My lumpectomy plan

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Karmic108
Karmic108 Member Posts: 101

Preop - ekg and chest xray.

Op-

No eating or drinking or medication from midnight

Stop drinking water by 530 am

6am to 930 Iv, wire at the lump, anaesthesia

930 to 11 30 surgery on the lump

X-ray of the lump and if needed removing more tissue

Removing extra cm as well for a 2 cm lump

Radioactive dye and blue dye

Removing 1 to 5 lymph nodes close to the lump

If any c cells removing those nodes

Recovery is by 1 and go home

*****

Is this an ok plan? Did you all do in a different way?

Some use radio active seed I guess to locate the lump

Is removing the lymph nodes between 1 - 5 are mandatory?

Anything else needs to be added


Comments

  • Karmic108
    Karmic108 Member Posts: 101
    edited February 2019

    Am getting extra tissue removed from left arm pit and also my lump needs to be tested for granulomatas as well

  • Mucki1991
    Mucki1991 Member Posts: 294
    edited February 2019

    it's not unusual to remove a couple of lymph nodes if they suspect something and need to test. Just be informed about the lasting effects node removal can have causing Lymphedema. Let your DR know that you would prefer to not have them removed but if necessary please remove as few as possible. Also where they are taking nodes from is very important as well. For me a biopsy had already proven it was cancer so testing lymph nodes was the next step. I was worried about lymphedema and I had that conversation. I got it any way thanks to surgery and rads but such is life.

    Best wishes

  • Salamandra
    Salamandra Member Posts: 1,444
    edited March 2019

    At my treatment center (MSK), the Sentinel Node Biopsy - where they remove some nodes and do pathology on them - was presented as a standard part of the care even though I didn't show any physical symptoms of lymph node involvement and my doctor suspected there was none (and pathology eventually proved her right). They do it just in case.

    For me it has definitely been the hardest part of the surgery in terms of recovery, pain, etc.

    In retrospect... if I had to do it over again, I might think twice about it. I would probably go through with it again because I think I would have a harder time knowing that there was some potentially pertinent information I didn't have and that my prognosis was not based on as much information as it could have been. But I would have considered more carefully. Almost 5 months later, I still have numbness in my right arm, still have some fluid/mis-shapenness around the scar, still have some discomfort. I'm pretty sure none of it is LE, but I will still be asking my doc about it on follow up.

    I've read on here about a woman who opted against the SNB. From what I recall, she had to go back and forth with her docs on it a bit, but they have to respect it and eventually they were willing to things her way.

    But yes, everything you've written sounds extremely correct standard of care. (I had a radioactive seed put in the day before).

  • Karmic108
    Karmic108 Member Posts: 101
    edited March 2019
    Phew surgery is done.

    I asked to remove left armpit extra breast tissue. She did that and it is a separate procedure code. There is a lot of tissue it seems and she did a neat job.
    She is one extremely meticulous breast surgeon and has super work ethic.
    Compared to the nci latest methods she must be slightly outdated, but not that much impact.
    She did that first, then lymph nodes, then lump.

    Right breast three lymph nodes removal for path.
    One extra as blue dye showed something.
    Hoping nothing major need to wait on path labs.

    Three cuts. Both arm pits and left part of the right breast areola.
    Husband is a darling now a days and feel some love as he is supportive. Of course women usually are in need of true emotional connections to get nurtured. I know it is pathetic to think getting c is a blessing, but he is making me feel I exist now a days. That is making me feel better.

    They said before surgery any hugs and kisses. In our culture we usually don't do such things lol.. I said that's ok we don't do.. lol..

    I did pre and post meditations to clear the emotional and mental system.
    True to the core folks supported in messages. I was little paranoid and having jitters on the anaesthesia and sugery..

    Getting am friday appt is the coolest.. wknd break and am appts, ppl are fresh and not irked yet.
    But now the hardest part is biting my nails for the path reports, concerned on the blue dye removed node.

    Wrote a lot
  • MissouriCatLady
    MissouriCatLady Member Posts: 977
    edited April 2019

    Hope your path comes back good Karmic. I am getting lumpectomy and SNB Thursday, sounds like all the preparedness you went through. I had cancer show up in my lymph node at the beginning. Will get wire-guided lumpectomy since chemo shrunk everything very small. Wishing you the best!

  • Karmic108
    Karmic108 Member Posts: 101
    edited April 2019

    Good luck to you!

    They had to do resurgery for clear margins.

    Lymphs clear

    1 week rads done

    Next pill most likely


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