Newly diagnosed and full of thoughts and questions

Options
Chenye_Tripp
Chenye_Tripp Member Posts: 15
edited February 2019 in Just Diagnosed

Hello. I am newly diagnosed. I sought help because my left nipple started going through changes and I have been diagnosed with two areas of “invasive carcinoma with mixed ducal and lobular features" grade 1 and one tumor of “invasive ductile carcinoma “ grade 2.

The MRI showed no involvement of lymph nodes or cancer in the right breast but I don't think I can trust it totally my mammograms have all been “clean" too

I'm going through all the thoughts about surgery, reconstruction, survival but trying to take things one day at a time.

Our area was devastated with the Camp Fire in Paradise, CA and we lost our hospital and doctors. This left one hospital who has been in negotiations with our insurance company for months, the current extension between the two expires on 2/21/19. It's all very stressful.

The support I've seen here has been amazing as has the information I have found.

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2019

    Hi Chenye, and welcome to Breastcancer.org!

    We're so very sorry to hear of your diagnosis, along with the devastation your part of the country has seen!

    You're sure to receive great support here, so please come back often, ask lots of questions, and get the support you need. We're all here for you!

    We're sending positive thoughts your way for a clear treatment path and quick recovery.

    --The Mods

  • Mncteach
    Mncteach Member Posts: 274
    edited February 2019

    Welcome to the club no one wants to belong to. This is the most stressful time. Waiting for all the additional tests, making the decisions on treatments and doctors appointments are overwhelming. We all want to support you in whatever way we can and share our experiences so ask questions, find different groups that pertain to your diagnosis and I hope it will make it that much easier

  • Chenye_Tripp
    Chenye_Tripp Member Posts: 15
    edited February 2019

    Thank you. I will organize my questions and ask away..

  • Dani444
    Dani444 Member Posts: 522
    edited February 2019

    Hello Chenye, sorry you have to be here but you will find a very supportive group on here. As Mncteach said, this stage is stressful. It really does get easier when you get a treatment plan in place. So definitely ask any questions you have. So sorry to hear that you are dealing with the loss of your hospital and insurance stress on top of everything else. Also sending good thoughts for a clear treatment choice. Know that you will make the right decision for you. We are here for you

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2019

    Welcome to the Unfun Club, Cheyne. Try not to think of the various tests as contradicting each other, but that each is a part of the picture that will give your doctors and you the most information. Even during and after surgery, more information will appear via the dye that's injected and then pathology. Pre-surgery, the information and visuals are for your surgeon. After, it's for the medical oncologist, and, if necessary, the radiation oncologist.

  • beach2beach
    beach2beach Member Posts: 996
    edited February 2019

    Sorry you are hear but welcome. Of course adding to the fires and losing your hospital and now stressing about ins. issues is the last needed thing to add. Worry just about today and what you need. Take care of yourself and somehow the rest will work out. You need to do what you need to do. So get your questions ready. Looks like your stats are pretty good so hopefully with an OncotypeDx test after, you will not need chemo. Are you/ they recommending a lumpectomy? Are you considering a mastectomy? This site has so many fellow survivors which you are now one with, their stories, input all invaluable. You will get through this.

  • Chenye_Tripp
    Chenye_Tripp Member Posts: 15
    edited February 2019

    Thank you for the welcome. I will be getting a mastectomy because the areas are separated and I wouldn’t have enough breast tissue left after removing them.

    I’m not considering a double mastectomy at this time but I do wonder if I should reconsider it.

  • Tomichi1
    Tomichi1 Member Posts: 32
    edited February 2019

    I can’t believe this is all happening to you. I have a very different cancer so I can really speak to your exact situation. The women here are amazing. Should you undergo Radiation I found an amazing menu of holistic stuff that has left me with little to no side effects, and I only have 1 week left. If you ever want this info please just reach out. Sending you light and peace.

  • UpstateNYer
    UpstateNYer Member Posts: 387
    edited February 2019

    Hello Chenye. I am also newly diagnosed as of early Feb. Diagnosis came as a complete shock. No lumps felt, no family history, etc. Just being older and female is enough, I am told. I have opted for lumpectomy , have already met with a surgeon. I have to make a decision about how I want radiation. I have the option for IORT, where radiation is given at time of surgery. This saves me from going for 5 weeks daily radiation. There is a 2% lower success rate over 5 years, however, so wondering what route to take. Will meet with radiation oncologist early March. I am happy that things are moving along very fast. Also have a high deductible insurance plan that puts an added burden on finances. I do wish you luck with your insurance issues. You will do best to take things one day at a time, and hopefully make the proper choices for treatment. God Bless.

  • CindyNY
    CindyNY Member Posts: 1,022
    edited February 2019

    UpstateNYer- I'm from Albany. I did Hypofractionated Whole Breast Irridation, higher does over shorter period of time (16 vs 32+). I think if had been offered to get the IORT I probably would have taken it. My 16 treatments truly weren't bad, but it takes a lot out of you, and your skin, plus a time investment. Choose what's right for you.

    Cheyne - I'm hoping your insurance coverage gets settled. There is enough on your plate right now, you don't need any added stress from insurance coverage. Best wishes!

  • Mncteach
    Mncteach Member Posts: 274
    edited February 2019

    Hi fellow New Yorkers. I’m a native of upstate and live in Bennington, VT now.

    As for double, if you have had no other issues and nothing is seen in any testing, it really is up to you. I went the double route only because I already had two biopsies on the non cancerous side so why tempt fate. My doctors supported all available options and really gave me lots of information so I could feel good about my choice.

    Good luck and let us know what we can do to help

  • UpstateNYer
    UpstateNYer Member Posts: 387
    edited February 2019

    Hi CindyNY. Thanks for your reply. It is much appreciated. I am now leaning toward the IORT. I am lucky that my surgeon works in a hospital that has been offering IORT since this past December. Glad I do get to make a choice. Will meet with Radiation oncologist on March 6.

  • Chenye_Tripp
    Chenye_Tripp Member Posts: 15
    edited February 2019

    Thank you everyone, I feel very welcome here.

    My insurance company has again extended their contract with the hospital so I have two more weeks (at the least) of coverage.

    Today I am going for an ultrasound of my thyroid, an enlargement was found during the physical exam before my blood draw for genetic testing. Of course my mind immediately goes to cancer of the thyroid. I know this is not unfamiliar to most of you: the thought of cancer spreading.

    Tuesday I finally meet with my plastic surgeon. Hopefully surgery will be soon after. I want to get on to my recovery!!

    Again, thank you for the warm welcome.

    Chenye

  • Chenye_Tripp
    Chenye_Tripp Member Posts: 15
    edited February 2019

    Thank you, Tomichi1. I will take you up on your offer of holistic options. Sending you healing thoughts for your last week of treatment.

  • Maria1959
    Maria1959 Member Posts: 2
    edited February 2019

    hi Chenye, I've just had a double mastectomy 5 weeks ago . I my left breast was the one with cancer but after a lot of soul searching and speaking to some people I knew, I decided to take the right breast off also.Everyone is different , I'm 59 years old , slim build and fit... I work in women's fashion... so I'm surrounded by women and clothing along with body images to top it all off ! I'm not sure if I'm going to go through with a reconstruction yet ... I want to give my body time to heal properly. I find doctors try to push you into making life changing decisions too quickly .... If you need time to think about wether to do both breasts or not .... Take your time , talk to women that have been through it , you DO have time . I spoke to a friend who was in the same situation as yourself, she said she regretted not doing both breasts, as she stiil has yearly scans on her remaining breast, as I said, we are all different, I'm glad I gave myself 2 months to decide. Hope this helps

  • Moderators
    Moderators Member Posts: 25,912
    edited February 2019

    We so appreciate all your feedback, and we welcome our "newbies" warmly. We are sorry you have to be hear, but are happy you found us and are sharing your experiences.

    The Mods

  • Chenye_Tripp
    Chenye_Tripp Member Posts: 15
    edited February 2019

    Thank you, Maria1959 and Mods. I appreciate your responses and thoughtfulness.

    Chenye

Categories