if you don’t have someone with you 24/7! You can’t be lifting heavy water bottles or jugs either, so keep that in mind because you need to drink a lot!!

    I was not in bed 24/7 at all ; in fact I spend my day in the hospital in the lounge chatting with family and other visitors. When I got home I walked a lot in the house.

    I didn’t get backed up that badly. But if you do don’t bother with Colase. Go right to Senekot!!

    Wishing you an easeful procedure and speedy healing! I know it’s scary, but you will feel so much better once that surgery is over... that’s how I felt, yup like I did it! I’m stronger than I thought!

    🤗👍


  • hapa
    hapa Member Posts: 920
    edited March 2019

    I had BMX with pre-pec implants and had very little issue after surgery. I avoided exertion just to keep swelling down, and the PS told me not to lift anything heavy, but I could use full range of motion right away. I slept on a pile of pillows, this was the most comfortable way to do it due to the drains. I had good strong abs so no issues getting out of bed even though I was avoiding using my arms to lift myself up. I was told to take six weeks off work, but truth be told I probably could have taken two, and that was only because my PS was loathe to pull my drains any earlier.

    We did some things like keeping half or quarter full bottles of laundry detergent and milk cartons so I wouldn't have to lift anything heavy, but could still take care of myself at home. My husband took two weeks off for my recovery but he just wound up doing a bunch of home improvement projects.

  • beach2beach
    beach2beach Member Posts: 996
    edited March 2019

    Pretty much same as everyone else. I had a double, came home next day. No issue with taking care of myself with toilet etc. I propped myself up with pillows on my bed and took it slow getting up. I did my stretches every day and was moving my arms up above my head in no time. Also day after I was walking down the block to 7-11, albeit slowly but everyday little by little

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