WEIGHT GAIN

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TuesdayStar
TuesdayStar Member Posts: 9

I'm sure this topic has been brought up many times.

But honestly it can be kind of daunting to hunt for and sift through old threads.

So I am choosing this topic as my first thread to start.

I am looking for answer. Who has had success, not gaining weight or losing treatment weight gain?

I am halfway through neoadjuvant chemo. I have had 2 doses of A/C. I am visibly gaining weight. I feel like it is all me, I'm not experiencing nausea or bad-taste. I've always been a stress-eater and now I am a stress eater with [the stress of] cancer on literal steroids.

I hate that I am doing this to myself and I see SO MANY women in the various groups that I am in lamenting weight gain and struggling to lose it.


I really want to hear what has worked... I want success stories

Has any oncologist explained WHY chemo slows the metabolism? I always wonder about this, how can they know it slows the metabolism but not know by what mechanism it does that and how to correct it?

And wish me luck to stop power-eating the pounds onto my body so I don't add unnecessary body issues to the list of things I am dealing with.
Also, thank you for being awesome!!!

Comments

  • Flynn
    Flynn Member Posts: 307
    edited March 2019

    Well, the weight gain has driven me crazy. Mostly because between the hair and the weight, I look very different and it annoys me. I wasn’t in the market for a new look! At first when I finished chemo, I had a very hard time losing weight. I had maintained during ac but during Taxol & carboplatin, I was gaining a couple pounds a week. Probably due to steroids. I took the summer off. In late summer, with careful diet and more exercise, I lost 10 of 20 pounds. Then I started Xeloda and needed starch in am & pm to avoid nausea. Meds make me sleepy so I refused them during Xeloda and managed my food intake carefully. Weight loss again stopped. PS told me to gain weight for diep reconstruction so i’m up to 20 pounds over diagnosis again. I think I lost muscle from much less exercise and my metabolism slowed due to menopause. I also think that if I try, I can lose weight. It’s not the time now but in a couple months, I hope to give it a go. It’s definitely harder but possible- at least for me. Best wishes to you!

  • Trishyla
    Trishyla Member Posts: 1,005
    edited March 2019

    Oh, wow. I just posted something very similar on the Xeloda and TNBC thread (very, very long post . ) The weight issues are making me nuts.

    I think it has to do with our gut bacteria being destroyed by the chemo, especially an oral chemo like Xeloda. I'm hoping I can figure it out, because I'm with you, Flynn; I wasn't in the market for THIS new look.

    Good luck to you, Flynn and Tuesdaystar.

    Trish


  • VL22
    VL22 Member Posts: 851
    edited March 2019

    I lost weight during AC, but put it back on and added more on Taxol. I’ve always been in great shape and was a life long runner. I was very depressed.

    First, try to keep moving throughout treatment, even if it’s just walking.

    When treatments are done, get your thyroid checked. Mine was so out of whack and I was put on medication. Also, if you’ve gone into forced menopause, your metabolism may not return to normal.

    I felt just bloated and achey for months after treatment. I started running again and it was exhausting and really hurt my joints. I’ve never had to watch what I ate, so that was also a punch in the gut!

    I refuse to weigh myself,but my clothes are fitting and I feel good. I try not to eat after 7 pm. I’m definitely eating less, but not starving myself or giving up dessert! I stopped drinking alcohol. I’ve replaced running with spin classes - 4 days a week. I honestly love it - great workout, no pain.

    I hope this helps. It is so frustrating! Just don’t give up. I’ve found that the more I work out and eat right the stronger I feel and the less I worry about cancer.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited March 2019

    I will share what worked for me. I've lost about 15 lbs with a *modified* keto/ low-carb diet, which a MO recommended for my TNBC, prior to chemo. If you want to kick it up a notch you can fast briefly at the beginning of the diet, &/or limit your window of eating to less than 11 hours out of 24.

    Phase one, induction, is the hardest. You need to push your system into burning fat (using ketones to fuel cells) instead of carbs. (A side bar: ketones are hard for cancer cells to use, but easy for healthy cells to use, so can be helpful re cancer...) If you have been eating carbs it takes a while for your system to switch over to fat burning... about 3 weeks. During this time you want to eat *extremely* low carb. Basically no carby foods, with the only carbs coming in incidentally via veggies. If in doubt google the food and see if it is higher or lower in carbs. Aim for <30-40 carbs per day, or lower.

    No: flour, sugar, rice, potatoes, pasta, or alcohol (pretty much permanently). No root vegetables. No legumes, beans, lentils etc during induction, thereafter *limited* amounts of nutrient-dense carbs ok (lentils, quinoa, sweet potato, beans).

    Yes to unlimited above-ground veggies of many colors, cooked or raw. Make vegetables 3/4 of your plate at every meal. Yes to fats: nuts (best are pistachio, almond, brazil and other lower-carb nuts), seeds, avocados, olives, oil, cream, butter, ghee, mayo (limit animal fats due to cancer prevention, & make them organic). Yes to protein foods (but keep animal-flesh proteins lowish, also for cancer prevention reasons): lean organic or wild-caught meat, fish, poultry in small portions. Yes to organic eggs. Yes to full-fat dairy (cream, butter, cheese). NO to milk, yoghurt, cottage cheese in induction phase, thereafter limited amounts of unsweetened full fat dairy ok.

    Re cancer prevention, no more than ~20% calories from fats and animal sources. Aim for a largely Vegan whole food diet, w/ small amounts of animal foods. This diet will lower inflammation in your system.

    No fruits for induction phase other than 1/2 C berries/day... Thereafter, once in ketosis, increased low carb fruits ok (berries, kiwi, nectarine/peach, mango; kombucha), and infrequent higher-carb fruits are ok.

    You can get "keto sticks" at pharmacy in diabetes section. You pee on the strip and it tells you if you have ketones in your urine, indicating ketosis. Once you are in ketosis, you can gradually re-introduce *nutrient-dense* carbs (kasha, quinoa, etc) and fruits in small amounts, keeping an eye on maintaining ketosis. Everyone is different in terms of what they can tolerate and remain in ketosis. You can count your carbs and see what your tolerance is.

    This diet is easy to stay on, because if you are hungry you can always eat a chef's salad, a hard boiled egg, a handful of almonds, a piece of salmon etc. It's easy to order food at a restaurant. And a lettuce-wrapped burger is ok! The main trick is discovering a bunch of "go-to" foods that ARE permitted and having plenty of them on hand. If your current go-to food is a bagel, it will be a process!

    I lived on almonds (& fresh ground almond butter, w celery sticks), seeds, avocado, eggs, multicolor salads, daily berries, coconut based yogurt (CocoYo), cooked veggies, and occasional eggs, salmon or tuna.

    YOU MAY FEEL CRAPPY for the induction phase. Yeasts in your system will die and this can give you a brain fog feeling You will probably get a bad taste in your mouth (ketones). You may not lose weight initially. But press on!! Because once you are in ketosis the fit will melt off.... lower intake of dietary fats will prompt a lot of weight loss because if you are in fat burning, it will burn your body fat.

  • Hazel-Nut
    Hazel-Nut Member Posts: 120
    edited March 2019

    I had worked very hard the year prior to diagnosis to lose 40lb and I was determined to maintain my weight through chemo but now I'm up 9lb and I'm so annoyed! They stopped my steroids after my first Taxol and I actually wish they'd give them back lol. I have the opposite reaction to them - they completely take away my appetite. Once I was off them and they'd worn out of my system it was like my body was trying to make up for lost time.

    I'm working to get myself back on the straight and narrow before I end up gaining all of that weight back. My husband and I have just joined a twice a week bowling league. I know it doesn't sound like a good workout but it's low impact and I don't fatigue too fast doing it (and that's also time spent not snacking lol). I'm also working my way back up to doing spin class 3 days a week. My side effects are so much better when I exercise but I'm so tired to start with it's hard to convince myself to get up and get moving.

    The worst part of the whole weight thing is everyone keeps trying to feed me! Everyone I know keeps bringing me food and telling me I don't eat enough. It's like the minute I was diagnosed with cancer they all turned in to my Jewish grandmother trying to fatten me up.

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