What is your long-term follow up plan with breast surgeon?

Options
2002chickadee
2002chickadee Member Posts: 129

Hi all,

Could you share the plan your breast surgeon gave you for follow up care after your surgery? I am one year out from mastectomy (with a recurrence 6 months in) and my breast surgeon's office is trying to pawn me off onto a Nurse Practitioner for my every six month check ups going forward. I believe this is because they have administrative headaches with my doctor switching locations and aren't properly reassigning me to another breast surgeon. I'd like to understand what surveillance plan other people's surgeons have given them for the long term, when they are through the initial post-surgery check ups. If I am not getting the proper medical care I wouldn't mind switching to another breast surgeon to get it.

I do also see my MO every few months to manage my active hormone therapy and supposed to see a physician's assistant in the RO's office once a year.


Thank you!

Comments

  • Ingerp
    Ingerp Member Posts: 2,624
    edited March 2019

    My BS retired, I met once with another one in the same practice, and she asked me if I felt like I needed to keep up with her. I told her between check-ins with my MO and RO I was fine not doing regular follow-ups with her. She will get a copy of any future testing, but she left it up to me and I believe it's not unusual to cut your BS loose after the surgery follow-up appointments.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited March 2019

    i saw my breast surgeon maybe once after my mastectomy. He removed my portacath after chemo so i saw him in the OR. I don’t see him at all. I see my MO regularly and my PCP annually. I see my plastic surgeon for reconstruction follow ups but probably only have one more visit with him. What are you looking for from your breast surgeon

  • 2002chickadee
    2002chickadee Member Posts: 129
    edited March 2019

    Thanks both for your replies. When I had my first post-mastectomy visit with my BS, I was told I would see her every 6 months for 2 years, then be transferred to a survivorship clinic. I am only 1 year into that timeline. Given that my BS was the only one who found my recurrence, and she found it based on her not liking the "feel" of my core biospy scar, I am nervous about other doctors or nurse pracitioners being the ones relied upon to examine my breasts.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited March 2019

    I saw my BS once after my initial surgery. She removed the staples she had placed during surgery.

    An oncologist is the one who typically monitors for recurrence.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited March 2019

    chickadee- I understand your concern since your breast surgeon found the recurrence through an exam of your scar. I had a boost of radiation aimed at my scar and when i had my DIEP a year after mastectomy my PS removed the old scar and sent it off for biopsy since that is a typical place for a recurrence. I find myself balancing between seeing as many people as i can who will help me find health issues and managing a schedule of doctor visits and the copays. My MO does a breast exam each time i see her as does my PCP. and I pay attention since I’m the one who found the original lump. Only you can decide if you want to fight to see the surgeon, get comfortable with the NP or simply eliminate that whole interaction. If yields haven’t, consider a detailed risk conversation with your MO and factor that in. And don’t be afraid to be frank with the NP regarding your concerns of seeing an NP instead of an MD


  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2019

    I am 7 years out last August. I have my annual mammograms and then see my BS’ associate. I know the results of my mammogram before I leave the breast clinic so the follow up with the BS office is just a precautionary thing. Neither my MO nor I saw the need to see her after I hit the 5 year milestone.

    Diane

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2019

    I had the usual follow up visits, his NP discharged me saying they were really busy and didn’t need to see me any longer. But I could come back if I needed to. 7 years later, I need him again.

  • beach2beach
    beach2beach Member Posts: 996
    edited March 2019

    I'm a little over a year out. I saw my BS 6months out then 6mths later. Now she said see you in a year. See MO evry 6mths. I don't know what the BS has planned when I see her again, she never said how long I had to continue. I do feel a sense of comfort having her check me out though.

  • rachelcarter35
    rachelcarter35 Member Posts: 368
    edited March 2019

    I saw my BS once after surgery and it did feel like I was being abandoned when she said that my PS was going to be my point of contact from then on. I also have follow up appointments with my oncologist every 6 months. Unfortunately my first PS was a +_$%#@! pig which didn't help. Once I found my current PS everything was less scary.

  • vlnrph
    vlnrph Member Posts: 1,632
    edited March 2019

    Physician extenders such as PAs and NPs are badly needed to fill in when the MD cannot possibly see everyone. They would never have enough time to receive new patients or be in the operating room which is where their special skills and trainingare required. So, I don’t think long term follow-up is to be expected.

    I was happy to go to my surgeon’s nurse practitioner especially after lymphedema was diagnosed. We eventually agreed to part ways since my oncology and internal medicine appointments were sufficient to address routine care concerns until metastatic disease showed up.

    Certainly if you have ongoing issues such as seroma or suspect a recurrence in the scar, you should be able to access the expert. Otherwise, try to develop a comfort level with other professionals in the office...

  • CBK
    CBK Member Posts: 611
    edited March 2019

    My BS proudly informed me right after my surgery that she was my new Dr. and I would be seeing her regularly (that’s every six months go forward) for check-ups. I had a BMX so since I can no longer have a mammogram she monitors my breasts.

    In addition I see the oncologist regularly and since my reconstruction is still ongoing I also see my PS.

    I’m not thrilled with my oncologists level of attention so I welcome my BS added input.

    That’s something I’m working to fix very soon, the oncologist that is!!


  • lala1
    lala1 Member Posts: 1,147
    edited March 2019

    My BS was my first doctor I saw upon being diagnosed and he has been my go to guy for everything. He assigned me my MO and PS telling me if I didn't like them I could swap but he picked them based on my individual personality. He was right. Both of them I adore. He also picked my GYN but she ended up not being competent enough (couldn't do a laparoscopic hysterectomy when I needed one) so he picked my second GYN. Also someone I adore. (I was new to town when diagnosed so didn't have any doctors). He's found me an awesome primary care guy and even a doc to do my every-5-years colonoscopy who I love as well. I'm 6 years out and still see him every year and will till he retires. My BS has me schedule him, my MO and my GYN for yearly appointments which are spaced out for every 4 months so that one of those 3 is giving me a hands on breast exam every 4 months just to be on the safe side. And once a year my BS does a mammogram on my native side which is read and reported to him by the time I walk up the stairs to his office so we can go over it. And every other year he does an MRI of both breasts to look for any lumps and to make sure the implant is holding up with no leaks. My PS told me at 5 years I didn't need to see him anymore unless I needed him to swap out the implant or lift my native side for symmetry as I aged. So I'd have to say my BS may be the most important doctor I have as far as breast cancer goes. And he's made sure I have all the resources I need for everything else as well.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited March 2019

    I have had no follow up with BS at all or PS. Only see primary, GYN, and MO regularly.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited March 2019

    Lala sounds like you found a gem.

  • lala1
    lala1 Member Posts: 1,147
    edited March 2019

    Runrcrb--I did! And I'm grateful! The day I was diagnosed officially at a walk in clinic they called and got me an appointment with him the next day. He had a 4:45pm that he could fit me in. I was in a room being examined by him by 4:30 and he and I left the office and turned off the lights and locked up at 8:15 that night! He walked me through EVERYTHING in that time and even took a few minutes to call my dad (who's a retired doctor living in another state) and explain the basics to him to ease his mind. Best doctor I could have ever wished for. He's nearing 70 so when he retires I may just lose my mind! He's the best!

  • Rah2464
    Rah2464 Member Posts: 1,647
    edited March 2019

    lala1 i like your BS ideas of scheduling so that you get key appointments spaced quarterly i sam going to work on getting that in place as my appointments are transitioning to 6 month so glad you mentioned it thank you!

  • 2002chickadee
    2002chickadee Member Posts: 129
    edited March 2019

    Thank you everyone for your replies, it's interesting to hear there is such a wide range of follow up plans. Being a survivor and trying to do the best to manage your care going forward is confusing sometimes, isn't it?! Turns out the BS office was confused, I actually am scheduled to see my BS in June, not the NP. I'm going to spend between now and June getting comfortable with the idea of not seeing her (and just seeing an NP) going forward unless there's something suspect, which I am guessing is the recommendation she's going to give me. My MO's office is definitely giving the ladies a good once-over every couple of months too, so hopefully there's enough hands on to find any concerns.

  • Lindzfay
    Lindzfay Member Posts: 16
    edited March 2019

    My breast surgeon basically said her and I are in it together for the long haul. I’m happy because I really like and trust her. She will be doing all of my follow up monitoring.

  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2019

    JO - I didn’t have chemo either but my MO prescribed my meds and scheduled my radiation. I’m wondering why your BS scheduled your radiation instead of an oncologist which is their job. My BS did the surgery for the lumpectomy and I see his associate post mammogram yearly but that’s the extent of my visits with his office. I haven't seen my MO since I hit the 5 year milestone and she discharged me from her care.

    I will be 8 years out in August God willing.

    Diane


Categories